Manusia Akar Gegerkan Dunia

KOTA, WARTA KOTA - Dede si 'Manusia Akar' asal Cililin Kabupaten
Bandung, Jawa Barat, mengundang perhatian dunia. Sebuah lembaga di AS
dan Inggris dikabarkan berminat mengobati Dede di negara mereka. Dokter
asal Amerika Serikat, Anthony Gaspari, mengatakan pihaknya berminat
untuk  membawa Dede ke negerinya. Yang diperlukan oleh dia adalah
kemudahan perizinan seperti paspor, visa, dsb.

Namun Kepala Pusat Komunikasi Publik Departemen Kesehatan (Depkes), Lily
Sriwahyuni Sulistiyowati, mengatakan Depkes tidak akan memberi izin
kepada pihak mana pun yang akan membawa Dede ka luar negeri. Pasalnya,
penyakit Dede adalah spesimen penyakit yang memang perlu diteliti oleh
ahli kesehatan Indonesia.

"Kami jelas tidak akan memberikan izin kepada mereka (ahli medis AS)
untuk membawa Dede ke AS. Lagipula orang seperti Dede yang tinggal di
kampung tentunya tidak akan mau dibawa apalagi diambil sampel darahnya.
Biasanya orang kampung tidak sembarangan memberikan izin memberikan
pengetesan darah kepada orang asing," imbuh Lily.

Lily menegaskan, sebelum munculnya pemberitaan tentang Dede, ada
sejumlah ahli medis asing yang ingin menemui Dede guna melakukan
penelitian. Tapi pihak Depkes tidak memberikan izin. "Kami akan kirim
tim Litbang Depkes untuk memeriksa atau mengambil sampel darah Dede
untuk mengetahui penyakit apa yang diderita Dede," ucapnya.

Menurut Lily secepatnya sebuah tim Depkes akan menemui Dede dan
memeriksa darahnya. "Tapi untuk melakukan itu kan perlu waktu dan kalau
diceritakan pastinya akan panjang," jelas Lily yang dihubungi Warta Kota
via ponselnya, Senin (19/11) malam. Saat ini Lily mengaku sedang berada
di Denpasar untuk suatu keperluan kerja.

Lily mengatakan untuk mengetahui penyakit yang diderita Dede tentunya
membutuhkan waktu dan langkah medis yang sungguh-sungguh. Saat ini yang
dilakukan Depkes adalah mengumpulkan  medical record Dede. Antara lain,
kata Lily, Dede pernah menjalani perawatan di RS Hasan Sadikin, Bandung.
Karena itu, Lily sedang mencari tahu penyebab sakitnya Dede, jenis
darah, dan penyakit apa saja yang pernah diderita Dede.

Di tepi Saguling

Hanny Purwanto, pemilik Hanny Enterprise yang pernah membawa Dede ke
panggung pertunjukkan di Bandung dan Taman Mini Indonesia Indah (TMII),
Jakarta, mengaku heran karena mendadak banyak orang yang memerhatikan
Dede. "Hari ini saya menerima telepon dari sejumlah televisi yang akan
mengunjungi Dede," katanya. Selain itu, ada belasan koran dan radio yang
menyampaikan keinginan yang sama.

Padahal, ketika Dede dia tampilkan di panggung baik di TMII maupun di
Gedung Dezon Bandung dalam acara Gempar yakni parade paranormal tak ada
pengunjung yang menaruh perhatian kepada Dede. "Paling meminta foto
bareng dengan dia, cuma itu saja," kata dia.

Menurut Hanny, Dede tinggal di daerah Cililin, Kabupaten Bandung.
"Kampung atau desanya saya lupa, tetapi di pinggir Saguling," katanya.
Dari Rajamandala, Kabupaten Bandung, tempat tinggal Dede bisa dicapai
dalam waktu satu jam. Dia tinggal di sebuah gubuk ditemani dua anaknya.
Dede sudah tidak beristri karena sang istri meninggalkannya. Penyakit
itu diderita Dede sejak belasan tahun lalu.

Di acara Gempar itu, kata Hanny, Dede bergabung dengan sembilan manusia
langka lainnya yakni Brajakeling, Brajadenta, Brajapati, Jangkung,
Genderuwo, Rosyid Monas, Nyi Jebleh, Trembilung, dan Dawala yang hadir
bersama pawangnya, Nyi Dewi. Pengunjung Gempar saat itu dapat berfoto
bersama bahkan bercakap-cakap dengan ke-10 manusia supralangka (istilah
Hanny) dan membawa fotonya sebagai cinderamata.

Dikontrak televisi

Beberapa bulan setelah acara Gempar, sebuah televisi dari London yakni
Fox London menghubungi Hanny. "Saat itu, Fox meminta izin saya untuk
membuat film yang akan ditayangkan Discovery Channel terkait
manusia-manusia supralangka ini. Saya akhirnya menghubungkan Dede dengan
Fox karena Dede memang tak mau bertemu mereka kecuali saya temani,"
katanya.

Saat ini, kata Hanny, Dede masih terikat kontrak dengan Fox dan kontrak
itu berakhir Januari 2008. "Jadi ada enam episode yang harus dijalani
Dede sesuai dengan kontraknya," kata Hanny.

Hanny mengaku kedekatannya dengan Dede berawal dari ketidaksengajaan.
Sedangkan ide menampilkan Dede di panggung pertunjukan berawal dari
sebuah pertemuan Hanny dengan teman-temannya. Di pertemuan itu, dia
bercerita soal kehidupan orang-orang yang mengalami kelainan seperti
Dede. "Mereka seperti sudah kehilangan semangat hidup," katanya.

