Thanks Joyce I have been worried too. It's not like him to not answer. Also do you remember John. He was on Ponatinib like me. He hasn't been on for a while. I know summer is slow. I am good except for side pain. They are still trying to find out why. Sorry about the corn but it will be gone soon. Maybe they will let you pick some. My dad used to grate it and my mother would fry it. Yum!!!! Let us know how the visit goes.
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Jul 12, 2016, at 2:08 PM, Joyce Mesnarich <[email protected]> wrote: > > Hi Jeanie, > You are still connected. LOL Things have been rather quiet lately in the > group. Maybe we are all too busy trying to keep cool. I guess the biggest > bug-a-boo in my life right now is the tall corn growing in the field in front > of my house (not our crop) and sealing us of from the rest of the world. We > cannot see anything. Feel all alone in the world. So I guess you could say > that things are going pretty well if that is my biggest problem. > My husband will go to see Dr Talpaz next month. Hoping for a good report. > Hope you are feeling better. Ever get a dx for that pain in your side? > I am concerned about Marty. Have not seen anything from him for awhile. > Prayers for you, Marty. Let us know how you are. > > God bless and keep you. > Joyce in IL >> On Jul 12, 2016, at 11:04 AM, 'Jeanie' via CMLHope >> <[email protected]> wrote: >> >> Anyone there. Testing >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/2015 >> Doctor Balducci Moffitt Cancer Center >> >>> On Jul 6, 2016, at 7:12 PM, Ricardo Gadelha <[email protected]> >>> wrote: >>> >>> Thank you all for the feedback. I am trying acupunture and guaraná. >>> >>> Em 28 de jun de 2016 11:39, "'Jeanie' via CMLHope" >>> <[email protected]> escreveu: >>>> When I was first in Gleevec I wanted to go visit my daughter. She called >>>> and I told her I was too tired to pack. She said don't pack get some >>>> rest. So my advise to you is don't do anything you don't have to do. >>>> Rest as much as you can. Your body is fighting a horrible disease and its >>>> tired. Listen to your body. Try to exercise some it don't over due. Good >>>> luck. >>>> >>>> My Motto: >>>> Faith and Pills >>>> With Love >>>> 🐠18's >>>> Dx 1/2004 CML Leukemia >>>> Started Gleevec 2/2004 >>>> Started Tasigna 9/2009 >>>> Started Sprycel 11/2009 >>>> Started Ponatinib 1/2015 >>>> Doctor Balducci Moffitt Cancer Center >>>> >>>>> On Jun 27, 2016, at 8:39 PM, kathy walls <[email protected]> >>>>> wrote: >>>>> >>>>> I hear you!!! I had the fatigue the whole time I was on the drug. When I >>>>> changed drugs because of the multitude of side effects I had the fatigue >>>>> lessened dramatically. I'm on gleevec 200mg daily and while I'm not >>>>> considered in remission I feel soooo much better I'll take the #'s I got >>>>> and run >>>>> >>>>> Sent from my iPhone >>>>> >>>>>> On Jun 27, 2016, at 7:54 PM, Ricardo Gadelha <[email protected]> >>>>>> wrote: >>>>>> >>>>>> Hi folks, >>>>>> Does anyone know how to deal with fatigue that comes with nilotinib 400 >>>>>> mg bid? >>>>>> >>>>>> >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to [email protected] >>>>>> To unsubscribe from this group, send email to >>>>>> [email protected] >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an email to [email protected]. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support 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