Jeanie,
You asked if I had been hurting. I have had a few gallbladder attacks which
only lasted a couple hours and I did have pain from time to time with my hiatal
hernia which I had for years. But the last gallbladder attack didn’t go away
and I had to go to the ER. That’s when they did a CAT scan and found that my
hiatal hernia was twisted which requires surgery to correct before it twists
enough to block blood flow. So I really didn’t have much of a choice. I am so
glad that it is all behind me now. I have quit taking the tamoxiphen which
caused the blood clots but I don’t know how long that remains in my body. Just
trusting in God to take care of me at this point.
I sure wish you could get rid of that pain you have been living with for so
long.
I do have a cancer center. I go to the Siteman Cancer Center in St Louis, MO.
I have been very happy with them so I understand when you say it is hard to
change doctors when you have to, especially if you liked the previous ones.
My husband goes twice a year to see Dr Talpaz at the University of Michigan
Cancer Center. That is quite an expense but he has saved his life at least
twice. We have no CML specialists in our area.
God bless and keep you!
Joyce in Southern Illinois
> On Feb 22, 2018, at 6:12 AM, 'Jeanie' via CMLHope <cmlhope@googlegroups.com>
> wrote:
>
> Oh no Joyce,
> I am so sorry. Had you been hurting? I have been in pain now for a long time
> and many years later they have found nothing. I think I'm scared because many
> years ago my brother who was in his late 50s went in for exploratory surgery
> and they found a tumors cancer. He died not long after.
> When I went in the hospital in May they still did test but found nothing.
> The nurse would come in the evening and give me a shot in tummy. She said it
> was to keep blood from clotting. And you got clots anyway.
> That was a lot of surgery for one time. You sure are strong. So happy for
> you.
> Do you go to a cancer center? I've been thinking about changing since my dr
> retired. It's hard to change when you've been with someone so long.
> They gave me morphine in my Iv tube every 4 hours. It helped some but
> nothing has really taken this pain away.
> When they took my gall bladder out years ago the dr said my appendix was
> setting right on top of everything so he took it out too. All this happened
> when I was in late 40s. My dad has his out too at that age. I think it's
> amazing how our bodies have some of the same traits as our parents. My mom
> died at 87 but I don't think I'll make it as she never had any deadly
> diseases.
> More later____
>
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extramine
> 0 CBL. ABL
>
> On Feb 18, 2018, at 10:38 PM, bkbarney via CMLHope <cmlhope@googlegroups.com
> <mailto:cmlhope@googlegroups.com>> wrote:
>
>> Dear Joyce, Oh my gosh!!! You have been through so much!! You are amazing! .
>> I am so glad you came through your surgery and complications and get to be
>> back home with your hubbie...glad that your daughters were able to help out
>> as well!! Glad you are back here...take good care and keep on healing!!!!
>> 18s and care,
>> Beth
>>
>>
>> -----Original Message-----
>> From: Joyce Mesnarich <joy...@htc.net <mailto:joy...@htc.net>>
>> To: cmlhope <cmlhope@googlegroups.com <mailto:cmlhope@googlegroups.com>>
>> Sent: Fri, Feb 16, 2018 11:09 pm
>> Subject: Re: [CMLHope] My annual appreciation day
>>
>> Beautiful slideshow, Marty. Thank you.
>> Have not been on this site for 3 weeks. Went to ER with gallbladder attack
>> and they did a CAT scan and noticed that my old hiatal hernia that has been
>> bugging me for some 20 years had twisted, and evidently that is a very bad
>> thing, because they put me in an ambulance and sent me from our local
>> hospital to BarnesJewish in St Louis and said I would have emergency surgery
>> as soon as I got there. That didn’t happen but I was in the hospital for 3
>> days as they did test upon test. I went home for 3 days and had surgery on
>> Monday the next week. Had gallbladder removed and hiatal hernia was
>> repaired. I was doing very well and planned to go home on Wednesday when my
>> oxygen levels went down. Long story short: I had blood clots in both lungs
>> and one in my right calf. Was in hospital for 8 days and came home using
>> belly shots of Lovenox to bridge to warfarin. Am doing better and gaining
>> strength. Had to eat pureed food for 2 weeks. Now on soft diet. It was a
>> trying time because I am the caregiver for my husband who has CML and is
>> also legally blind. But we pulled through with the help of our two
>> daughters. I’ll have to get caught up on what went on while I was out of
>> commission.
>> Joyce in Southern Illinois
>>
>>
>> > On Feb 16, 2018, at 10:36 AM, Marty Gartenberg <wa2...@gmail.com
>> > <mailto:wa2...@gmail.com>> wrote:
>> >
>> > <AbsolutelyFantasticSlideshow.pps>
>>
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