Hi sweet Beth So glad to hear from you and get our uplifts we so badly need. I sprained my muscle in the top part of my right leg and it really hurt. Then my bones a muscles started to wake me up at night. I get up and massage them. I was wondering if you are under a doctors care for the muscles and what they told you to do for pain and all. I take Ponatinib and have for 3 years this Jan. I limped for about a week but it's gradually getting better I don't think I could work but I am 80 years young in May. Looking forward to your advice. I still walk and do some house work and gardening. Love you so very much. Jeanie My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL
> On Mar 10, 2018, at 8:41 PM, bkbarney via CMLHope <[email protected]> > wrote: > > Dear Marty, Jeanie, Greenie, Susan, SuzieQ, Richard, Kristen and everyone > else who am forgetting because of my chemo brain. I am here, think about > everyone often...had a bad flu season...really starting to feel better only > now....Wow17 years for both Kristen and Jeanie!! Congrats...I just hit 8 > years on February 12th....Time marches on..so glad to be here with all of > you... > > My latest blood work came back undetectable...so I was very happy to see > that....still navigating the severe muscle fatigue, deterioration issues, and > some heart sprycel related stuff..but I am truly blessed to be here...and to > still be able to work.... > > love to all of you out there.....the glass is half full in Chicago! > > 18's > Beth > > > -----Original Message----- > From: 'Susan Zimmerman' via CMLHope <[email protected]> > To: wa2yyx <[email protected]>; cmlhope <[email protected]> > Sent: Sat, Mar 10, 2018 4:18 pm > Subject: Re: [CMLHope] Digest for [email protected] - 1 update in 1 > topic > > For me it's been 13 years..... > 18's, > Susan F. Zimmerman > On Saturday, March 10, 2018 Marty Gartenberg <[email protected]> wrote: > Hi Jeanie, > > Wow 17 years! Good for you as well. My congratulates to you. Hey are you > catching up with me? 30 years for me. > Time fly's by when your riding on the Marquis Express. Okay now lets all sing > along all of you people out > there...`\uD83D\uDE4E\uD83D\uDE46\uD83D\uDC81\uD83D\uDE4B\uD83D\uDE47\uD83D\uDE4C\uD83D\uDEB6\uD83C\uDFC3\uD83D\uDC83\uD83D\uDC6B\uD83D\uDC6C\uD83D\uDC6D\uD83D\uDC8F\uD83D\uDC91\uD83D\uDC6A > > 18's, > > Marty > > On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope > <[email protected]> wrote: > I am celebrating 17 years also. I'm on my 4 tki: Ponatinib. Been a rough > ride. How bout you! > > My Motto: > Faith and Pills > With Love > \uD83D\uDC2018's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 > New Doctor--Dr Martine Extramine > 0 CBL. ABL > > On Mar 10, 2018, at 2:10 PM, Kristin Lieberman <[email protected]> > wrote: > > I’m here. Celebrating my 17th year as a CML survivor! > > Kristin > > Sent from my iPhone > > On Mar 10, 2018, at 2:11 AM, [email protected] wrote: > > [email protected] Google Groups > Topic digest > View all topics > Hello - 1 Update > Hello > Marty Gartenberg <[email protected]>: Mar 09 04:12PM -0500 > > Hello, hello... Is anyone out there? > > 18's, > > Marty > Back to top > You received this digest because you're subscribed to updates for this group. > You can change your settings on the group membership page. > To unsubscribe from this group and stop receiving emails from it send an > email to [email protected]. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
