Thanks for the update and so sorry about your mother and hip problems. You seem to be holding up good. Did they help you with the pain. Nothing worse than being in pain all the time. I lost my mom and dad many years ago and still miss them. I also lost my hubby if 42 years in 1998. 6 years after his death I was dx with leukemia. Hang in there and fight the good fight of faith. Love
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Nov 27, 2016, at 8:17 PM, Suzieq <[email protected]> wrote: > > Hello to my CML Survivors! > > Hope everyone had a very nice Thanksgiving. I know it's been a while since I > posted anything, but I haven't been on line very much for a few weeks. I > come today to let y'all know that I had to have a total hip replacement of my > left hip which was done on October 20th and was in the hospital (St.Louis) > for 5 days till they moved me to a hospital closer to our home for almost 2 > weeks of Rehab. I have one more week of restrictions left and then I'm > home-free! Yea!!! This has been about the worst (I should say the longest) > recovery from surgery that I have ever faced. I am not a patient person, > but I have obeyed & not being doing the things I was told not to do. The > reason for the replacement, it was bone on bone (the two weeks leading up to > surgery were the most painful I have ever experienced). I had a major case > of Arthritis according to the Orth. Surgeon of which he cleaned out as best > he could while in there. He did say that I would probably have to have the > other one replaced later on down the road (of which I thought to myself, it > will have to be a long time down the road as far as I am concerned, lol), > but it's not bothering me for now so we will leave it alone. He was very > surprised that I have such a case of Osteo Arthritis as my age (63). Seems > the left side has been the worse. Not only was it in the hip, but it's in > the left Sacroiliac Joint just as bad. The right side has a bit, just not > as bad. He made me go off the Gleevec for 30 days starting 7 days prior to > the operation. That long wasn't mentioned in the beginning, I thought it > was going to only be 15 days, but he said to stay off of it for the full 30 > days. I am hoping all will be well when I see my Hem/Onc on the > 19th.....sure hate to lose my "non-detected", but even so, shouldn't take > too long before it's back to 0. > > Oh, and one more thing..........I had my surgery on Thursday and my Mom > passed away Saturday night at 11:15 (Florida time). Needless to say, no way > was I able to travel the 1025 miles (one way) to be with my oldest brother > and for the funeral. I still grieve for her. I am now very thankful that I > had last spring with her when I went down to care for her once she came out > of the hospital. Got to spend 2 & 1/2 months as her total caregiver until we > placed her back in the rehab/residential home where she wanted to go. She > knew I was going in for surgery and she knew it went well. I told my husband > I feel she planned her death perfectly cause she knew I would put off the > surgery no matter how bad my pain was and come down there to be with her. She > never wanted to be a "burden" to us and she always was worrying about me with > the CML even though I told her that I was just fine, that it was not a > problem, that the Gleevec was doing it's job and all was well. Since I > wasn't able to be there, I told my brother that maybe we could maybe have a > special Memorial Service for her back in the hometown in Kentucky where most > of the family still lives later sometime after the 1st of the year. Everyone > seemed to be okay with that. > > Okay, I hope you all have a very Merry Christmas & the Happiest New Year! > > Suzieq > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.

