My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center
> On Mar 11, 2005, at 12:26 AM, Rob <[email protected]> wrote: > > I have reviewed all of the posts that were made and it is unfortunate that > circumstances have come to the point where they are today. Posting privileges > for a small number of people who are members of [email protected] have now > been removed. They can continue to read the messages in the group but they > will not be allowed to post messages. Several others have been given warning > notices not to involve themselves in negative exchanges with others in the > future. If those who have had their posting privileges removed need to post > something to the group they can send it to me personally and I will post it > to the group if it is of an appropriate nature. > > I have done everything possible to accomodate and satisfy the concerns of > this small group since last Fall and their concerns for "standards of > decency" . The exchange of posts today was disturbing and has no place in a > support group. As some have already mentioned Sandra Landels was subjected to > a similar barrage of complaints until she died from some in the same group. I > do not feel that a small group who has appointed themselves should be able to > determine what a group of 1,800 people should be able to post and read. > > I hope we can now proceed so those who have a serious and legitimate interest > in participating in a CML support group will now feel more free to post to > both the Yahoo and Google groups without fear of being attacked and > humliated. If any in the group should receive private messages from any of > the parties who have been involved in these exchanges (or anyone else) please > forward those to me and further action can be taken. > > I apologize to Dane that some decided to drag his name into this today. It is > a really sad day that things have come to this point. > > Rob -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
