Hi Susan and so glad to hear from you but sorry you are sick. Do you get the flu shot? I get one yearly and dont seem to get the flu. Yes we worry if we take the meds and worry if we dont!!! Im much better so never figured out whats causing it. Going to moffitt next week. Will post up date. They do pcr test every three months.
My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 16, 2016, at 11:03 PM, 'Susan Zimmerman' via CMLHope > <[email protected]> wrote: > > Dear Jeanie, > Sorry you're having troubles today. I havent been on for awhile cuz I've had > the wonderful flu...wheezing, coughing, exhausted. I'm getting over it > gradually....two days ago I slept literally all day and night except for two > light meals. Been on antibiotic for it. > > Been tested again since going off bosulif cuz of the stroke....int'l. Number > was .28....quite a bit elevated from .019....the test a month before. > > I am not overly concerned at this point. Being > > tested monthly locally and will go every 3 months to chicago. They are hoping > I will agree to go back on bosulif at 100 mg every other day to begin. I am > not ready at this point. > Have seen two other specialists at Northwes%ern recommended by Dr. Altman. > Many tests showed nothing out of the ordinary!!! Rather frustrating but > enjoying no meds! Oh bp was up so back on bp meds again. > > I havent deleted your posts but confess I havent read them yet either. > > You all are in my prayers and I hope I'm in yours for my #"s to stay down. > > Fightin on and 18's to all, > Susan F. Zimmerman > > > > On Wednesday, March 16, 2016 'Icandoallttc' via CMLHope > <[email protected]> wrote: > > Hi all > I woke up dizzy and have had it all day. Ive had this before so not to > concerned yet. > Could be my potassium is up. > I hope everyone is good tonight. > > My Motto: Faith and Pills❤️ > With Jeanie 18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
