Hi all I was wondering about gout as my father and brother had it but this is the first time I've had this. My fathers big toe was swollen and was hurting so bad. Have any of you tried Voltaren cream? It helps a lot but you need a prescription. I was drinking a coke a day and thought this might be it but quit and still hurt. Could be the Ponatinib. I never had it with the other tki's. Keep praying my warrior group. Thanks
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Feb 18, 2018, at 9:46 AM, Marty Gartenberg <[email protected]> wrote: > > Hi Jeanie, > > Sorry to hear about the pain your having. Hmm it sounds to me like a case of > gout but i could be wrong, for instance the gout usually starts in the lower > feet particularly in the big toe but can also manifest it self in any joint > of your body. It did for me and i suffered all kinds of terrible pain. > > That was right after my diagnoses when i was put on Allopurinal and Hydrea. > About two weeks later my gout was gone and so was my very white cell count. > So what this meant is it usually takes about two weeks to distinguishes the > gout. It's to bad however that my white blood count was going up until i got > my BMT, but at least it "cured the gout". > > From then on no more gout but every once in a while it's ugly head "craps"😖 > up on me if i eat anything containing purines like red meat, mushrooms etc > which is my favorite especially smothered in mushrooms. Now there is more... > Once i received my BMT and my Kidney transplant i had to be put on Prednisone > which will eliminate with in 30 minutes or so even when you have an active > attack. > > I have been taking Allopurinal for over 30 years and Prednisone for the last > 7 years. Yes i have no gout or very little gout for all of there years, > however there is both good and bad... I have already described the good but > the bad is that it increased my blood sugar level... > > Jeanie, i am not a doctor but to answer your question, yes i would go see a > doctor because it is you that should have your questions answered. And maybe > i am wrong about the gout, who knows, but something to talk about with your > doctor? > > Okay now Jeanie i have to answer a comment that you made. It is a really good > to hear that you began your post to me. I even copied and pasted it "Thanks > Sweetheart" i liked that and thought it was cute and i am passing this onto > you 🌷 > > By the way as you probably know that i live in Florida, in West Palm Beach in > a town called Boynton Beach right near the Florida Turnpike. Where do you > live? > > You have a great day. > > 18's, > > Marty > >> On Sun, Feb 18, 2018 at 7:51 AM, 'Jeanie' via CMLHope >> <[email protected]> wrote: >> Thanks Sweetheart >> Those were beautiful. You always brighten our day. >> I have been in so much pain lately and don't know if I should go to a dr or >> not. It started in my little right finger and then creeped on up my arm. >> Now my heel and sometimes ankles are killing me. The pain usually wakes me >> up nightly. I get up and massage it good. Do any of my warriors suggest >> another dr? >> Anyway I loved the video and appreciation day is a wonderful idea. My blood >> work show no leukemia. My pain is probably old age and the answer more >> pills. Do any of you have this. It clears up during the day most of the >> time. >> My new dr seems to be kk. I haven't met with her that much yet. I guess the >> next step would be to try and get off pills. There are trials for that. >> Have a wonderful day everyone. >> Love you so very much >> Jeanie from Fl >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extramine >> 0 CBL. ABL >> >>> On Feb 16, 2018, at 11:36 AM, Marty Gartenberg <[email protected]> wrote: >>> >>> So that you know my annual appreciation day could be on any day and could >>> happen on any other day. It was set on my actual birthday May 21st which >>> is also on the day of my bone marrow transplant. >>> >>> So just to let you know how much all of you mean to me i am including this >>> to every one of you. >>> Please turn the volume up, sit back and relax, and enjoy this. I sincerely >>> hope that it will put everything in prospective to you. >>> >>> 18's, >>> >>> Marty >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> <AbsolutelyFantasticSlideshow.pps> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
