FW: PCORnet: Draft Common Data Model 1.0

[Russ Waitman]

FYI

Look forward to GPC thoughts.  I'll also draft my thoughts this week and share 
with the GPC and in turn with PCORNet and in preparation for the March 30th in 
person meeting,

Russ


From: Dr Ed Hammond, Ph.D. [mailto:william.hamm...@duke.edu]
Sent: Wednesday, March 19, 2014 1:04 PM
To: 'Rosenbloom, Trent'; Jenny Ibarra; Lesley Curtis; 
'jeff_br...@harvardpilgrim.org'; 'Brie Purcell; Shelley Rusincovitch; 'Rachael 
Fleurence; 'sgre...@pcori.org'; 'sdaughe...@pcori.org'; 'swa...@pcori.org'; 
'snmur...@partners.org'; 'trent.rosenbl...@vanderbilt.edu'; 'dmee...@rand.org'; 
'campb...@unmc.edu'; 'michael.k...@ucdenver.edu'; 'wo...@email.chop.edu'; 
'hripc...@columbia.edu'; 'abel....@nmff.org'; 'pu...@ochin.org'; 
'tuf21...@temple.edu'; 's...@medicine.ucsf.edu'; 'keith.mars...@cchmc.org'; 
'kristen_an...@med.unc.edu'; 'mruesch...@partners.org'; 
'maryann.mcbur...@kpchr.org'; 'kenneth.bue...@asu.edu'; 
'kenneth.yo...@epi.usf.edu'; 'marc.nat...@childrens.harvard.edu'; 
'avsher...@partners.org'; 'paul_avill...@hms.harvard.edu'; 
'sulli...@mail.med.upenn.edu'; 'youn...@epi.usf.edu'; 'rtw...@mednet.ucla.edu'; 
'david.dickin...@arborresearch.org'; 'kwil...@rti.org'; 
'dixie.ba...@martin-blanck.com'; Maryan Zirkle; Shanbhag, Avinash (HHS/ONC; 
jcur...@uab.edu; JV Selby; Joanne Cochrane; rive...@ochin.org; Travis Crayton; 
Bauck, Alan; Durham, Mary, Ph.D.; Blake, Michelle A; Laws, Reesa; Day, Michele; 
christine.dy...@hhs.gov; rru...@rand.org; jessica_malenf...@harvardpilgrim.org; 
jessica_sturtev...@harvardpilgrim.org; rmil...@ochsner.org; Dorie Olson; 
Hripcsak, George M.; nger...@ghlf.org; mbr...@pcori.org; Borromeo, Charles; 
Beller, Marc; jeff.kl...@mgh.harvard.edu; Dori Bilik; Goel, Satyender (NU; 
rjesr...@rti.org; msulli...@lincolnpeak.com; bs...@lincolnpeak.com; Wehbe, 
Firas; rj...@lphi.org; kimberly.l...@channing.harvard.edu; Richard Platt 
<richard_pl...@harvard.edu> (richard_pl...@harvard.edu); 
chelsea_jen...@harvardpilgrim.org; 'matthew_gill...@hms.harvard.edu'; Robert 
Califf, M.D.
Cc: kenneth.ma...@childrens.harvard.edu; Rothman, Russell; 
lohnomach...@ucsd.edu; Russ Waitman; elizabeth.a.mcgl...@kp.org; 
akhurs...@lphi.org; forre...@email.chop.edu; rak2...@med.cornell.edu; 
tmaz...@cct.org; dev...@ohsu.edu; hes...@upmc.edu; mpletc...@epi.ucsf.edu; 
peter.margo...@cchmc.org; ryan_balfour_sar...@med.unc.edu; 
michael_kappel...@med.unc.edu; sginsb...@ghlf.org; 
sredli...@rics.bwh.harvard.edu; richard.a.mular...@kcphr.org; 
rmcbur...@acceleratedcure.org; rebecca.sutp...@epi.usf.edu; 
anierenb...@mgh.harvard.edu; Laura Schanberg, M.D.; feich...@partners.org; 
meganobo...@gmail.com; sulli...@mail.med.upenn.edu; pmer...@upenn.edu; 
ho...@parentprojectmd.org; bruce.robin...@arborresearch.org; jbue...@efa.org; 
ste...@geneticalliance.org
Subject: RE: PCORnet: Draft Common Data Model 1.0

