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From: <[EMAIL PROTECTED]>
To: <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>
Subject: TUK Physicians Told Not To Tell Patients Of Possible CJD Blood Concerns
Date: Saturday, November 25, 2000 1:46 PM

TUK Physicians Told Not To Tell Patients Of Possible CJD Blood Concerns
 By Louella Houldcroft
http://www.the-journal.co.uk/cfm/news_story.cfm?storyId=216024
11-24-00

        Doctors were advised to not tell patients that blood products used in
transfusions were feared to have been taken from a donor infected with CJD.
 A leaked memo sent to haemophilia centres by a laboratory supplying blood
products orders the recall of the products because a donor was found "not to
have met the current health requirements for CJD", the human form of mad cow
disease.

The memo from the Bio Products Laboratory, in Hertfordshire, acting on the
advice of the Lothian Ethical Committee, recommended to doctors that
"Recipients (patients) should not be informed that the product that they have
received has been recalled for this reason".

Haemophiliacs in the North-East already infected with HIV and Hepatitis C
last night said they were "furious" about the revelation.

Since the memo was written in 1997, seven of the 85 British victims of CJD
have since been identified as donors before they showed obvious symptoms of
the disease.

A spokesperson for Haemophilia North, herself a partner of a co-infected
haemophiliac, said: "The haemophilia population is just sick of this. These
people already have up to four viruses in their bodies through treatment that
has been given to them on the NHS - now we discover there is a risk of a
fifth.

"How can we ever believe what we are being told?"

The letter, faxed to all haemophilia centres including the North-East branch
at the Royal Victoria Infirmary, states that "BPL have initiated a recall of
the following product."

It continues: "Subsequent to donation, the donor was found not to have met
the current health requirements for CJD.

"The advice from the Lothian Ethical Committee is that the recipients
(patients) should not be informed the product they have received has been
recalled for this reason."

Jane Martin, sales and marketing director for BPL, said this was only meant
as guidance for the doctors.

"Ultimately, it was the individual doctor's decision whether or not to
disclose the information to the patients," she said.

"The recall was done very quickly and efficiently as soon as a risk was
perceived.

"I can understand the situation from the haemophiliacs' point of view but
hindsight is a wonderful thing and at the time we were acting on what was
considered to be the best advice."

Yesterday it was revealed the NHS was considering banning anyone who has
received blood transfusions from giving blood themselves amid rising concerns
that they may knowingly pass on the fatal human variant of BSE.

Such a move could cut Britain's 1.9 million volunteer donors by up to 10pc
and create such huge shortages that transfusion services would struggle to
meet demand.

A spokesman for the Department of Health said: "The whole issue of
cleanliness of blood is under review.

"The eligibility of patients who have received blood transfusions is just
part of that."

One of the main criticisms to come out of the recent BSE inquiry was that
information was kept from the public in a bid to prevent "mass panic".

Dr Peter Hamilton, haemophilia centre director at Newcastle's Royal Victoria
Infirmary, said: "It seems to me that perhaps they should not have made this
recommendation. It is our view patients should be told everything relating to
their treatment and how it may affect them."


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