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Dave Hartley
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[You fail, you die]
The Telegraph (UK)
ISSUE 1760Monday 20 March 2000
Insurers to DNA test for genetic illnesses
By Marie Woolf, Political Correspondent


MINISTERS are to allow insurance companies to use genetic testing to
assess a person's risk of inheriting serious illness. People with a
genetic tendency to chronic conditions will face significantly higher
premiums for medical, life and travel insurance.
In the past, ministers have considered banning genetic testing because
of fears that it would create an under-class unable to obtain insurance
cover. But after a consultation completed last week, the Government is
to sanction a series of reliable genetic tests that insurance firms can
use.
It plans to allow the companies to use single gene tests, which show
whether a person with a family history of an illness such as
Huntington's disease - jerky, involuntary movements accompanied by
progressive dementia - is likely to develop it later in life.
Worried consumer and civil liberties groups say that sections of society
with serious medical complaints may be left without cover. Anna Bradley,
director of the National Consumer Council, said: "We would be very
concerned about measures that could stop people getting insurance."
Dr Evan Harris, Liberal Democrat MP for Oxford West and Abingdon, said
that genetic testing should be carried out for medical purposes only.
"By allowing insurers to test for even single gene disorders you are
going to get a genetic under-class. There will be enormous public
opposition to this. People should not take these tests without adequate
counselling."
The Department of Health has set up a genetics and insurance committee
of experts to monitor and regulate insurers' use of genetic tests and to
agree on a series of tests that can accurately predict a
life-threatening illness. The committee will regulate which laboratories
are allowed to carry out the tests.
Government advisers feared that unless testing was permitted, insurers
would carry out the tests with no regulation. The new policy will start
by September when up to seven tests will be presented to the experts for
Government approval.
Insurers believe that within five years, as technology develops, genetic
tests will be widespread and could cover such inherited illnesses as
breast cancer, cystic fibrosis, Alzheimer's and sickle cell disease.
They say that the use of tests could help people with a family history
of a disease gain lower premiums because they will be able to rule out
the prospect of developing the disease.
The Association of British Insurers said: "Because genetic testing is in
its infancy, the number of people who could take such a test is small.
But the numbers could well be more of an issue in the future, in five
years or less."
Under the plans, insurers will not have the power to force people to
take genetic tests. But they will be able to ask those with a family
history of a disease to take one. They will also have the right to ask
whether people have taken a genetic test and to demand to see the
results.
A spokesman for the Department of Health said: "The genetics and
insurance committee has been set up to receive applications to
demonstrate the validity of tests, but the industry will have to prove
that such tests are reliable. If the insurance company thinks you have a
genetic condition, it can load a policy."
Insurance premiums are traditionally weighted according to risk. Smokers
and people with a history of chronic illness pay more. A positive test
for a life-threatening illness could increase premiums five-fold.
About four per cent of people applying for life assurance have to pay
between 50 per cent and five times more than ordinary applicants. Around
one per cent are not accepted because the risks are considered too high.

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