Hi Jim,
  I was on the DSSNI call this morning.  I apologize for the confusion
regarding the two data marts issue.  On the call Jeff said this was a
suggestion just made to PaTH.  Quite honestly, DSSNI never told me this
was a suggestion they made to PaTH exclusively.  I was under the
impression that they were suggesting this to all CDRNs.

Chuck

On 5/21/15, 10:28 PM, "Borromeo, Charles" <[email protected]> wrote:

>Hi Jim,
>  The 2 data marts per site comment was directly from Leslie and Jeff.  I
>have heard them discuss it before and  I assumed they discussed it with
>all the CDRNs.  I agree that there is nothing explicit in the CDM specs
>referencing the 2 data mart deployment and that is troubling.
>
>You may want to ask them directly about the 2 data mart approach.  Perhaps
>they have not communicated this suggestion as thoroughly as they thought.
>I don’t like the 2 data mart approach since PopMedNet does not permit
>queries across the data marts.
>
>Chuck
>
>On 5/21/15, 4:34 PM, "Campbell, James R" <[email protected]> wrote:
>
>>Charles
>>This comment about two datamarts per site is something brand new to me.
>>There is certainly nothing explicit in CDM specs that imply such a
>>requirement.  
>>From our i2b2 native reference datasets, we have SQL queries that prepare
>>the data in CDM table format although the jump from CDM V2 to V3 is going
>>to be troublesome, as I indicated to Russ
>>Jim
>>
>>James R. Campbell MD
>>[email protected]
>>Office 402-559-7505
>>Secretary 402-559-7299
>>Fax 402-559-8396
>>Pager 402-888-1230
>>
>>-----Original Message-----
>>From: Borromeo, Charles [mailto:[email protected]]
>>Sent: Thursday, May 21, 2015 9:00 AM
>>To: Russ Waitman; Campbell, James R; [email protected]; McClay,
>>James C
>>Cc: Mandl, Kenneth ([email protected]); Shawn N. Murphy
>>([email protected]); Rachel Hess ([email protected])
>>Subject: Re: PCORI CDM V3 vote
>>
>>Hi Russ,
>>  We met with DSSNI on Monday.  The PaTH CDRN shares your concerns about
>>the non-EAV structure of the data model.  Dr. Chris Chute (recently
>>joined
>>JHU) also thinks the CDM is very brittle.  However, PaTH never dedicated
>>time to developing a viable alternative to the CDM.  It seemed like too
>>big of a change to discuss given the CDM 3.0 approval date of May 2015.
>>
>>I did discuss a short-term flaw with Jeff, Leslie, Laura, and Rich Platt.
>>In PaTH, I am developing some Python scripts to convert our i2b2 data
>>into the CDM.  According to DSSNI, the CDRNs should deploy 2 DataMarts:
>>one with EMR data and one with Claims data.  Deploying two DataMarts
>>allows the CDRNs to avoid the issue of combining Claims Encounters with
>>EMR Encounters.  Leslie said some CDRNs are required to keep the Claims
>>data separate from the EMR data thus necessitating 2 DataMarts.  During
>>the development process I found a flaw with the 2 DataMart approach.
>>Basically, the Claims only DataMart would be missing data in several
>>tables (see attached image) including: VITAL, CONDITION, PRO_CM,
>>LAB_RESULT_CM, and PRESCRIBING.  The data for these tables comes from the
>>EMR, not claims.  Therefore, the Claims Only DataMart would only be able
>>to answer a subset of research questions.  During the discussion, it
>>appeared that Jeff Brown did not have a technical solution allowing him
>>to query across the 2 DataMarts in a single query.  Therefore, storing
>>the data in one DataMart would answer more research questions.
>>
>>I suggested that DSSNI add some columns to the tables allowing the ETL
>>process to describe the data provenance.  The columns would include
>>information about the type of encounter (inpatient vs outpatient) and
>>datasource (claims vs EMR).  Some of the tables (like PROCEDURES) already
>>have these columns (ENC_TYPE and PX_TYPE).  DSSNI would need to check the
>>other tables to ensure this information.  This approach effectively
>>demotes the importance of the encounter and eliminates the need to
>>combine encounters.  There may be some other alternatives.
>>
>>Jeff said he would give this some consideration so we will see what
>>happens.
