Hi everyone, A researcher at UIOWA is interested in knowing whether any GPC sites currently provide de-identified clinical notes to researchers. The broad aim is to link clinical notes to other GPC data for a proposal on chemotherapy among overweight / obese patients with cancer to assess reasons for chemo dose variations.
Can sites please weigh in as to whether de-identified clinical notes are ever provided to researchers? If so, answers to any/all of the following would be great to know: 1. Does your site use any standard processes to de-d clinical notes? If so, can you please describe? 2. Are other attributes like provider, encounter info, etc. available along with the actual notes? 3. Are certain types of clinical notes not captured or not made available to researchers (e.g., phone consults that do not result in a provider referral, etc.)? 4. Have de-id notes ever been shared with outside researchers (i.e., researchers not currently affiliated with your site)? Thanks! Brian Brian M. Gryzlak, MSW, MA Project Coordinator S414 CPHB 319.335.8218 The University of Iowa Iowa City, IA 52242 brian-gryz...@uiowa.edu<mailto:brian-gryz...@uiowa.edu> Health Effectiveness Research Center (HERCe)<http://www.public-health.uiowa.edu/herce/>
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