At HackathonThree<https://informatics.gpcnetwork.org/trac/Project/wiki/HackathonThree>, "We discussed vendor software used at various sites to manage NAACCR tumor registries." I guess it didn't seem worth recording the details, though, since that's all the notes<https://docs.google.com/document/d/1E6KqkKGuod6LZ6_umjosqfUpGKyZyLuX2V3KooixIes/edit?pref=2&pli=1#> show (aside from a few notes about KUMC's manual process).
So anyone who is willing to share their experience for the record, please do. The premise of the HERON NAACCR ETL<https://informatics.kumc.edu/work/wiki/TumorRegistry> is that many sites are in the practice of submitting a NAACCR file to a state (or national?) registry. This exact file is the input to the ETL process. Case in point was MU's experience report in our 1 March call<http://listserv.kumc.edu/pipermail/gpc-dev/2016q1/002580.html>: ToddM - Same organization to get data from Tumor Registry. Talked to registrar and explained what we need. The monthly extract they already send to the state worked fine. Had 5 years of extracts available for import. Dan - that’s how it’s supposed to work. Great. Does Iowa use CNExT to generate a NAACCR file? If so, you should be all set. p.s. it's best to start the discussion in substance in email, leaving aside the question of whether we'll talk about it on a phone call. If, when you see the agenda come out, you don't see your item on it and you're not satisfied with the email discussion, you can always ask for it to be added. -- Dan ________________________________ From: [email protected] [[email protected]] on behalf of McDowell, Bradley D [[email protected]] Sent: Thursday, March 03, 2016 11:08 AM To: <[email protected]> Subject: gpc-dev agenda item for 3/8 Our oncology registry uses the CNExT software, and we were wondering if other sites also use this tool. It would be helpful to know how other sites transfer data from that system to i2b2. Could we discuss this at the 3/8 dev group call? Brad ------------------------------------------------------------ Bradley D. McDowell, Ph.D. Director, Population Research Core Holden Comprehensive Cancer Center 5240 MERF | The University of Iowa | Iowa City, IA | 52242 Office: 319-384-1768
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