There are other examples of all ready defined data elements in other groups.  
HL7 is one source of a set of data elements That I think we need to look at.  
In some cases these data elements are different in what is presented.  For 
example, HL7 has defined to types of gender:  administrative gender with value 
set of male, female, unknown and clinical gender which has a rich set of 
values.  The reason is that  at the demographic level collected with 
registration is unlikely to ever include clinical gender.  At a minimum, we 
need to be aware when we are different and why.  Then I think we need to make 
contact with other groups to try to get resolution and achieve a more global 
common data set.

From: Rosenbloom, Trent [mailto:trent.rosenbl...@vanderbilt.edu]
Sent: Wednesday, March 19, 2014 1:52 PM
To: Jenny Ibarra; Lesley Curtis; 'jeff_br...@harvardpilgrim.org'; 'Brie 
Purcell; Shelley Rusincovitch; 'Rachael Fleurence; 'sgre...@pcori.org'; 
'sdaughe...@pcori.org'; 'swa...@pcori.org'; 'snmur...@partners.org'; 
'trent.rosenbl...@vanderbilt.edu'; 'dmee...@rand.org'; 'campb...@unmc.edu'; 
'michael.k...@ucdenver.edu'; 'wo...@email.chop.edu'; 'hripc...@columbia.edu'; 
'abel....@nmff.org'; 'pu...@ochin.org'; 'tuf21...@temple.edu'; 
's...@medicine.ucsf.edu'; 'keith.mars...@cchmc.org'; 
'kristen_an...@med.unc.edu'; 'mruesch...@partners.org'; 
'maryann.mcbur...@kpchr.org'; 'kenneth.bue...@asu.edu'; 
'kenneth.yo...@epi.usf.edu'; 'marc.nat...@childrens.harvard.edu'; 
'avsher...@partners.org'; 'paul_avill...@hms.harvard.edu'; 
'sulli...@mail.med.upenn.edu'; 'youn...@epi.usf.edu'; 'rtw...@mednet.ucla.edu'; 
'david.dickin...@arborresearch.org'; 'kwil...@rti.org'; 
'dixie.ba...@martin-blanck.com'; Maryan Zirkle; Dr Ed Hammond, Ph.D.; Shanbhag, 
Avinash (HHS/ONC; jcur...@uab.edu<mailto:jcur...@uab.edu>; JV Selby; Joanne 
Cochrane; rive...@ochin.org<mailto:rive...@ochin.org>; Travis Crayton; Bauck, 
Alan; Durham, Mary, Ph.D.; Blake, Michelle A; Laws, Reesa; Day, Michele; 
christine.dy...@hhs.gov<mailto:christine.dy...@hhs.gov>; 
rru...@rand.org<mailto:rru...@rand.org>; 
jessica_malenf...@harvardpilgrim.org<mailto:jessica_malenf...@harvardpilgrim.org>;
 
