Dear Colleagues:  As volunteer Chair of the E31 Technical Committee at ASTM, 
where the CCR standard was developed and is maintained, I'd be the first to 
wish that the CCR standard's components could be free for use.  The fact is 
that the committee membership fees ($75 a year), and the fees for the standard 
for non-members ($160 for all components, a one time fee with no recurring or 
royalty payments) are the only sources of funds that ASTM gets as recuperation 
of their costs.  

The CCR standard, like all standards from Standards Development Organizations, 
or SDOs, takes a lot of meetings and significant administrative support to get 
out the door.  The CCR standard was developed to ANSI accreditation standards, 
in an open and consensus building process, by an industry committee open to all 
willing to participate and pay $75 a year for the privilege.  This is a far 
more "open" process than many other standards organizations involved in health 
care IT today.

ASTM is one of the oldest SDOs in the world, developing standards for the 
avionics, petroleum, air quality, and hundreds of other industries.

Having said all this, there are other ways to develop standards that wouldn't 
require an industry-sponsored SDO. The government could issue its own 
standards, for example.  We could let Google set and publish the standard.  
This does not mean the standard would be "free," only that it would be 
subsidized by a single, controlling entity instead of being developed in the 
open.    Every approach has its benefits and disadvantages.  You get what you 
work for, errr, I mean pay for.

The CCR standard has been a "good deal" for the industry so far, in my humble 
opinion.  If there is significant interest in the industry in moving the CCR 
standard to another venue or SDO, then let's discuss how to do that.   But I 
think ASTM is doing a good job.

Very kind regards, dCK 


David C. Kibbe, MD MBA
Senior Advisor, American Academy of Family Physicians
Chair, ASTM International  E31Technical Committee on Healthcare Informatics
Principal, The Kibbe Group LLC 
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On Nov 23, 2009, at 1:43 PM, Michael Jahn wrote:

> Hi Jim,
> 
> It is perfectly normal to be confused. Many people are often confused by why 
> ISO 'sells' the specifications, especially when they are to be used without 
> needing to pay any licensing fee even when incorporated in a commercial 
> product.
> 
> As someone whom has been to many many CGATS, ANSI and ISO meetings, has paid 
> dues to associations and standards organizations, sat of commitees and sub 
> committees - I sure which I could get some of the fees they collect !
> 
> LOL
> 
> The fact is, Standards take a LOT of work to build. there are meetings, in 
> some cases international meetings, they are days long, that requires hotels 
> and airfare - and lots of minutes, drafts, powerpoints - wiki management - 
> that all costs money - ASTM, ISO - these orgs have full time employees and 
> have to bank roll all that.
> 
> having said that, when I contacted someone at Google Health directly, he 
> email me this link;
> 
> http://code.google.com/apis/health/docs/2.0/reference.html
> 
> So - I guess that's that.
> 
> If you were an Adobe LiveCycle user, I do have an .xsd file (CCR XML Schema 
> file) I could email you privately...
> 
> Send me a request to [email protected] and I will be happy to share it 
> with you.
> 
> 
> 
> Michael Jahn
> Jahn & Associates
> PDF Conversion Specialist
> 1824 North Garvin Avenue
> Simi Valley
> California 93065
> Office: (805) 527 8130
> Cell: (805) 217 6741
> Email: [email protected]
> Skype: michaelejahn
> Twitter: http://twitter.com/michaelejahn
> Blog: http://michaelejahn.blogspot.com/
> 
> 
> 
> 
> On Mon, Nov 23, 2009 at 1:05 PM, Jim Pharis <[email protected]> wrote:
> Completely confused me. Isn't CCR an open standard. How would an open source 
> project integrating with Google Health/MSHV that requires a schema definition 
> of what those free services offer work around this? Would have to essentially 
> write your own schema which would be based on a regirous spec so look almost 
> identical? 
> 
> On Mon, Nov 23, 2009 at 11:22 AM, Ken Miller <[email protected]> wrote:
> Yes, that's the full CCR schema. Please keep in mind that this is copyrighted 
> to  ASTM and its use in a real-world project requires an ASTM membership, 
> which is very reasonable ($75/yr, which covers an entire  organization). If 
> you would like to get a copy of the schema for testing and evaluation 
> purposes from ASTM directly, you can request it from Dan Smith at 
> [email protected].
>  
> Thanks,
>  
> -- 
> Ken Miller
> Solventus LLC
> www.solventus.com
> (305) 349 3493
> Sales & Support: (866) 891 0537 x703
> 
> 
> On Fri, Nov 20, 2009 at 9:31 PM, Reggie Pangilinan 
> <[email protected]> wrote:
> Hello Guys,
> 
> Isnt this the full CCR schema? 
> http://developer.healthvault.com/types/type.aspx?id=1e1ccbfc-a55d-4d91-8940-fa2fbf73c195
> 
> I would like to create an application that will be able to communicate/sync 
> records with both google health and ms healthvault, and i stumbled upon this 
> topic. 
> 
> I will be designing my database based on CCR schema. Am i on the right track?
> 
> Thanks,
> Reggie
>  
> 
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