>>
>>Chuck Borromeo   
>>
>>From:  Russ Waitman <[email protected]>
>>Date:  Thursday, May 21, 2015 at 9:20 AM
>>To:  "'Campbell, James R'" <[email protected]>,
>>"[email protected]" <[email protected]>, "'McClay, James
>>C ([email protected])'" <[email protected]>
>>Cc:  Charles Borromeo <[email protected]>, "Mandl, Kenneth
>>([email protected])"
>><[email protected]>, "Shawn N. Murphy
>>([email protected])" <[email protected]>, Rachel Hess
>><[email protected]>
>>Subject:  RE: PCORI CDM V3 vote
>>
>>
>>Dear Jim and GPC Dev,
>>Thanks for the good discussion Tuesday regarding the CDM 3 vote:
>>
>>https://docs.google.com/document/d/1ih4XGJVrTjIH7xOHAnQOqfqKvLl9ZxovS5PXg
>>F
>>O
>>T7qo/edit
>><https://docs.google.com/document/d/1ih4XGJVrTjIH7xOHAnQOqfqKvLl9ZxovS5PX
>>g
>>F
>>OT7qo/edit>
>> 
>>Did we as the GPC or any other CDRNs ever propose alternatives or
>>improved modifications to the CDM draft?
>> 
>>If not, was it because
>>
>>-         
>>No opportunity
>>-         
>>there was a sense it was futile
>>-         
>>No interest
>>
>> 
>>Do we have written recommendations to improve CDM3 or specifically
>>identify the flaws or most difficult to maintain sections?
>>
>> 
>>At a high level I view adding prescribing/ordered medications as good
>>
>> 
>>I am still concerned this non-EAV model or each domain is very expensive
>>to augment and maintain
>>
>> 
>>It would be preferable to share extensible enhancements with the group as
>>an alternative,
>> 
>>Russ
>> 
>> 
>> 
>>From: Campbell, James R [mailto:[email protected]]
>>
>>Sent: Monday, May 18, 2015 7:10 AM
>>To: Russ Waitman
>>Subject: RE: PCORI CDM V3 vote
>>
>>
>> 
>>On Saturday PCORI preemptively cancelled the DSSNI call scheduled for
>>today.  There has been no organized discussion of CDM for a month now.
>>They have moved the decision making
>> to the PIs, apparently to limit debate and need for their response.  It
>>seems they have been missing every deadline they set for themselves and I
>>am not sure what to expect.  Are you saying they have not been discussing
>>this within the PI steering group either?
>>Jim
>>________________________________________
>>
>>From: Russ Waitman [[email protected]]
>>Sent: Monday, May 18, 2015 6:25 AM
>>To: Campbell, James R
>>Cc: Dan Connolly; McClay, James C
>>Subject: Re: PCORI CDM V3 vote
>>
>>That secure transmission is the fault of the KUMC email system.  No idea
>>why it did that.
>>
>> 
>>
>>I think we are all somewhat non-enthusiastic of the direction of the CDM.
>>
>> 
>>
>>Do you have suggestions that would improve the next iteration?  Any
>>chance to bring those forward to Disney?
>>
>> 
>>
>>Russ
>>On May 17, 2015, at 10:23 AM, Campbell, James R <[email protected]>
>>wrote:
>>
>> 
>>Russ,
>>
>>Thanks for sharing the CDM V3 document with me.  Why the secure
>>transmission?  I thought  this was public knowledge?
>>
>> 
>>
>>Have they been discussing these changes in the CDM in the PI forum?
>>Looking through the copy that you sent me I count over 35 data
>>attributes ADDED since our input was tendered on V3.  Many of those
>>additions do nothing to improve data quality (like all the temporary
>>primary identifier fields we will have to generateŠ..we need to be sure
>>they  are serious that we do not have to maintain IDs across refresh
>>cycles) and will be a lot of work for GPC data managers.  I can
>>understand hat perhaps they will be useful for the central data warehouse
>>managers and presume that is where the requirements originated.
>>
>> 
>>
>>I assume that many networks are refusing to release non-obfuscated dates
>>without full IRB and so I appreciate the rationale for the proliferation
>>of HARVEST.Attributes but that  table will have to be regenerated for
>>each trial report assuming that we will have a mixture of IRB approved
>>and non-approved trials.
>>
>> 
>>
>>They are giving lip service to compliance with meaningful use
>>standardization but are adding duplicate data identification requirements
>>(PRO_CM.PRO_ITEM; LAB_RESULT.LAB_NAME are
>> examples) that create overhead for our data managers and require mapping
>>tables in addition to what our sites are doing for ONC compliance.
>>
>> 
>>
>>I was suprized by the appearance of the table 2.5 ³Implementation
>>Expectations²  table of page 6.  Are  a lot of CDRNs not able to produce
>>LAB, CONDITION, DEATH and PRESCRIBING datasets?  Will these be the
>>factors that separate the men from the boys in trial participation?  I
>>don¹t see how they can do the ADAPTABLE  trial from EHR data harvest
>>without some of these data sets.
>>
>> 
>>
>>In short, this V3 document creates a lot of new requirements for our data
>>managers, many with apparently arbitrary specs.  If we can  take table
>>2.5 literally, GPC should be able to meet CDM compliance in the next few
>>months but I ask if the OPTIONAL tables will not be the mark of the truly
>>successful CDRN and therefore required for our long term viability.
