Hi Sherri!


Glad to hear from you. I hope they get to the bottom of the swelling for 
you...Lymphedema  clinic might be a good idea...they can even teach you some 
home massage things to do to try and reduce the swelling..but finding the 
source first seems like the best idea..hang in there...I  will keep you in my 
thoughts and prayers that the swelling abates soon!


Warm regards,




!8's Beth

-----Original Message-----
From: Marty Gartenberg <[email protected]>
To: cmlhope <[email protected]>
Sent: Wed, Mar 2, 2016 10:11 am
Subject: Re: [CMLHope] Hey, what happened to everyone?



Hi Sherri,


That's very strange that none of those diuretics haven't worked, who knows 
maybe your a "late bloomer" so how long were you on them? And are you elevating 
your legs when you sleep? How about your salt intake? I also drink some seltzer 
water during the day and it seems to help me. 


No soda or anything that has any sugar or salt, even if it says that it is 
sugar free.


I also have these diabetic socks that really help but you mentioned that your 
legs were very swollen so that probably won't work.


Have you tried a lymphedemas clinic? One of my friends uses one and they 
usually wrap your legs in special pressure bandages and even though it may be 
an ongoing problem at least it works. 


You may also want to try some Ace bandages when you go to sleep but at first 
try not to make then to tight. I hope that some of these suggestions may free 
you into helping you along.


Good luck,


18's


Marty









On Wed, Mar 2, 2016 at 4:20 AM, sherri swanson <[email protected]> 
wrote:


Hi Marty, 


My doctor put me on Furosemide 20mg & potassium as I have low potassium to 
begin with, and at 20mg it did nothing. SO of course, he increased it to 40mg 
and still nothing. He switched me to a different drug Spironalactone, generic 
for Aldactone and still no trips to the bathroom and the swelling did not 
abate. My legs are just stubborn. So that is when all the testing started and 
current I am not on any diuretic as none of them have produced a result. 
Strange huh? Leave it to me to be difficult. But with all the other medical 
issues I have some not so common, the doctors are doing a bunch of tests with 
the hopes of find the culprit. 


I have to tell ya, I would welcome a run for the bathroom about now. LOL😁 
Anything to get rid of this excess water. 


As always, your input is most welcome. 


Cheers, 


Sherri

 





On Tue, Mar 1, 2016 at 10:12 PM, 'judy' via CMLHope <[email protected]> 
wrote:


Hello  This is Judy I forgot my password s I ave to wait till some one writes  
all is good t this end we got about a foot of snow and its beautiful  Just love 
it.  Have been off Gleevec for a few years and stillgoing  Good  Keeping up 
with blood tests because of other things buT all is Good with the counts.   
Take care and if you want some snow come and get it  HAha   JUDY
 



 
 
 
 On Monday, February 29, 2016 10:00 AM, Marty Gartenberg <[email protected]> 
wrote:

  

 

Why the silence? I miss everyone.


18's,


Marty

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