I remember Lottie and Jimmy. I adored Zavie, and he called me a few times in the old days just to check on me. I was #69 in Zavie's Zero Club.
Sent from my iPhone > On Mar 3, 2016, at 2:27 AM, [email protected] wrote: > > > [email protected] Google Groups > Topic digest > View all topics > Does anyone remember Zavie and Ida Miller or Lottie? - 2 Updates > Hey, what happened to everyone? - 10 Updates > Digest for [email protected] - 11 updates in 1 topic - 1 Update > Does anyone remember Zavie and Ida Miller or Lottie? > Marty Gartenberg <[email protected]>: Mar 02 03:46PM -0500 > > Well, I was looking through some of my things and ran across my Zavie Zero > hat. He and Ida his wife actually came to my home in Florida and they > presented me with the very first hat #1 > > I surely do miss my friends Zavie, Ida and as I would call her, Mommy > Lottie and her husband Jimmy. Probably some of the new commers may not > remember them but they were the backbones of the CML sites. > > 18's > > Marty > ANGELYN ESDERS <[email protected]>: Mar 03 01:33AM > > I remember dear Zavie! We were going to Ottawa once and I asked him if he > would join us for lunch. He was a guide at the art gallery in Ottawa and took > us through. He was such a nice fellow. He was the first one I contacted when > I went into remission. I am not sure, but I think I was #68 or 69 in the Zero > list. Rest in Peace, Zavie...Angie > > From: Marty Gartenberg <[email protected]> > To: [email protected] > Sent: Wednesday, March 2, 2016 3:46 PM > Subject: [CMLHope] Does anyone remember Zavie and Ida Miller or Lottie? > > Well, I was looking through some of my things and ran across my Zavie Zero > hat. He and Ida his wife actually came to my home in Florida and they > presented me with the very first hat #1 > > I surely do miss my friends Zavie, Ida and as I would call her, Mommy Lottie > and her husband Jimmy. Probably some of the new commers may not remember them > but they were the backbones of the CML sites. > > 18's > > Marty > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > Back to top > Hey, what happened to everyone? > Marty Gartenberg <[email protected]>: Mar 02 10:53AM -0500 > > Hi Judy, > > If your waiting to get your password by getting an email from someone it > won't help. However you can get your password by going into "forget your > password" and put in your user name. It will let you know that you will be > able to get a new password of your choosing. Been there done that many > times already. If you need any help then just let me know and I will talk > you through it. They will usually ask you a security question like which > high school did you attend or maybe your pet's name or something that you > put down when you first opened your account. > > Good luck and I hope that your doing well > > 18's, "symbol for life" > > Marty > > On Tue, Mar 1, 2016 at 11:12 PM, 'judy' via CMLHope < > Marty Gartenberg <[email protected]>: Mar 02 11:11AM -0500 > > Hi Sherri, > > That's very strange that none of those diuretics haven't worked, who knows > maybe your a "late bloomer" so how long were you on them? And are you > elevating your legs when you sleep? How about your salt intake? I also > drink some seltzer water during the day and it seems to help me. > > No soda or anything that has any sugar or salt, even if it says that it is > sugar free. > > I also have these diabetic socks that really help but you mentioned that > your legs were very swollen so that probably won't work. > > Have you tried a lymphedemas clinic? One of my friends uses one and they > usually wrap your legs in special pressure bandages and even though it may > be an ongoing problem at least it works. > > You may also want to try some Ace bandages when you go to sleep but at > first try not to make then to tight. I hope that some of these suggestions > may free you into helping you along. > > Good luck, > > 18's > > Marty > > > > > On Wed, Mar 2, 2016 at 4:20 AM, sherri swanson <[email protected]> > wrote: > > Icandoallttc <[email protected]>: Mar 02 11:21AM -0500 > > Hi all. > My sisters legs and feet swell really bad. She takes 2 diuretics. She has > never been on any tkis. > She recently chose to have leg vein ablation. She says this has really > helped. Maybe you could look into it. She had to have a heart pacer put in > also. > Good luck. > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > Icandoallttc <[email protected]>: Mar 02 11:29AM -0500 > > Hi Norm and so happy to hear from you. I miss our Tasigna group. > I lost my remission last year and am now on Ponatinib. It has my blood doing > good with few side effect. > That foot problem can hurt!!! > Rub a lot of castor oil on it and soak in Epsom salts. > I had the heel probably a few years ago and it lasted for 2 years. Put a > castor oil pack on at night. > I haven't been able to cruise lately and miss it. We are planning a Christmas > cruise if my health holds up. > Do you