Hi Beth, I like going on cruising, Grace and I over the last 16 years have on 
on 9.  We were going to go this Dec 5th but had to cancel because Grace has 
had a few health problems so next year.

greenie

In a message dated 12/16/2016 8:52:20 AM Eastern Standard Time, 
[email protected] writes:
 Hi GreenieI'm 78 so we grew up in in same era. What a fun time.  So 
sorry about your son The pain never goes away. I'm headed out on a Christmas 
cruise.  If you are there Norm I'm thinking of you.  We are going all 
over starting with Key West and over to Mexico. I'm going with my daughter and 
granddaughter. Fun in the sun. We are taking a wheel chair to make the tours 
easier for me.  Be good all. 🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄

My Motto:
Faith and PillsWith Love🐠18'sDx 1/2004 CML LeukemiaStarted Gleevec 
2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 
1/2015Doctor Balducci Moffitt Cancer Center 
On Dec 14, 2016, at 12:12 PM, myvety2k via CMLHope <[email protected]> 
wrote:

Hi Beth, I will say that for being 77 1/2 years old my heart is in good shape. 
 Had all of the tests 6 months ago and doing find.  And being on Gleevec 
for almost 17 years I'm find.

Thank you,

greenie

In a message dated 12/14/2016 11:20:41 AM Eastern Standard Time, 
[email protected] writes:
 Dear Greenie, Another thought...please make sure, this is the Jewish mom 
in me to be sure.....that your heart is working well...sometimes we blame 
everything on our chemo's...if it's a new symptom, and you have been on a med 
for a long time, it could be something else that is causing  symptoms...are 
you short of breath when you walk up stairs, tire more easily when you take a 
long walk? Have you had a stress test anytime??? or recently???  Remember, 
the blow to you when you have the kind of loss you have sustained is felt not 
just emotionally, but in the body as well..it is not uncommon to have health 
issues post such a trauma.... I know you have an amazing spirit.... just 
worried about you.. Take good care!

Beth


-----Original Message-----
From: myvety2k via CMLHope <[email protected]>
To: cmlhope <[email protected]>
Sent: Wed, Dec 14, 2016 6:23 am
Subject: [CMLHope] Blood work results


Hi Group,  I have some good news and then some not so good news.  I 
received my blood work back from 10-07-2016 and my BCR-ABL1 fusion transcripts 
are NOT detected.  The bad news is that my creatinine level and gone up from 
1.56 to 1.82.  I have always been on the high side going back to 1998.  
It was 1.3 back then.  It was 1.58 in 6/01/2016.

The other item is I'm retaining water in my feet and lower legs.  Had some 
Polish sausage on Friday night and within 2 to 3 hours my feet, ankles and 
calves blew up like the Pillsbury Doughboy so no salt for me.  Grace dose 
not use saw and when we go out for dinner I tell them NO SALT on anything but 
the sausage caught me by surprise.

So Marty if you read this email me back or anyone and tell me what my options 
are because I am lost on what to do..   Have not heard from Doctor yet 
because she probably hasn't received a fax yet from Quest.  Otherwise I 
doing find.  Always get cramps that's been from day one when I started 
Gleevec the first week in Jan 2000.  WBC is 4.7 and platelet court is 202 
and RBC is 3.61 and it's been low ever since i started Gleevec.  

So other then that I want everyone to drive safe and have a Happy Holiday and a 
Happy New Year.

David (greenie) Greenberg
Sunny  Fort Myers, Florida





 
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