Hi all
Can anyone give me their experience with thyroid problems?   I’ve been in pill 
since mid July but can’t tell much difference.  
Thanks 

My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Jul 31, 2018, at 9:55 AM, Marty Gartenberg <wa2...@gmail.com> wrote:
> 
> https://www.verywellhealth.com/the-lowdown-on-unani-medicine-90032
> 
> https://www.tandfonline.com/doi/abs/10.3109/10428194.2014.982639
> 
> Hi Ragavan, I'm glad that your feeling better, and as I have already 
> explained to you that you are not imagining this because your mind KNOWS when 
> you are felling better as well as when your feeling worse. And I am sure that 
> you already know this.
> 
> Now I have included a couple of links that give you some information and I 
> want you to thoroughly read and understand about the side effects. You have 
> to remember that your not so much dealing with arthritis or cataracts but 
> with CML for the most part. 
> 
> When I try to help someone I may sit up until early in the morning trying to 
> understand more about the subjects I am looking for. In your case I want to 
> make sure that you know the best ways to help yourself try to help yourself. 
> Yes I know that I am not a doctor nor are you. There are doctors out there 
> that sometimes also have to learn new things, and as my father told me about 
> learning new things every day. So just let me repeat this once again: 
> 
> When someone learns something new every day then they become smarter. When 
> they refuse or or not willing then they revert back to yesterday.
> 
> Raganvan that includes you, me and all of the doctors in the world.
> 
> 18's,
> 
> Marty
> 
>> On Tue, Jul 31, 2018 at 1:32 AM, Gopalsamy Ragavan <graga...@gmail.com> 
>> wrote:
>> Dear Marty,
>> 
>> Thanks for the long caring reply. :)
>> 
>> I am from Chennai, India and part of this group from 2012. Somehow I ended 
>> up as silent observer. I think I was wrong to be so.
>> 
>> I was diagnosed at the age of 37.
>> I started with Imatinib 400mg per day in 2012.
>> In 2015, after F359V mutation, switched to Sprycel.
>> Initially dosage was very high. That brought down platelet count 
>> drastically. So the dosage was slowly reduced to check the suitable amount.
>> 50mg was working fine. But BCR-ABL wasn't very good. So it was decided to 
>> check with 70mg per day. Everything is fine including BCR-ABL.
>> The only problem is breathing difficulty.
>> 
>> For the last four days, I am taking Indian Herbal medication (Siddha) to 
>> reduce the water retention in the body. Siddha medicines are usually made of 
>> herbs and the side effects are almost NIL. I see some improvements in face, 
>> especially while getting up in the morning. The puffiness under the eyes are 
>> reducing. Somehow today I find breathing is better compared to yesterday. 
>> Hope these are all not illusions. :)
>> 
>> I am checking for the appointment with doctor.
>> 
>> I was wondering whether anybody faced the same problem and mailed to this 
>> group. The wonderful responses are really lovely. :) 
>> 
>> I will keep you all updated on the progress.
>> 
>> thanks,
>> Ragavan 
>> 
>> 
>>> On Sat, Jul 28, 2018 at 10:49 PM, Marty Gartenberg <wa2...@gmail.com> wrote:
>>> Hi Ragavan, I see that your probably new here because I have not seen your 
>>> name before. Please correct me if I am mistaken. 
>>> 
>>> First my name is Marty and I would like to take this opportunity to welcome 
>>> you here with us. You will find that we are usually an ordinary bunch of 
>>> caring and helpful people that like to learn from each other. What I call 
>>> this "club" is the club that no one wants to join or be a member of. And so 
>>> be this. However, since everyone here is an equal member and partner 
>>> then,,, Well we are stuck with each other. And believe it or not this is 
>>> really a good club to learn as well as teach yourself and at the same time 
>>> to teach others as well. We are unique group of people because we all share 
>>> something with one and other, and that is CML. 
>>> 
>>> So what can I say about us and you as well? We all share the goal of 
>>> working together and keep on living and enjoying life. And now you know 
>>> that because of so many advancements in how we are treated as well as in 
>>> the future, then things will get better and better.
>>> 
>>> I had CML CML well over thirty years ago and let me tell you that I really 
>>> suffered not knowing if I would die or would live on for a very short 
>>> period of time. Now it is 2018 soon to be, within five months 2019. And in 
>>> spite of everything that we are still living subjects of GOD.
>>> 
>>> Thirty years ago I had no other choice but you do now. I'm sure that you 
>>> have heard, take it one day at a time. Truer words have never been spoken.
>>> 
>>> Now if you don't know anything or everything about CML then please read 
>>> what I am sending you. All that you have to do is sit down and read it. You 
>>> will see about some of the side effects concerning Sprycel one which will 
>>> be about your lungs, and it will say this is a "normal" thing that happens 
>>> to a lot of people. Now how does anyone try to explain what "normal" means? 
>>> I don't know but considering that we are all different from each other so 
>>> maybe normal has different meanings for different people.
>>> 
>>> IMPORTANT FACTS ABOUT SPRYCEL Most common side effects Side effects of 
>>> SPRYCEL that are considered common in adults.
>>> 
>>> Be sure to read all about this and as I previously stated... Take one day 
>>> at a time.
>>> 
>>> I will leave you with something that my father once taught me a very long 
>>> time ago, and  a symbol of life... He said to me that if you take the time 
>>> to learn something new every day then you will become smarter, but if you 
>>> do not want or refuse to learn something new every day then you will revert 
>>> to going back to yesterday.
>>> 
>>> 18's. = life
>>> 
>>> Marty
>>> 
>>>> On Sat, Jul 28, 2018 at 9:26 AM, Gopalsamy Ragavan <graga...@gmail.com> 
>>>> wrote:
>>>> I was taking 50mg Dasatinib per day. An year back it was increased to 
>>>> 75mg. For the last few months breathing difficulty is keep increasing. I 
>>>> am not able to take full breath. It is always half breath. I will discuss 
>>>> with my doctor in the coming visit.
>>>> 
>>>> Did anybody else face the same problem? How did you handle? Please help.
>>>> 
>>>> thanks,
>>>> Ragavan
>>>> 
>>>> 
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