>>
>> 
>>
>>Please provide your prospectives on this.  What is the discussion among
>>PIs?  Is the snowball already hallway down the hill?
>>
>>Jim
>>
>> 
>>
>>NEW or REVISED ELEMENTS IN CDM V3
>>
>>DIAGNOSIS.DIAGNOSISID (Unique over time for all queries to site?? They
>>say no and so I ask WHY?)
>>
>>PROCEDURE.PROCEDURESID
>>
>>VITAL.SMOKING
>>
>>VITAL.TOBACCO (CHANGED FROM V2; IT APPEARS THAT THEY HAVE CREATED
>>DUPLICATE ENTRIES FOR SMOKING BEHAVIOR AND HAVE CHANGED V2 DEFINITIONS ON
>>TOBACCO TYPE.  THIS  FLIES IN THE FACE OF WHAT WE ARE BEING REQUIRED TO
>>REPORT FOR MEANINGFUL USE )
>>
>>VITAL.TOBACCO_TYPE
>>
>>DISPENSING.DISPENSINGID
>>
>>DISPENSING.PRESCRIBINGID (QUESTIONABLE ADDITION!  THOSE OF OUR SITES THAT
>>CAN REPORT THIS WILL BE ACCEPTING SURESCRIPTS DATA THAT THEY  HAVE NOT
>>ORIGINATED)
>>
>>DISPENSING.NDC (SHOULD SPECIFICALLY DRAW FROM NLM RXNAV PUBLICATION)
>>
>>[LAB_RESULT.LAB_NAME CREATES BURDEN FOR MAPPING ALL TEST NAMES IN
>>ADDITION TO LOINC SOTH NAME WHICH SHOULD BE QUITE ADEQUATE FOR RESEARCH
>>PURPOSES]
>>
>>LAB_RESULT.NORM_MODIFIER_LO
>>
>>LAB_RESULT.NORM_MODIFIER_HI
>>
>>CONDITION.CONDITIONID
>>
>>PRO_CM.PRO_CMID
>>
>>PRO_CM.PRO_ITEM (REDUNDANT WITH LOINC CODE ?WHY?)
>>
>>PRESCRIBING.ORDER_TIME
>>
>>PRESCRIBING _FREQUENCY
>>
>>PRESCRIBING.RX_BASIS (NEW; THIS IS INCONSISTENT WITH GUIDANCE ON NATURE
>>OF THE DISPENSING RECORD AND MAKES NO SENSE!)
>>
>>PCORNET_TRIAL.PARTICIPANTID
>>
>>PCORNET_TRIAL.TRIALSITEID
>>
>>HARVEST.BIRTH_DATE_MGMT
>>
>>HARVEST.ENR_START_DATE_MGMT
>>
>>HARVEST.ENR_END_DATE_MGMT
>>
>>HARVEST.ADMIT_DATE_MGMT
>>
>>HARVEST.DISCHARGE_DATE_MGMT
>>
>>HARVEST.PX_DATE_MGMT
>>
>>HARVEST.RX_ORDER_DATE_MGMT
>>
>>HARVEST.RX_START_DATE_MGMT
>>
>>HARVEST.RX_END_DATE_MGMT
>>
>>HARVEST .RESULT_DATE
>>
>>HARVEST .MEASURE_DATE
>>
>>HARVEST.ONSET_DATE_MGMT
>>
>>HARVEST.REPORT_DATE_MGMT
>>
>>HARVEST.RESOLVE_DATE_MGMT
>>
>>HARVEST.PRO_DATE_MGMT
>>
>>HARVEST.REFRESH_DEMOGRAPHIC_DATE
>>
>>HARVEST.REFRESH_PRESCRIBING_DATE
>>
>>HARVEST.REFRESHPCORNET_TRIAL_DATE
>>
>>HARVEST.REFRESH_DEATH_DATE
>>
>>HARVEST.REFRESH_DEATH_CAUSE_DATE
>>
>>
>>
>>The information in this e-mail may be privileged and confidential,
>>intended only for the use of the addressee(s) above. Any unauthorized use
>>or disclosure of this information is prohibited. If you have received
>>this e-mail by mistake, please delete it and immediately  contact the
>>sender. <v3_VOTE.docx>
>>
>>
>> 
>>Russ Waitman, PhD
>>
>>Director of Medical Informatics
>>
>>Assistant Vice Chancellor for Enterprise Analytics
>>
>>Associate Professor, Department of Internal Medicine
>>
>>University of Kansas Medical Center, Kansas City, Kansas
>>
>>913-945-7087 (office)
>>
>>[email protected]
>>
>>http://www.kumc.edu/ea-mi/
>>
>>http://informatics.kumc.edu <http://informatics.kumc.edu/>
>>
>>http://informatics.gpcnetwork.org ­ a PCORNet collaborative
>>
>>
>> 
>>
>> 
>>
>> 
>>
>>
>

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