Thank you Jeannie. Your saying does ring a bell with me as well. I take 10 pills in the morning plus A table spoon of this nasty tasting bright yellow liquid called Mepron that I want to puke.
Then 6 pills at lunch time, and during dinner another 11 pills. Plus a slow acting Insulin before each meal, finally a another shot of a long acting insulin just before I go to bed. I almost forgot three more pills at every meal Vitamin B. But you know what? We are still living 🖖 As far as faith, that I have a lot of. So who has who beat? 18's Marty On Wed, Apr 6, 2016 at 6:20 PM, 'Icandoallttc' via CMLHope < [email protected]> wrote: > Thank you Marty and yes I believe Only God knows how long we have to live. > > Take each day as it comes and live it fully. > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Apr 6, 2016, at 9:41 AM, Marty Gartenberg <[email protected]> wrote: > > You know that I usually look at all of the posts that come through but it > was something that Beth posted, and I have been thinking about it, but all > the rest of all of you as well. All of everyone here are such good hearted > and compassionate as well as caring people and it just seems that we must > come from an extended large group of family thrown together. > > And this is for your 87 year old mom... see below > > But first, A little story for you: > > It was 15 years ago that a close friend of mine was in the late stages of > having Alzheimer's disease. However his wife never gave up on him. He was > still lucid up until about two years ago. Most of his doctors mentioned > that he probably had only a week or to to live. So I told his wife that > this also happened to me a couple of times but I am still alive, and there > were a few of my doctors that have already passed on. > > I came to the conclusion that only GOD will take someone when it is their > time. So, this man with Alzheimer's proved them wrong. Remember thirteen > good years and two that were not exactly the best for him. > My wife and myself just attended his funeral this past week. > > So what does this tell everyone? You already know but how long someone > lives is what makes each and every moment count. > > This is for your perishes mom... > > A PATIENT’S PRAYER > > > > Eternal GOD, source of healing, out of my distress I call upon you. Help > me to sense your presence at this difficult time. You have already sent me > gifts of your goodness: The skill of my physician, the concern of others > who help me, the compassion of those I love, and who love me. > > > > I pray that I may be worthy of all these, today and in the days to come. > Help me to banish all bitterness; let not despair overcome me. Grant me > patience when the hours are heavy; give me courage whenever there is hurt > or disappointment. > > > > Keep me trustful in your love, O GOD. Give me strength for today, and hope > for tomorrow. To your loving hands I commit my spirit when asleep and when > awake. You are with me; I shall not fear. Help me, O GOD, in my time of > need. > > 18's > > Marty > > > > On Tue, Apr 5, 2016 at 10:33 PM, bkbarney via CMLHope < > [email protected]> wrote: > >> Dear Suzieq, >> >> Thinking of you with your mom....please try to remember to take care of >> yourself while taking care of others...our hearts of with you...warmest >> regards, Beth. >> >> >> -----Original Message----- >> From: Shannon L <[email protected]> >> To: CMLHope <[email protected]> >> Sent: Tue, Apr 5, 2016 4:47 am >> Subject: [CMLHope] Re: An update >> >> Hi Suzieq >> >> Sorry to hear the news of your Mum and also hope your readings stay low >> or 0 take care >> >> Best wished Shannon Levanos >> >> On Tuesday, April 5, 2016 at 4:11:37 AM UTC+10, Suzieq wrote: >>> >>> Hello CML survivors: just wanted to tell everyone my recent life >>> changes. I had my check up back the end of January & it showed a .01% >>> positive. I didn't freak out, after 12 years, I expect this up & down >>> roller coaster. As my doctor keeps telling me, that's a very minute number >>> & you can live a long life with that number. >>> The big change came about three weeks ago. My 87 yr. old mother was >>> dx'ed with Lymphoma of the Red Blood Cells. She quit all treatment & asked >>> to come home & let nature take its course. So, I am here in Florida being >>> her caregiver for now. I find it ironic that her brother had Multiple >>> Myeloma, (died in late 90's), I have CML, & now Mom has Lymphoma. Could >>> there be a pattern unfolding here?? Makes one wonder, doesn't it! She also >>> has an autoimmune disease of her platelets. We are just trying to keep her >>> comfortable as possible. So far, she's just weak. Doesn't eat enough to >>> keep a bird alive. Not sure how much longer she will have, but we are >>> making every moment count. >>> Thank you, >>> Suzieq >>> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
