I totally agree. My failure is to wave a salt shaker above the salad. My wife also has to look for low sugar on those menus.
On Friday, May 6, 2016 at 6:12:19 AM UTC-5, greenie wrote: > > Thank you Richard for your reply, I know one thing I stopped using salt > and my wife never cooks with it but when you go out for dinned I have to > tell them no salt. > > greenie > > In a message dated 5/6/2016 12:01:34 A.M. Eastern Daylight Time, > [email protected] <javascript:> writes: > > Hi Greenie. I am lucky to only have a small amount of leg swelling. > Between my heart and Gleevec it stays at level one. now. I did loss 30 lbs > of water weight (without pills) when I took my long break from Gleevec. > Heart and ONC recommended that I KEEP the FEET UP to help pump blood > through your feet and legs. The higher the better. I use a recliner chair > and attempt to nap with my feet above my head a couple of times a day. > That does help reduce the swelling. My wife has had to use compression > stockings because of her new heart problems, but she gets dizzy when she > gets her feet even or above her head, and that does force the water to flow > through the system. She also has to take the water pills because hers is > also collecting around the heart. Just suggestions from a couple of Dr.s. > that might help the problem so you could use less water pills. > > The great news is you do have everything under control.. I'll be looking > for your report next month. > > 18's > Richard H. > > > > On Thursday, May 5, 2016 at 8:47:36 AM UTC-5, greenie wrote: >> >> Hi Group, my Creatinine levels have always been on the high side going >> back to 1997 before I found out that I have CML. They were 1.2 then and >> over the years now 2 months ago they are at a high of 1.67. but it goes up >> and down. Sometimes 1.4 or 1.5. In December of 1998 is when I found that I >> had CML 2 weeks before Xmas. But I started Gleevec the first week in Jan. >> of 2000. >> >> The last year I have been retaining water on my lower legs and feet and >> some days their is not a problem. Take a water pill and helps, but here in >> Florida that could be some of it weather wise don't know. Will see my >> Cancer Doctor at Northwestern in Chicago the 1st of June and will talk to >> here. >> >> Take care everyone, >> >> Greenie >> >> In a message dated 5/5/2016 8:37:03 A.M. Eastern Daylight Time, >> [email protected] writes: >> >> Beth, Jennie and all of you that are "residing" in this CMl web site are >> just EXCELLENT PEOPLE, it's just you don't realize it... Yet. >> >> 18's, >> >> Marty >> >> On Wed, May 4, 2016 at 10:43 AM, 'Icandoallttc' via CMLHope < >> [email protected]> wrote: >> >>> Hi Beth and thanks. >>> My Creatine level was 0.9. The normal is 0.5-1.0. >>> >>> My Motto: Faith and Pills❤️ >>> With 💗Jeanie 🐟🐟18,s Chi >>> Dx 1/2004. CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib January 2015 >>> Dr Balducci Moffitt Cancer Center >>> >>> On May 3, 2016, at 2:44 PM, bkbarney via CMLHope < >>> [email protected]> wrote: >>> >>> CPK doubled in the last two months to 700. Monoclonal protein they had >>> been tracking for the last two years is up...BCR abl will hopefully be a >>> good result... Then we plan from there... >>> >>> Marty, I just went to the national Bone Marrow Transplant Survivors >>> conference this weekend...I went as the caregiver and helper to my best >>> friend who is now 2.5 years out and struggling with graft vs host. I went >>> to 9 seminars and met lots of people ..wow...so humbling, inspiring, >>> overwhelming...and I thought of you.all those years ago....before all these >>> advances have been made.....hope you are feeling better...I know you will >>> stay positive, and strong..I am thinking of you.. >>> >>> >>> and Jeanie, the session I went to on faith, spirituality and illness >>> ....was right up your alley...you and many other's here.. >>> >>> also did a nice piece on yoga and meditation, complementary medicines, >>> nutrition....pain management, sleep issues...etc..etc..really well done >>> weekend. >>> >>> >>> and the importance of not getting lost in our heads, in fear, and >>> ruminating...but instead, staying anchored, and reaching out so we are not >>> in isolation.... >>> >>> Thinking of all of you.. >>> >>> Love, Beth >>> 18's.. >>> >>> >>> -----Original Message----- >>> From: 'Icandoallttc' via CMLHope <[email protected]> >>> To: cmlhope <[email protected]> >>> Sent: Tue, May 3, 2016 12:12 pm >>> Subject: Re: [CMLHope] Prayers are offered. >>> >>> What are the changes in your blood work if u don't mind sharing Beth?I >>> have several things out of range but just slightly. >>> >>> >>> My Motto: Faith and Pills❤️ >>> With 💗Jeanie 🐟🐟18,s Chi >>> Dx 1/2004. CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib January 2015 >>> Dr Balducci Moffitt Cancer Center >>> >>> On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope < >>> [email protected]> wrote: >>> >>> Beth, yes, a long time since you've posted. Please let us know your >>> results. Sending prayers and hugs. >>> >>> Marcie >>> >>> Sent from my iPhone >>> >>> On May 2, 2016, at 2:05 PM, bkbarney via CMLHope < >>> [email protected]> wrote: >>> >>> Thank you Richard for your kind words and prayers. They are always so >>> appreciated. You are such a stable presence here. I so appreciate your >>> thoughts and help. I hope everyone is navigating the best they can. Know >>> that I think of all of you often...haven't written much because of my own >>> journey...I am sorry if I missed out on communicating with those who are >>> struggling recently. All of you are in my heart. >>> >>> I do BCR abl next week..so please keep your fingers crossed. I have more >>> anxiety about this one for some reason... My basic blood work shows some >>> changes that are in the wrong direction...hopefully things are stable in >>> the CML realm. >>> >>> Will keep you posted.. >>> >>> Much love and 18's, Beth >>> >>> -----Original Message----- >>> From: Richard H <[email protected]> >>> To: CMLHope <[email protected]> >>> Sent: Sun, May 1, 2016 11:11 pm >>> Subject: Re: [CMLHope] Prayers are offered. >>> >>> Thank you. >>> Richard >>> >>> On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: >>>> >>>> Just one thing to say Richard H. Your like the rock of Gibraltar. >>>> >>>> 18's to you! >>>> >>>> Marty >>>> >>>> On Sat, Apr 30, 2016 at 12:07 AM, Richard H <[email protected]> wrote: >>>> >>>>> I am sorry to hear about all the problems everyone is reporting. I am >>>>> lifting prayers for healing to those with problems and for the caregivers >>>>> prayers of understanding and strength to help them be the support they >>>>> want >>>>> and need to be. >>>>> >>>>> I am just coasting with all my problems and trying to deal with lower >>>>> strength because of them. I have changed a couple of Doctors because >>>>> they >>>>> started practicing too far away. They have reviewed my records and have >>>>> updated me on things that I don't remember being told about and clarified >>>>> some things that were given as side inference. I am also adding a new >>>>> heart med and will be monitored to see if I need to change others on my >>>>> list. >>>>> >>>>> 18's >>>>> >>>>> Richard H. >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google >>>>> Groups "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google >>>>> Groups "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>> an email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>> >>>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> 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this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> 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https://groups.google.com/d/optout. >> >> -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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