Yes, this looks like a good discussion. I look forward to it. And yes, Jan 29 (11am central as usual) should work, presuming Russ, Maren, and Song are available. (If not, we'll let you know.)
The rules for releasing data are reasonably settled, though I don't know how easy it is to find them. Oh... we do have a GROUSE Request<https://redcap.kumc.edu/surveys/?s=7XRWJKWARN> REDCap survey that we use when an investigator wants to take data out of the GROUSE environment. It's reasonably succinct, except that it has a link to "relevant GROUSE policies" that goes to https://informatics.gpcnetwork.org/trac/Project/wiki/GROUSE#Agreements , i.e. hundreds of pages of agreements. The form is only expected to be used by investigators who are approved to use GROUSE and have been trained. Reviewing our internal training process documentation, it looks like the GROUSE Executive Summary is the main thing new investigators are expected to read. (The rest is normal human subjects training and "I won't share my password" sort of stuff.) -- Dan ________________________________ From: Gpc-dev [gpc-dev-boun...@listserv.kumc.edu] on behalf of Blackburn,Katherine [katherineblac...@ufl.edu] Sent: Thursday, January 17, 2019 9:34 AM To: 'gpc-dev@listserv.kumc.edu' Subject: OneFL team join a call? Hi there, A few of us at OneFL are interested in joining one of your calls, to learn a little more about use/reuse/sharing of ResDAC data with investigators from your partner sites. We are submitting for general Medicare data for the first time (we have been through ResDAC submission before) and have used some of your language as our model. However our Data Trust team wanted to learn a little more about your process for approving investigator use of the data, whether you can release data and in what form, etc. Is that a good use of meeting time? If not, please let us know what would be better. I do have the link to your wiki and we will do our best to learn as much as we can before the call. Is Jan 29 a possibility? Thanks, Katie Katie Blackburn, MSPH Research Coordinator Dept. of Health Outcomes and Biomedical Informatics CTSI Learning Health System Initiative University of Florida Phone: 352.294.5989
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