jessica_sturtev...@harvardpilgrim.org<mailto:jessica_sturtev...@harvardpilgrim.org>;
 rmil...@ochsner.org<mailto:rmil...@ochsner.org>; Dorie Olson; Hripcsak, George 
M.; nger...@ghlf.org<mailto:nger...@ghlf.org>; 
mbr...@pcori.org<mailto:mbr...@pcori.org>; Borromeo, Charles; Beller, Marc; 
jeff.kl...@mgh.harvard.edu<mailto:jeff.kl...@mgh.harvard.edu>; Dori Bilik; 
Goel, Satyender (NU; rjesr...@rti.org<mailto:rjesr...@rti.org>; 
msulli...@lincolnpeak.com<mailto:msulli...@lincolnpeak.com>; 
bs...@lincolnpeak.com<mailto:bs...@lincolnpeak.com>; Wehbe, Firas; 
rj...@lphi.org<mailto:rj...@lphi.org>; 
kimberly.l...@channing.harvard.edu<mailto:kimberly.l...@channing.harvard.edu>; 
Richard Platt <richard_pl...@harvard.edu<mailto:richard_pl...@harvard.edu>> 
(richard_pl...@harvard.edu<mailto:richard_pl...@harvard.edu>); 
chelsea_jen...@harvardpilgrim.org<mailto:chelsea_jen...@harvardpilgrim.org>; 
'matthew_gill...@hms.harvard.edu'; Robert Califf, M.D.
Cc: 
kenneth.ma...@childrens.harvard.edu<mailto:kenneth.ma...@childrens.harvard.edu>;
 Rothman, Russell; lohnomach...@ucsd.edu<mailto:lohnomach...@ucsd.edu>; 
rwait...@kumc.edu<mailto:rwait...@kumc.edu>; 
elizabeth.a.mcgl...@kp.org<mailto:elizabeth.a.mcgl...@kp.org>; 
akhurs...@lphi.org<mailto:akhurs...@lphi.org>; 
forre...@email.chop.edu<mailto:forre...@email.chop.edu>; 
rak2...@med.cornell.edu<mailto:rak2...@med.cornell.edu>; 
tmaz...@cct.org<mailto:tmaz...@cct.org>; 
dev...@ohsu.edu<mailto:dev...@ohsu.edu>; 
hes...@upmc.edu<mailto:hes...@upmc.edu>; 
mpletc...@epi.ucsf.edu<mailto:mpletc...@epi.ucsf.edu>; 
peter.margo...@cchmc.org<mailto:peter.margo...@cchmc.org>; 
ryan_balfour_sar...@med.unc.edu<mailto:ryan_balfour_sar...@med.unc.edu>; 
michael_kappel...@med.unc.edu<mailto:michael_kappel...@med.unc.edu>; 
sginsb...@ghlf.org<mailto:sginsb...@ghlf.org>; 
sredli...@rics.bwh.harvard.edu<mailto:sredli...@rics.bwh.harvard.edu>; 
richard.a.mular...@kcphr.org<mailto:richard.a.mular...@kcphr.org>; 
rmcbur...@acceleratedcure.org<mailto:rmcbur...@acceleratedcure.org>; 
rebecca.sutp...@epi.usf.edu<mailto:rebecca.sutp...@epi.usf.edu>; 
anierenb...@mgh.harvard.edu<mailto:anierenb...@mgh.harvard.edu>; Laura 
Schanberg, M.D.; feich...@partners.org<mailto:feich...@partners.org>; 
meganobo...@gmail.com<mailto:meganobo...@gmail.com>; 
sulli...@mail.med.upenn.edu<mailto:sulli...@mail.med.upenn.edu>; 
pmer...@upenn.edu<mailto:pmer...@upenn.edu>; 
ho...@parentprojectmd.org<mailto:ho...@parentprojectmd.org>; 
bruce.robin...@arborresearch.org<mailto:bruce.robin...@arborresearch.org>; 
jbue...@efa.org<mailto:jbue...@efa.org>; 
ste...@geneticalliance.org<mailto:ste...@geneticalliance.org>
Subject: RE: PCORnet: Draft Common Data Model 1.0

Thank you.