hear from our Tasigna group?? > Sounds like you are doing great!!! > I'm glad your eyes are better. > Stay in touch and yes, I sure miss Millie!!!! > Love > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > Icandoallttc <[email protected]>: Mar 02 11:30AM -0500 > > So sorry about your faithful friend. I pray he has a peaceful end. > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > Icandoallttc <[email protected]>: Mar 02 11:32AM -0500 > > Hi Richard. So glad to hear you are well. Warm in fl but we had a few cold > days. Fruit trees are full of blooms and I think the danger of frost is over. > > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > Icandoallttc <[email protected]>: Mar 02 11:35AM -0500 > > Hi Beth and thanks for asking. > The side pain is ongoing and they can't find out what is causing it. I had a > chest X-ray but it revealed all is good. I feel it's to do with gallbladder > surgery I had years ago. Back is on the mend so I'm fighting on. Blessing and > love > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > [email protected]: Mar 02 12:26PM -0500 > > Norm, it is so nice to hear from you and get caught up! I am so glad to hear > that you are still holding your own with ...Tasigna..that is great news > Elevel years!!!! So sorry about the death of your cousin. sounds so hard and > sad... and that your Hans is sick...that is a heart breaker as well....glad > he is being spoiled rotten by his parents Happy you got to go cruising!!! > Sounds wonderful...do keep in touch with us here!!! > > > I miss Millie and Zavie too... > > > Take good care, love and care, > 18's Beth. > > > > -----Original Message----- > From: 'Icandoallttc' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Wed, Mar 2, 2016 10:30 am > Subject: Re: [CMLHope] Re: Hey, what happened to everyone? > > > > Hi Norm and so happy to hear from you. I miss our Tasigna group. > I lost my remission last year and am now on Ponatinib. It has my blood doing > good with few side effect. > That foot problem can hurt!!! > Rub a lot of castor oil on it and soak in Epsom salts. > I had the heel probably a few years ago and it lasted for 2 years. Put a > castor oil pack on at night. > I haven't been able to cruise lately and miss it. We are planning a Christmas > cruise if my health holds up. > Do you hear from our Tasigna group?? > Sounds like you are doing great!!! > I'm glad your eyes are better. > Stay in touch and yes, I sure miss Millie!!!! > Love > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > > On Mar 1, 2016, at 8:16 AM, Norm <[email protected]> wrote: > > > > I am still alive and kicking but one of my kickers is giving me fits. I think > it is plantar fasciitis. > > I haven't posted in awhile and miss Millie may she rest in peace. > Jeanie is my cruise mentor and my wife and I along with a few other friends > just got back a couple of weeks ago from a 7 day cruise to Jamaica, Cayman, > and Cozumel. > > We were busy with one of my cousin staying here quite often while he was > being treated for stage 4 Melanoma, he passed and is walking with Jesus now. > Way too young and such a very good person. > > My beloved dachshund, Hans, turned 12 yesterday. About a month ago we were > given the devastating news that he has lymphoma. I never knew it would be so > difficult to have to deal with the knowledge that one day, much sooner than > expected, I would have to ease his way to a comfortable ending. > I dread this as he was my buddy and comfort while I was recovering from my > relapse of CML. > He is being spoiled even more than ever now and will be until that time > comes. Millie would understand. > > April 1st will mark 13 years since my diagnosis and the start of Gleevec. > As some know, I relapsed and Gleevec no longer worked. > I was fortunate enough to get in the clinical trial for AMN107 during the > phase 1 study. > As you can tell, it worked but not before I entered blast and was one very > sick puppy. I believe that one night the angel of death came for me and for > some reason let me stay. > All I know is Dr Kantarjian tells me to thank God and I do. > > My son has finished his tour of duty with the USMC and has been discharged as > a Sargent with the Achievement medal. We are extremely proud of our son, and > our daughter who is still teaching photography to high schoolers. > > I have been training my replacements at work so I can eventually retire. I am > ready but they are not.....lol.. > > My macular degeneration is stable and I have not had any shots in my eye for > almost 6 months. Still legally blind and that will not change during my > lifetime I suppose. > > I have been playing a lot of golf with my younger brother and we are having a > great time together. He is a good brother that will come and pick me up and > take me golfing even if it means spending the whole day with me. Life is good. > > This past December marked 11 years that I have been on Tasigna. I have never > been undetectable but it is generally only a few cells in 10 thousand. > > I will try to check in more often but life has been keeping me so busy. > > Blessings to all > Norm > > On Monday, February 29, 2016 at 9:00:33 AM UTC-6, wa2yyx wrote: > > Why the silence? I miss everyone. > > > 18's, > > > Marty > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > [email protected]: Mar 02 12:30PM -0500 > > Hi Sherri! > > > Glad to hear from you. I hope they get to the bottom of the swelling for > you...Lymphedema clinic might be a good idea...they can even teach you some > home massage things to do to try and reduce the swelling..but finding the > source first seems like the best idea..hang in there...I will keep you in my > thoughts and prayers that the swelling abates soon! > > > Warm regards, > > > > > !8's Beth > > -----Original Message----- > From: Marty Gartenberg <[email protected]> > To: cmlhope <[email protected]> > Sent: Wed, Mar 2, 2016 10:11 am > Subject: Re: [CMLHope] Hey, what happened to everyone? > > > > Hi Sherri, > > > That's very strange that none of those diuretics haven't worked, who knows > maybe your a "late bloomer" so how long were you on them? And are you > elevating your legs when you sleep? How about your salt intake? I also drink > some seltzer water during the day and it seems to help me. > > > No soda or anything that has any sugar or salt, even if it says that it is > sugar free. > > > I also have these diabetic socks that really help but you mentioned that your > legs were very swollen so that probably won't work. > > > Have you tried a lymphedemas clinic? One of my friends uses one and they > usually wrap your legs in special pressure bandages and even though it may be > an ongoing problem at least it works. > > > You may also want to try some Ace bandages when you go to sleep but at first > try not to make then to tight. I hope that some of these suggestions may free > you into helping you along. > > > Good luck, > > > 18's > > > Marty > > > > > > > > > > On Wed, Mar 2, 2016 at 4:20 AM, sherri swanson <[email protected]> > wrote: > > > Hi Marty, > > > My doctor put me on Furosemide 20mg & potassium as I have low potassium to > begin with, and at 20mg it did nothing. SO of course, he increased it to 40mg > and still nothing. He switched me to a different drug Spironalactone, generic > for Aldactone and still no trips to the bathroom and the swelling did not > abate. My legs are just stubborn. So that is when all the testing started and > current I am not on any diuretic as none of them have produced a result. > Strange huh? Leave it to me to be difficult. But with all the other medical > issues I have some not so common, the doctors are doing a bunch of tests with > the hopes of find the culprit. > > > I have to tell ya, I would welcome a run for the bathroom about now. LOL😁 > Anything to get rid of this excess water. > > > As always, your input is most welcome. > > > Cheers, > > > Sherri > > > > > > > > On Tue, Mar 1, 2016 at 10:12 PM, 'judy' via CMLHope > <[email protected]> wrote: > > > Hello This is Judy I forgot my password s I ave to wait till some one writes > all is good t this end we got about a foot of snow and its beautiful Just > love it. Have been off Gleevec for a few years and stillgoing Good Keeping up > with blood tests because of other things buT all is Good with the counts. > Take care and if you want some snow come and get it HAha JUDY > > > > > > > > On Monday, February 29, 2016 10:00 AM, Marty Gartenberg <[email protected]> > wrote: > > > > > > Why the silence? I miss everyone. > > > 18's, > > > Marty > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > > > > > > > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > Marty Gartenberg <[email protected]>: Mar 02 02:09PM -0500 > > Hi all, > > > > > > > > > Hi, Sherri, Jeanie and everyone else that may need some advice about *leg > vein ablation. There are so many things that are available on the internet > so you may scan through some of them. I wouldn't even know where to begin.* > > *Now Jeanie, sorry to hear about your sister but she seems to be doing > better. That Pace maker just may be in line for me depending on what > tomorrow finds. I have an appointment at the Cleveland Clinic in the > morning to speak with a cardiologist so I will find out more about it.* > > *18's,* > > *Marty* > > On Wed, Mar 2, 2016 at 11:21 AM, 'Icandoallttc' via CMLHope < > Back to top > Digest for [email protected] - 11 updates in 1 topic > "Dr. Francis Farrell" <[email protected]>: Mar 02 06:51AM -0600 > > ?Peripheral Neuropathy. Any indication of Diabetes? > > Sent from my iPad > > Back to top > You received this digest because you're subscribed to updates for this group. > You can change your settings on the group membership page. > To unsubscribe from this group and stop receiving emails from it send an > email to [email protected]. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
