Jim (Meeks)

Following the lead from Kansas we implemented identified and de-identified 
copies of i2b2 extracted from Epic and other data sources including tumor 
registry.  We found that we had much more reference standard data in SNOMED CT, 
LOINC, RXNORM and HIPAA transaction standards than some GPC sites and expanded 
the i2b2metadata to support those ONC reference terminologies in i2b2.  We 
found that deployment of polyhierarchy ontologies in i2b2 metadata required 
some creativity and revision of the i2b2 algorithms for hierarchical 
aggregation.

>From the star schema i2b2 data extraction we create the CDM view of data 
>tables to support PCORnet research queries.

This week at the Data Standards (DSSNI) call we learned that we will be 
required with CDM V3 to support those data as SAS datasets which means, I 
assume, that we will be using SAS ODBC to support views of the CDM V3 tables 
accessible in a SAS application environment by  (SAS) code received via 
Popmednet.

>From PCORI point of view this reduces the number of versions of net queries 
>they issue, but it does impose some unanticipated (from my point of view) 
>development requirements on our network (query) interfaces.  Networked i2b2 
>client queries are not part of PCORI's game plan although they may be viable 
>within collaborations with closely aligned metadata deployment.  This latest 
>pronouncement from DSSNI seems to destroy my expectation that SQL employing 
>CDM data model would be the basis for interoperation of research data queries 
>within PCORnet

Jim Campbell

________________________________
From: [email protected] [[email protected]] on 
behalf of Wanta Keith M [[email protected]]
Sent: Thursday, September 24, 2015 1:16 PM
To: 'Dan Connolly'; Meeks-Johnson, Jim; [email protected]
Subject: RE: GPC and ACT synergy

Jim,

If you prefer to keep isolated i2b2 systems, you could implement database swaps 
as a solution.  We’ve recently installed SHRINE with other sites in Wisconsin 
and the systems are a bit different, so we use database swaps now at UW Health 
(as of a month ago).  We chose this strategy not because it’s better, but 
because the requirements vary, our i2b2 versions vary slightly, data governance 
reasons, and other reasons.

Do you spend more energy on complicating the ontologies and/or data?  Or do you 
spend more energy on complicating the ETL code?  Or do you spend more energy on 
complicating the release process?  There’s a fine line of when you have more 
risks.  These risks will change overtime with a health care organization 
depending on the politics, but right now, database swaps work well for us.

Keith Wanta
UW Health


From: [email protected] 
[mailto:[email protected]] On Behalf Of Dan Connolly
Sent: Thursday, September 24, 2015 10:01 AM
To: Meeks-Johnson, Jim; [email protected]
Subject: RE: GPC and ACT synergy

Good question. KUMC hasn't crossed into ACT and SHRINE yet, though it's on our 
horizon. I'm pretty sure some GPC sites have, though; I'll let them chime in 
for themselves. My impression is that no, a separate isolated i2b2 is not 
needed. We ask that sites share as much of our ETL processes as is manageable, 
though; we recommend 
HERON<https://informatics.gpcnetwork.org/trac/Project/wiki/DevTeams#heron-kumc>,
 or at least pieces such as 
TumorRegistry<https://informatics.kumc.edu/work/wiki/TumorRegistry>.

We're also using RXNorm, ICD9, and LOINC in GPC, though there's more than one 
way to integrate those into i2b2. Some parts of our design are more stable and 
uniform across GPC than others 
(DataRepositoryManagement<https://informatics.gpcnetwork.org/trac/Project/wiki/DataRepositoryManagement>
 is probaby the best summary and/or starting place). I see you have an account 
on babel<http://babel.gpcnetwork.org/>, so you can poke around whenever you 
like. It'll be great to have stuff from your site any time; ACT style stuff is 
more than welcome.

Another opportunity for comparison is a demo in one of our weekly 
gotomeetings<https://informatics.gpcnetwork.org/trac/Project/wiki/SoftwareDev#next-agenda>.
 We've had many of the other GPC 
DevTeams<https://informatics.gpcnetwork.org/trac/Project/wiki/DevTeams> do 
that. (We even have recordings of a few, though they're not terribly handy; 
here's hoping for time to index them on that DevTeams page.) We plan to have 
UNMC talk about their CDM ETL on the 29th, but any week after that might work 
fine.

--
Dan
________________________________
From: Meeks-Johnson, Jim [[email protected]]
Sent: Thursday, September 24, 2015 9:38 AM
To: [email protected]<mailto:[email protected]>; Dan Connolly
Subject: GPC and ACT synergy

Hi, all,



Indiana University is pleased to be joining GPC as part of phase II!



We are already part of the SHRINE-based ACT consortium, as I believe some of 
you are also. We build a separate instance of I2B2 using RXNORM, ICD9 and LOINC 
from our HIE for ACT. We wondered if you had any suggestions or guidance on 
best practice for leveraging this into GPC/CDM, or if a separate isolated I2B2 
and ETL is needed for GPC. What are the rest of you doing about this?



This may be explained in the rich technical documentation you have... if so 
could you point me to the right resources?



Thanks,



Jim Meeks-Johnson

Principle Engineer

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