Dengan niat mengembalikan semangat hidup, Hanny kemudian merancang acara
di mana orang-orang seperti Dede dapat tampil dengan bangga di depan
umum sebagai seorang entertainer. Pelan tapi pasti acara itu terwujud,
hingga mereka bukan saja kembali percaya diri dan menerima keadaannya
dengan ikhlas, tapi juga mampu menghasilkan uang untuk diri mereka
sendiri sebagai seorang entertainer. (get)


Sumber: Warta Kota

*****
TREE MAN
EXCLUSIVE Deep in wilds of Indonesia sits Dede, a man whose body is a
mass of gnarled root-like growths With his rootlike feet and gnarled
hands, he is known as "The Tree Man".

Living in a remote village in the wilderness of Indonesia, 36-year-old
father-of-two Dede has stunned medical experts.

Most of his body is covered in growths which have become so large and
thick they look like twisted tree roots growing out of his skin.

Dede says his worst fear is that the cruel disorder will kill him before
doctors have a chance to save him.

"I am scared that it will grow across my face and end up covering it all
up," the former construction worker says. "I'm so afraid I won't be able
to see, that I won't be able to eat."

Dede grew up in a tiny hamlet near Bandung, south of Jakarta, the
capital of the volcanic island of Java.

He enjoyed a completely normal childhood, but just after he turned 15 he
cut his knee in an accident on a building site.

The injury - not deemed to be at all serious at the time - was to change
his life forever.

Within weeks, a huge growth had emerged from inside his wound.

He says at first he was not unduly worried, believing it was a wart
which would eventually drop off.

But it didn't. And shortly afterwards, horrific welts started to spring
up all over his body.

"The first one was cut off in an operation, but that didn't stop it.
Instead it just grew back faster.

"Then it started on my foot, then my arms, then my other foot and then
on my head," says Dede.

By the time he had reached his early 20s, he could no longer hold a tool
and struggled to complete basic tasks. He was fired and has remained
unemployed since.

His wife also left him, leaving him to raise their two children, Entis,
now 18, and Entang, 16, on his own.

"I feel sad because my wife left me," says Dede. "And with my condition
I cannot look after my kids. I miss working very much. But unfortunately
I just can't do it."

Unable to work or earn a regular wage like his friends, Dede has been
crippled financially ever since the shocking condition first took over
his body.

And as a single father, he knows he is not only responsible for himself.

But just washing and getting dressed in the morning have become
virtually impossible for Dede.

He has been helped by his brother-in-law Imun, his parents and his close
friends, who club together to make sure Dede has enough money to feed
himself and his teenage kids each month.

But his support network of friends and family have provided him with
more than just money to survive.

Each morning, family members take turns to put his specially designed
trousers on over his sprawling feet and help him lift a fresh shirt over
his body.

Someone must be around if needs to go to the toilet.

Friends have even designed a huge stool so he can reach his food - but
even this has to be spoon-fed to him twice a day.

Only smoking - he gets through 30 a day - can be enjoyed on his own,
with a special cigarette holder.

Indonesian doctors tried to help him when he was younger with a series
of painful operations, but to no avail. "When I was in hospital I had
some of my growths burnt off and I was injected several times. I was
also given some pills.

"But everything kept growing back after the operations, like just three
weeks later. And they would grow back faster," he says.

Now medical experts in America say they may be able to help Dede by
producing a cure specifically for him.

Dr Anthony Gaspari, chairman of the Department of Dermatology at the
University of Maryland School of Medicine in the US, is fascinated by
Dede's condition.

"I was absolutely stunned," said Dr Gaspari. "I'd never seen anything
like this before.

"I've become really interested in his case because it's so absolutely
unusual. The growths he has are just something we don't encounter in
clinical medicine."

Dr Gaspari took samples of Dede's growths and has now been able to
diagnose his condition.

He believes Dede has an extremely rare genetic disorder which means his
immune system does not function properly.

This is why his body was never able to recover from the initial outbreak
of the growths, which are actually warts, caused by the human papilloma
virus (HPV). Dr Gaspari is now working on developing a unique cure for
him.

But Dede says: "I worry that this disease will be passed to my
children."

And despite previous disappointments, Dede is hopeful that this time
doctors can help him. "I'd love to be cured," he says poignantly. -MY
Shocking Story: Half Man Half Tree is on the Discovery Channel on
Thursday, November 15, 9pm.

WHAT IS IT?

There are more than 100 types of human papilloma virus - over 30 of
which are sexually transmitted. The virus directly attacks the skin and
causes warts, which can spread rapidly if touched. Normally the body's
immune system will fight them off although gels help kill the virus.
Dede's lack of treatment coupled with his poor immune system have
increased the severity of his condition.

sounce: www.sundaymirror.co.uk <http://www.sundaymirror.co.uk>

  [Dede]

Half man.. half tree....
Dede, now 35, baffled medical experts when warty "roots" began growing
out of his arms and feet after he cut his knee in a teenage accident.

  ['Tree Man' barred from treatment in U.S.]
Medical oddity: A Discovery Channel image shows Dede, dubbed "Tree Man",
sitting next to his daughter at their home in Cililin, Indonesia. The
warty growths are thought to be caused by an unchecked infection by
human papillomavirus or HPV. Image: AFP/Discovery Channel

An undated photo and made available yesterday by Discovery Channel shows
Anthony Gaspari (L), a dermatologist from the University of Maryland
examining Dede (R) dubbed "Tree Man" at his home in Cililin. An
Indonesian villager dubbed "Tree Man" for massive bark-like warts
growing on much of his body may be barred from travelling to the US to
receive treatment, a report said on November 20. Photo: AFP
http://thedailystar.net/story.php?nid=12417
<http://thedailystar.net/story.php?nid=12417>    

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