Let's do that. Can we add the details here
https://hackmd.io/@thejeshgn/BybQFVY7w/edit As of now it's publicly editable. May be once we reach some level, I can make it public comment's only, to keep spam away. Regards, Thej Thejesh GN ⏚ ತೇಜೇಶ್ ಜಿ.ಎನ್ http://thejeshgn.com On Sun, 30 Aug, 2020, 12:58 PM Sarabjeet Matharu, < sarabjeet.mathar...@gmail.com> wrote: > To capture experiences of patients and their families with COVID, we could > create a simple questionnaire that can be rolled out digitally to those who > would want to participate. > > We can create stories that document their experiences which can be > subsequently published online. I'll be happy to put together a basic > questionnaire which we can discuss and deploy. > > In case there are members who would be interested in taking this up, > please let me know and we can collaborate on a separate thread (so we dont > spam the whole group). > > Regards, > Sarabjeet > > On Sun, Aug 30, 2020 at 11:01 AM soumalya ray <drsouma...@gmail.com> > wrote: > >> Sharing some comments in-line. >> >> On Sunday, August 23, 2020 at 12:53:08 PM UTC+5:30 sarabjeet wrote: >> >>> There has been a complete breakdown in how daily life has progressed >>> during this time and the fragility of our social systems, administration >>> has come out in stark contrast. >>> >> >> not only that, regular health service delivery (including antenatal care, >> immunisation, DOTS under RNTCP) was affected as well, the extent of which >> is unclear. if data could be collected on this, it'd really be helpful. >> >> On Mon, Aug 17, 2020 at 9:52 AM Nikhil VJ wrote: >>> >>>> Hi, >>>> Additionally, I'd also really like to see data collection from Covid-19 >>>> survivors. Particularly, what helped in their case, in whatever level of >>>> detail they want to share. >>>> >>> >> availability of such data will really be helpful; but for being >> meaningful, this should contain some bio-chemical and genetic >> characteristics as well. >> >> >>> >>>> There has been too much dirtying of the waters by official orgs. >>>> >>> >> i do not understand this. could you explain this please? >> >> >>> WHO is, I'm very sorry, not the most reliable source. >>>> >>> >> why? >> >> >>> The unipolar credibility worldview that has been adopted by us has >>>> been to our collective detriment. >>>> >>> did not understand even a little bit. >> >> >>> Whether lockdowns worked at all or not is under question because places >>>> that didn't impose strict lockdowns like Sweden, Japan, South Dakota >>>> haven't turned into giant body-piles (and no, I will not accept an A-to-B >>>> numbers comparison - the rationale for lockdowns was that if not, we will >>>> have mass die-offs. >>>> >>> >> accepting this is of course your choice. however, sweden has a higher >> mortality rate compared to adjacent countries. >> link: https://www.bbc.com/news/av/world-europe-52757471 >> of course, the interesting thing is that among elderlies, many died >> outside ICU set up rather than being admitted. role of predicted >> probability of survival cant be ruled out completely. so, the doctors were >> forced to play a role of judge as well. >> link: >> https://academic.oup.com/cid/advance-article/doi/10.1093/cid/ciaa864/5866094 >> instead of lockdown, sweden has followed a different form of social >> distancing - self isolation. In case of Japan, as well, it was hypothesised >> that their habit of wearing masks and maintaining personal hygiene might >> have played a role initially. however, in recent past, Japan is also >> showing an increase in case. >> i was not aware about south dakota. need to have a look in this. thanks >> for pointing out this. >> >> So I will evaluate the effectiveness of lockdowns only on whether the >>>> non-lockdown place has bodies piling up or not as originally claimed. >>>> >>> >> it sounds very harsh as a measurement indicator for lockdown. lockdown is >> one of the component of social distancing. it might be draconian; but, is >> it not needed for our population. even after this draconian measure was >> applied, how many people actually stayed inside? that needs to be taken >> into consideration as well for measuring it's success. >> we should understand lockdown, one of the social distancing measure, was >> a preemptive measure. it was taken when much was not known about the >> patho-physiology of the virus. while measuring the success or failure of >> lockdown, we should consider a lot of what-if questions. if the disease >> actually had a case fatality rate of 5%, do we have so many hospital beds >> then? >> during the lockdown, have we increased our hospital beds? have we >> converted trains into isolation beds? have we invested the time into >> capacity building measures? >> to quote Amos ELon - "Hindsight is not necessarily the best guide to >> understanding what really happened. The past is often as distorted by >> hindsight as it is clarified by it." >> >> >>> Anything else - doesn't justify forced lockdowns that we knew going in >>>> will kill a lot of people too and irreparably push entire generations into >>>> poverty and leave a lot more people without the resources to protect >>>> themselves from the disease). Hospitals and agencies that have been given >>>> incentives to report as many Covid-19 cases and deaths as possible, have, >>>> predictably and unfortunately, done what were incentivised to do. >>>> >>> >> i am completely unaware of any incentive scheme launched by Government of >> India for reporting covid-19 cases/deaths. could you kindly share some more >> lights on it? >> >> >>> I would frankly trust authorities more when they earn my trust than >>>> when they dictate it. >>>> >>>> reasonable argument. >> >> On Sun, 16 Aug, 2020, 2:19 PM Thejesh GN wrote: >>>>>> >>>>>>> Dear All, >>>>>>> >>>>>>> 49k+ people are dead due to COVID19 in India, no one knows who they >>>>>>> are. In a year we will forget their stories and it will be just one >>>>>>> single >>>>>>> number. I was wondering if we can collect >>>>>>> >>>>>>> >>>>>>> Date of death >>>>>>> State >>>>>>> District >>>>>>> Gender >>>>>>> Age >>>>>>> Name (not sure of this, due to privacy. We can discuss) >>>>>>> Reference link >>>>>>> >>>>>>> - So that we have enough data to analyse >>>>>>> - They are recorded publicly just like deaths of soldiers in war or >>>>>>> attacks >>>>>>> >>>>>>> >>>>>>> Deaths and births are usually public documents. But i don't see >>>>>>> MoHFW publishing this data. Do you have any idea how to go about? >>>>>>> >>>>>> >> ICMR has initiated the process of preparing a National Clinical Registry >> for C0vid-19. Although, i am not sure if this will be available in the >> public domain. >> link: https://twitter.com/ICMRDELHI/status/1291568848475262976 >> >> regarding your suggestion about inclusion of name, that should not be >> done. in my experience, stigma is far more in this compared to any other >> diseases, even HIV. >> >> regards, >> soumalya ray >> >> >> -- >> Datameet is a community of Data Science enthusiasts in India. Know more >> about us by visiting http://datameet.org >> --- >> You received this message because you are subscribed to the Google Groups >> "datameet" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to datameet+unsubscr...@googlegroups.com. >> To view this discussion on the web visit >> https://groups.google.com/d/msgid/datameet/2ea347e6-26f2-4d12-8452-355a86009181n%40googlegroups.com >> <https://groups.google.com/d/msgid/datameet/2ea347e6-26f2-4d12-8452-355a86009181n%40googlegroups.com?utm_medium=email&utm_source=footer> >> . >> > -- > Datameet is a community of Data Science enthusiasts in India. 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