These standards omit some very important work that the HL7 Pediatric Data SIG 
has done around necessary standard content for pediatrics. Namely:

Need to capture and standardize Birth time when available
Weight needs to be in KG/grams if it will support infants
Both length and height should use the same units, centimeters



S. Trent Rosenbloom, MD MPH
Vice Chair of Faculty Affairs & Associate Professor,
    Department of Biomedical Informatics
Director of Patient Engagement
Associate Professor, Internal Medicine and Pediatrics
Associate Professor, School of Nursing
Vanderbilt University Medical Center

Office: (615) 936-1541; fax (615) 936-5900
Eskind Biomedical Library
2209 Garland Avenue, Nashville 37232
trent.rosenbl...@vanderbilt.edu<mailto:trent.rosenbl...@vanderbilt.edu>
________________________________
From: Jenny Ibarra [jenny.iba...@duke.edu]
Sent: Wednesday, March 19, 2014 9:05 AM
To: Lesley Curtis; 'jeff_br...@harvardpilgrim.org'; 'Brie Purcell; Shelley 
Rusincovitch; 'Rachael Fleurence; 'sgre...@pcori.org'; 'sdaughe...@pcori.org'; 
'swa...@pcori.org'; 'snmur...@partners.org'; 'trent.rosenbl...@vanderbilt.edu'; 
'dmee...@rand.org'; 'campb...@unmc.edu'; 'michael.k...@ucdenver.edu'; 
'wo...@email.chop.edu'; 'hripc...@columbia.edu'; 'abel....@nmff.org'; 
'pu...@ochin.org'; 'tuf21...@temple.edu'; 's...@medicine.ucsf.edu'; 
'keith.mars...@cchmc.org'; 'kristen_an...@med.unc.edu'; 
'mruesch...@partners.org'; 'maryann.mcbur...@kpchr.org'; 
'kenneth.bue...@asu.edu'; 'kenneth.yo...@epi.usf.edu'; 
'marc.nat...@childrens.harvard.edu'; 'avsher...@partners.org'; 
'paul_avill...@hms.harvard.edu'; 'sulli...@mail.med.upenn.edu'; 
'youn...@epi.usf.edu'; 'rtw...@mednet.ucla.edu'; 
'david.dickin...@arborresearch.org'; 'kwil...@rti.org'; 
'dixie.ba...@martin-blanck.com'; Maryan Zirkle; Dr Ed Hammond, Ph.D.; Shanbhag, 
Avinash (HHS/ONC; jcur...@uab.edu<mailto:jcur...@uab.edu>; JV Selby; Joanne 
Cochrane; rive...@ochin.org<mailto:rive...@ochin.org>; Travis Crayton; Bauck, 
Alan; Durham, Mary, Ph.D.; Blake, Michelle A; Laws, Reesa; Day, Michele; 
christine.dy...@hhs.gov<mailto:christine.dy...@hhs.gov>; 
rru...@rand.org<mailto:rru...@rand.org>; 
jessica_malenf...@harvardpilgrim.org<mailto:jessica_malenf...@harvardpilgrim.org>;
 
