I believe that Ida had it but when she died I guess that it went with her. Maybe some one that I don't know of may still have it, try asking around.
18's Marty On Thu, Mar 31, 2016 at 3:40 PM, 'Icandoallttc' via CMLHope < [email protected]> wrote: > Hi all, > I got my number many years ago but can't remember it. Did he have a list > and does anyone have access to it? > Thanks > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Mar 31, 2016, at 12:14 PM, Myvety2k via CMLHope < > [email protected]> wrote: > > Marty, I forgot to add that many people would ask me what the number 48 > on the side of the hat stood for, then I would tell them the story about > Zavie, etc. > > greenie > > In a message dated 3/31/2016 12:12:27 P.M. Eastern Daylight Time, > [email protected] writes: > > Hi Marty, I do remember the good old day's and Zavie's club which I am > #48. Well, anyway I had some hats made up, I was stationed at the > "Glenview Navy Air Station" for 6 Years from 1956 to 1962, and on the side > of each hat I had the number 48 embroidery on the side of all the hats. I > still where them every day. > > Greenie, > South Fort Myers, FL. > > In a message dated 3/31/2016 11:27:36 A.M. Eastern Daylight Time, > [email protected] writes: > > Hi Sue, > > I don't like to get involved with any social media because, first I just > don't have the time and I am to busy as well as for some personal reasons. > > If it helps, many years I actually personally knew Zavie and his wife Ida, > and since my bone marrow transplant came way before became Zavie became > because of how active I was even able to help him. I remember when he first > met Dr. Drunker and started on a drug at the time that was called STI-571 > which then became Gleevec. And this became something what was able to save > so many lives of the people with CML, and still does, more and more drugs > (TKI) started to spring up, and this is why I always keep saying that there > WILL be a cure soon. > > Probably most of the newcomers to CML, as we referred to it as "the club > that no one wants to be in" probably never even heard about Zavie or even > have never seen him. So without further a-due let me present you with a > picture of him an the cover of a magazine that I have kept for a very long > time. > > I am also number 1 in Zavie's zero club, and Zavie and Ida personally > presented it to me when they were down in Florida. The last thing I would > like to say about Zavie is that he was a real Mensch, meaning a real good > man. > > Also please let me know if you were able to receive this along with the > picture I have enclosed in the attachment. > > 18's > > Marty > > On Thu, Mar 31, 2016 at 10:00 AM, Sue <[email protected]> wrote: > >> Hi Everyone >> >> >> >> Are you on face book – If so we have a new face book page seeking to >> reconnect with those who received a ZAVIE ZERO CLUB NUMBER >> >> >> >> Facebook Page for those who were diagnosed prior to 2010 >> >> >> >> Searching for those who were on the Yahoo Site prior to June 2010 >> >> ... >> >> and presented with a Zero Club Number when they got to CCR >> >> >> >> Do you have a Zavie Miller ZERO CLUB Number ? >> >> >> If so please join this group - add Name, Number, where located, how long >> you have been diagnosed with CML, medication and dose and how you are >> currently. >> >> Zavie always left a sign off with a Yippee !! Yahoo !! >> >> >> >> >> >> https://www.facebook.com/groups/1673390782910601/ >> >> ZAVIE - CML ZERO CLUB MEMBERS - WHERE ARE YOU ? >> >> Reunite with friends from the start of your diagnosis of CML (Yahoo) >> Group >> >> The Zavie Zero Club Number only went up to 1340 as this was the last >> number presented >> >> >> >> >> >> Thank you in advance >> >> Sue Hurt >> >> (Australia #1197) >> >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
