Lucy was doing better, getting over her IBD flare-up I thought; but I
tapered her down to 5 mg/day of pred yesterday (did 10 for a week, then 7.5 for
4 days, then 5 starting yesterday) and today she is worse-- some diarrhea with
some blood, less interest in food, and under 8 pounds for the first time.
I put her back on 10 mg pred today and cooked her something new (duck) which I
am now afraid will mess her up even more. I made another appointment (canceled
the last one) with the internist in Red Bank, 1.5 hours away, for next
Wednesday. I was going to try to take her tomorrow, but my mom has
convinced me thus far to wait and see if she gets better again from the pred and
not take her if she does. I don't know. I fear intestinal lymphoma. I feared it
when she first flared up 2 weeks ago, but then after 3 days on 10 mg/day of pred
and eating just turkey her diarrhea totally went away and she even got
constipated from lack of fiber, and I figured that was unlikely to happen with
lymphoma and more likely to be a flare-up of IBD. But now I don't know. She has
never needed to be on so much pred for more than a few days before, and she has
never lost so much weight (though she also has never been on an entirely protein
diet before either). If she does not have lymphoma, her IBD has gotten
much worse than it was. I am very depressed by this. If you can spare her
some good thoughts and prayers, I would appreciate it.
Thanks,
Michelle
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