Thanks Maryan, Sharing though I bet Phillip will update the team. Russ
From: Maryan Zirkle [mailto:mzir...@pcori.org] Sent: Tuesday, October 07, 2014 10:14 AM To: Rothman, Russell; Russ Waitman; Mazany, Terry; Mandl, Kenneth; Jennifer Devoe; elizabeth.a.mcgl...@kp.org; Rainu Kaushal; Thomas Carton; Hess, Rachel; Lucila Ohno-Machado; Forrest, Chris B Subject: FW: PCORnet: DSSNI TF - CDRN Member Meeting Materials (Oct 7, 2014) I just want to make sure that you all see this as I know your DSSNI TF rep is someone else, in most cases, and we have been discussing some of these topics in other threads. Thanks, Maryan Zirkle MD, MS, MA Program Officer, CER Methods and Infrastructure Program Patient Centered Outcomes Research Institute (PCORI) 1828 L Street, NW, 9th Floor, Washington DC 20036 O: 202.827.7735 |C: 202.744.6190 |F: 202.355.9558 mzir...@pcori.org<mailto:mzir...@pcori.org> | www.pcori.org<http://www.pcori.org/> From: Jenny Ibarra [mailto:jenny.iba...@duke.edu] Sent: Tuesday, October 07, 2014 10:36 AM To: Dr Ed Hammond, Ph.D.; Laura Qualls; Lesley Curtis; Shelley Rusincovitch; Travis Crayton; abel....@nmff.org<mailto:abel....@nmff.org>; alan.ba...@kpchr.org<mailto:alan.ba...@kpchr.org>; Bailey, Charles (bail...@email.chop.edu<mailto:bail...@email.chop.edu>); Beller, Marc <marc.bel...@vanderbilt.edu<mailto:marc.bel...@vanderbilt.edu>> (marc.bel...@vanderbilt.edu<mailto:marc.bel...@vanderbilt.edu>); 'Blake, Michelle A' (michelle.a.bl...@kpchr.org<mailto:michelle.a.bl...@kpchr.org>); bs...@lincolnpeak.com<mailto:bs...@lincolnpeak.com>; campb...@unmc.edu<mailto:campb...@unmc.edu>; ch...@pitt.edu<mailto:ch...@pitt.edu>; Chelsea Jenter (chelsea_jen...@harvardpilgrim.org<mailto:chelsea_jen...@harvardpilgrim.org>); christine.dy...@hhs.gov<mailto:christine.dy...@hhs.gov>; Day, Michele <m...@ucsd.edu<mailto:m...@ucsd.edu>> (m...@ucsd.edu<mailto:m...@ucsd.edu>); dmee...@rand.org<mailto:dmee...@rand.org>; Goel, Satyender (NU) (s-g...@northwestern.edu<mailto:s-g...@northwestern.edu>); Hripcsak, George M. (g...@cumc.columbia.edu<mailto:g...@cumc.columbia.edu>); hripc...@columbia.edu<mailto:hripc...@columbia.edu>; Jeff Klann (jeff.kl...@mgh.harvard.edu<mailto:jeff.kl...@mgh.harvard.edu>); Jenny Staab (jenny.st...@kpchr.org<mailto:jenny.st...@kpchr.org>); kimberly.l...@channing.harvard.edu<mailto:kimberly.l...@channing.harvard.edu>; M Sullivan (msulli...@lincolnpeak.com<mailto:msulli...@lincolnpeak.com>); mary.dur...@kpchr.org<mailto:mary.dur...@kpchr.org>; Matthew Gillman (); michael.k...@ucdenver.edu<mailto:michael.k...@ucdenver.edu>; Pedro Rivera (rive...@ochin.org<mailto:rive...@ochin.org>); pu...@ochin.org<mailto:pu...@ochin.org>; Rahul Jain (rj...@lphi.org<mailto:rj...@lphi.org>); reesa.l...@kpchr.org<mailto:reesa.l...@kpchr.org>; Richard Platt <richard_pl...@harvard.edu<mailto:richard_pl...@harvard.edu>> (richard_pl...@harvard.edu<mailto:richard_pl...@harvard.edu>); richard_pl...@harvardpilgrim.org<mailto:richard_pl...@harvardpilgrim.org>; rru...@rand.org<mailto:rru...@rand.org>; Shanbhag, Avinash (HHS/ONC) <avinash.shanb...@hhs.gov<mailto:avinash.shanb...@hhs.gov>> (avinash.shanb...@hhs.gov<mailto:avinash.shanb...@hhs.gov>); snmur...@partners.org<mailto:snmur...@partners.org>; Trent Rosenbloom (trent.rosenbl...@vanderbilt.edu<mailto:trent.rosenbl...@vanderbilt.edu>); tuf21...@temple.edu<mailto:tuf21...@temple.edu>; 'Wehbe, Firas' (firas.we...@vanderbilt.edu<mailto:firas.we...@vanderbilt.edu>); wo...@email.chop.edu<mailto:wo...@email.chop.edu>; Brie Purcell (brie_purc...@harvardpilgrim.org<mailto:brie_purc...@harvardpilgrim.org>); Jeff Brown; Jessica Malenfant (jessica_malenf...@harvardpilgrim.org<mailto:jessica_malenf...@harvardpilgrim.org>); jessica_sturtev...@harvardpilgrim.org<mailto:jessica_sturtev...@harvardpilgrim.org>; keith.mars...@cchmc.org<mailto:keith.mars...@cchmc.org>; JV Selby; Maryan Zirkle; Martin Brown; Rachael Fleurence; Sarah Daugherty; Sarah Greene; Sarita Wahba; Basford, Melissa; Parsa Mirhaji; Jeannette Linkquist (jeannette.lindqu...@einstein.yu.edu<mailto:jeannette.lindqu...@einstein.yu.edu>); mwy...@uabmc.edu<mailto:mwy...@uabmc.edu>; Michelle Smerek; Bakul Patel (bakul.pa...@fda.hhs.gov<mailto:bakul.pa...@fda.hhs.gov>); Maia Hansen (mhan...@nygenome.org<mailto:mhan...@nygenome.org>); Towe, Vivian; Amjed, Natasha; Denise Hynes (dhy...@uic.edu<mailto:dhy...@uic.edu>); Rimma Belenkaya; Tony Solomonides; Sana Al-Khatib, M.D. Cc: Phillip Reeder Subject: PCORnet: DSSNI TF - CDRN Member Meeting Materials (Oct 7, 2014) Dear DSSNI TF - CDRN Members, Thank you for your participation during yesterday's DSSNI TF Meeting. Below is a link to the meeting materials posted on Central Desktop: https://pcornet.centraldesktop.com/p/ZgAAAAAAQGlr Based upon discussions during the "Open Forum" of yesterday's call, we're working on a strategy to help facilitate further discussions and knowledge sharing in the following areas: 1. Approaches for patient matching across organizations (Jon Puro request) 2. Systematic mapping of policies for re-identification for patient contact and data sharing (Daniella Meeker request) 3. Date shifting (Charlie Bailey request) Please let me know if you have interest in learning more, sharing your own experiences, or sharing relevant materials in any of these 3 areas. Thanks, Jenny Jenny Ibarra, RN, MSN Project Leader, Clinical Operations Duke Clinical Research Institute 2400 Pratt Street Durham, NC 27705 Phone: 919.236.3291 Email: jenny.iba...@duke.edu<mailto:jenny.iba...@duke.edu>
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