All, Danielle is out sick and is unable to respond right away. She's hoping to be back in the office later this week/early next week and will send out an update at that time.
(It sounds like a/the purpose of sending the death date and golden ticket number to DCRI was to help DCRI avoid trying to contact families of persons who are deceased. But if you have questions please wait for Danielle to weigh in later this week or next as she's able to.) Thanks, Brian From: Dan Connolly <dconno...@kumc.edu> Sent: Tuesday, November 12, 2019 12:13 PM To: Mandhadi, Vasanthi (Medical Research Office) <mandha...@health.missouri.edu>; Gryzlak, Brian M <brian-gryz...@uiowa.edu> Cc: gpc-dev@listserv.kumc.edu Subject: [External] Re: Adaptable: how to send death data? [was: gpc-dev weekly...] Brian, I did some post-meeting editing of the notes on this discussion: 1. Adaptable: how to send death data?<http://listserv.kumc.edu/pipermail/gpc-dev/2019q4/005406.html> Vasanthi Mandhadi * DC polls a few sites and discovers this whole issue / request is news to several sites. Mosa/MU: It originates from an Oct 10 2019 GPC adaptable meeting. There's an action item: All sites provide date of death for patients, once per week. By email. * Stefani/Marshfield: any particular format? Vasanthi/MU: golden ticket number and death date Note MCW's approach<http://listserv.kumc.edu/pipermail/gpc-dev/2019q4/005408.html> * Mosa: email seems like an odd mechanism; I'd rather they used a process based on the portal. * DC: is this consistent with established governance? Russ: not sure; Defer to Danielle. Brian: Danielle is the ADAPTABLE coordinator for GPC; she's at UIOWA, where the IRB of record sits. Vasanthi: I already checked with her. Susan/Intermountain: our IRB calls golden ticket limited data, since attached to a person. [not to mention date of death is limited data] * DC: Sounds like Vasanthi already checked with Danielle... Various people are still interested in clarification / confirmation. Brian: will contact Daneille and send info to gpc-dev@listserv.kumc.edu<mailto:gpc-dev@listserv.kumc.edu> on how to get it and send it; in case email discussion doesn't suffice, invite her to next week's gpc-dev call. https://docs.google.com/document/d/1EDUyksQTDa7ZK96nCpIYUX6eU6j1O9dWvJ_nKNoRJb4/edit ________________________________ From: Dan Connolly <dconno...@kumc.edu<mailto:dconno...@kumc.edu>> Sent: Tuesday, November 12, 2019 9:25 AM To: Mandhadi, Vasanthi (Medical Research Office) <mandha...@health.missouri.edu<mailto:mandha...@health.missouri.edu>> Cc: gpc-dev@listserv.kumc.edu<mailto:gpc-dev@listserv.kumc.edu> <gpc-dev@listserv.kumc.edu<mailto:gpc-dev@listserv.kumc.edu>> Subject: Adaptable: how to send death data? [was: gpc-dev weekly...] ________________________________ From: Mandhadi, Vasanthi (Medical Research Office) <mandha...@health.missouri.edu<mailto:mandha...@health.missouri.edu>> Sent: Monday, November 11, 2019 1:02 PM To: Dan Connolly <dconno...@kumc.edu<mailto:dconno...@kumc.edu>> Subject: Re: gpc-dev weekly: scribe for Nov 12? cancel Nov 5 Hi Dan, Can you please add this to tomorrow's agenda (Nov 12). Adaptable team requested to send death data to DCRI either once a week or once every 2 weeks. How are other sites sending this data? Thank you, Vasanthi Mandhadi On Nov 4, 2019, at 9:39 AM, Dan Connolly <dconno...@kumc.edu<mailto:dconno...@kumc.edu>> wrote: MU, are you available to scribe next week? (Nov 12). In case they're not, how about you, Utah? I don't see enough business to merit a meeting tomorrow, so let's cancel. Congrats on getting CDM C7R1 approved, KUMC, MCW, MCRI, UNMC, UTHSCSA, MU, Utah, Allina, Intermountain. -- Dan _______________________________________________ Gpc-dev mailing list Gpc-dev@listserv.kumc.edu<mailto:Gpc-dev@listserv.kumc.edu> http://listserv.kumc.edu/mailman/listinfo/gpc-dev<http://protect-us.mimecast.com/s/30liC9ryLPFRrG0DHoz80d?domain=listserv.kumc.edu>
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