Proib need to meet Yes a simple icd 9 code 335.7 I believe
We gave russ drafts of forms we would like to use that were created by a couple friends who do als that have been working w epic in wisconsin to standardize this But we have not revised the forms yet for what we want to do for gpc project I was waiting to have a conf call of the als docs at all sites to discuss this and have u and russ on phone I believe that call is being set up by either jen or abbie in our offices Russ can you send dan the forms jon and alex sent us Also laura send dan also the forms for saliva endpoint measure (the one we said we would use in project we sent to pcori. Two weeks ago) and cog screen form and the single question qol ......I think alsfrs and prob cog screen was in katz forms From: Dan Connolly Sent: Monday, January 20, 2014 10:47 AM To: Russ Waitman; Sarah Schlachter; Kieran Pemberton; Richard Barohn Cc: [email protected] <[email protected]> Subject: top data elements from ALS? Russ, Dr. Barohn, Can you update us on data needs from ALS? A sketch of an i2b2 query would be ideal, but whatever you have handy is great. What signal should we use to detect an ALS patient? Is it as simple as an ICD9 code? If you could only have a handful of other data elements, what would they be? p.s. Note the gpc-dev public archive<http://www.mail-archive.com/[email protected]/>; this is a public discussion forum. -- Dan
