I was wondering the same thing. More generally: how are we expected to interact with this data model? What are the related protocols/workflows and bytes-on-the-wire formats?
I think what you suggest is conceivable. We have code (heron_extract<https://informatics.kumc.edu/changes/heron_extract/>, layered on the R Data Builder in HeronStatsPlugins<https://informatics.kumc.edu/work/wiki/HeronStatsPlugins>) that delivers i2b2 datasets via REDCap, with one form for either patients or encounters, and then one for meds, another for diagnoses, etc. I can imagine adapting that code to this model as a small to medium size departure from our existing data sharing proposal<http://informatics.gpcnetwork.org/trac/Project/wiki/DataSecurity>: The design for the GPC data store consists of a REDCap service and an R Studio service. In addition to the core case-report-form features of REDCap needed for prototyping patient reported outcome instruments, REDCap provides a simple project-based workflow and access control model that is well suited to the access patterns required by the GPC. For example, to submit queries from the GPC DROC to honest brokers at each site, we will add all of the honest brokers as users in a REDCap project that has a query submission survey. On receipt of a query via this survey, each honest broker executes the query against their i2b2 installations and saves the results to an R data file using the R Data Builder. We will use another REDCap project to collect and distribute the results of the query. The honest brokers upload the R data file as file attachments to this project. The REDCap service will use secure HTTP (TLS/SSL) so that the file transfer is encrypted. The GPC honest broker then releases the collection of data files to the investigators by arranging for them to have access via R Studio Server. The R statistical package provides a large toolset for combining de-identified data files for analysis, and the R Studio Server allows researchers to use this toolset while the data remain in the GPC data store. (emphasis mine, in an attempt to extract actionable items from the proposal) -- Dan ________________________________ From: [email protected] [[email protected]] on behalf of Justin Dale [[email protected]] Sent: Friday, March 21, 2014 2:05 PM To: [email protected] Subject: PCORNet Common Data Model question I'm reviewing the common data model document and trying to understand how it relates to the GPC. Is this the suggested model for the database that will store the aggregated de-identified data that each site sends back to a central location (figure 1.1 in the proposal)? Regards, Justin Dale Manager - Research Development and Support University of Minnesota Academic Health Center - Office of Information Systems Phone: 612.624.9747 Fax: 612.624.7458 [email protected]<mailto:[email protected]>
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