jessica_sturtev...@harvardpilgrim.org<mailto:jessica_sturtev...@harvardpilgrim.org>;
 rmil...@ochsner.org<mailto:rmil...@ochsner.org>; Dorie Olson; Hripcsak, George 
M.; nger...@ghlf.org<mailto:nger...@ghlf.org>; 
mbr...@pcori.org<mailto:mbr...@pcori.org>; Borromeo, Charles; Beller, Marc; 
jeff.kl...@mgh.harvard.edu<mailto:jeff.kl...@mgh.harvard.edu>; Dori Bilik; 
Goel, Satyender (NU; rjesr...@rti.org<mailto:rjesr...@rti.org>; 
msulli...@lincolnpeak.com<mailto:msulli...@lincolnpeak.com>; 
bs...@lincolnpeak.com<mailto:bs...@lincolnpeak.com>; Wehbe, Firas; 
rj...@lphi.org<mailto:rj...@lphi.org>; 
kimberly.l...@channing.harvard.edu<mailto:kimberly.l...@channing.harvard.edu>; 
Richard Platt <richard_pl...@harvard.edu<mailto:richard_pl...@harvard.edu>> 
(richard_pl...@harvard.edu<mailto:richard_pl...@harvard.edu>); 
chelsea_jen...@harvardpilgrim.org<mailto:chelsea_jen...@harvardpilgrim.org>; 
'matthew_gill...@hms.harvard.edu'; Robert Califf, M.D.
Cc: 
kenneth.ma...@childrens.harvard.edu<mailto:kenneth.ma...@childrens.harvard.edu>;
 Rothman, Russell; lohnomach...@ucsd.edu<mailto:lohnomach...@ucsd.edu>; 
rwait...@kumc.edu<mailto:rwait...@kumc.edu>; 
elizabeth.a.mcgl...@kp.org<mailto:elizabeth.a.mcgl...@kp.org>; 
akhurs...@lphi.org<mailto:akhurs...@lphi.org>; 
forre...@email.chop.edu<mailto:forre...@email.chop.edu>; 
rak2...@med.cornell.edu<mailto:rak2...@med.cornell.edu>; 
tmaz...@cct.org<mailto:tmaz...@cct.org>; 
dev...@ohsu.edu<mailto:dev...@ohsu.edu>; 
hes...@upmc.edu<mailto:hes...@upmc.edu>; 
mpletc...@epi.ucsf.edu<mailto:mpletc...@epi.ucsf.edu>; 
peter.margo...@cchmc.org<mailto:peter.margo...@cchmc.org>; 
ryan_balfour_sar...@med.unc.edu<mailto:ryan_balfour_sar...@med.unc.edu>; 
michael_kappel...@med.unc.edu<mailto:michael_kappel...@med.unc.edu>; 
sginsb...@ghlf.org<mailto:sginsb...@ghlf.org>; 
sredli...@rics.bwh.harvard.edu<mailto:sredli...@rics.bwh.harvard.edu>; 
richard.a.mular...@kcphr.org<mailto:richard.a.mular...@kcphr.org>; 
rmcbur...@acceleratedcure.org<mailto:rmcbur...@acceleratedcure.org>; 
rebecca.sutp...@epi.usf.edu<mailto:rebecca.sutp...@epi.usf.edu>; 
anierenb...@mgh.harvard.edu<mailto:anierenb...@mgh.harvard.edu>; Laura 
Schanberg, M.D.; feich...@partners.org<mailto:feich...@partners.org>; 
meganobo...@gmail.com<mailto:meganobo...@gmail.com>; 
sulli...@mail.med.upenn.edu<mailto:sulli...@mail.med.upenn.edu>; 
pmer...@upenn.edu<mailto:pmer...@upenn.edu>; 
ho...@parentprojectmd.org<mailto:ho...@parentprojectmd.org>; 
bruce.robin...@arborresearch.org<mailto:bruce.robin...@arborresearch.org>; 
jbue...@efa.org<mailto:jbue...@efa.org>; 
ste...@geneticalliance.org<mailto:ste...@geneticalliance.org>
Subject: PCORnet: Draft Common Data Model 1.0
Dear PCORnet Colleagues,

We are pleased to distribute the attached draft of the initial PCORnet Common 
Data Model for your review and welcome your comments and feedback. As you may 
know, we have a very tight timeline to finalize the PCORnet CDM Version 1.0 
(March 31) so we kindly ask that you collate your Network's feedback and submit 
it to ds...@pcornet.org<mailto:ds...@pcornet.org> by close of business, 
Tuesday, March 25th.

We recognize that this will be an iterative process once partners begin to 
implement the model. We plan to use the DSSNI TF calls and one-on-one calls to 
discuss implementation details and gather and communicate lessons learned. We 
look forward to working with you on this process.

Kind regards,
Jenny

Jenny Ibarra, RN, MSN
Project Leader, Clinical Operations
Duke Clinical Research Institute
2400 Pratt Street
Durham, NC  27705
Phone: 919.236.3291
Email: jenny.iba...@duke.edu<mailto:jenny.iba...@duke.edu>





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