Isn't that part of break off from GPC leadership?? What I dropped from each 'talking point' slide was content about volunteers could opt to be on any other committee they wanted as well.
From: Russ Waitman Sent: Monday, September 15, 2014 3:54 PM To: Lauren Aaronson Cc: gpc-engagement ([email protected]); Steve Fennel Subject: Re: Draft 6 mo report What happened to patient involvement in data sharing governance? Russ On Sep 15, 2014, at 11:52 AM, Lauren Aaronson <[email protected]<mailto:[email protected]>> wrote: All, This Thursday is a webinar mtg for Russ Waitman, our overall PI, to provide PCORI with a 6 month progress report. For this we were asked to provide 2 or 3 slides to show a response to question #9 of the 6 month progress report: 9. Describe how patients and other stakeholders are or will be involved in design, implementation, and dissemination of research conducted by or in collaboration with your CDRN. Describe critical areas in which stakeholder input will be sought to influence the trajectory of the research. Attached is a DRAFT set of slides with the info we are sending to Russ. ONLY the first 3 slides are for him to use as official slides; the remaining slides are just to provide him with some talking points. Kim Kimminau will be on the call as well to help Russ out if needed. I will be at some mtgs in DC so likely unable to join this call on Thurs. Because Russ needs to provide PCORI with his full slide set by Weds, we don't have a lot of time, but WELCOME any and all comments and suggestions you have on what we have drafted. Just get them to us ASAP. I've also attached here the full CDRN 6 Month Evaluation Interview Guide in case you are interested in the other questions Russ must address for the entire GPC. Of course, you also may interpret some of the content from these slides as direction to start recruiting the patient and patient advocate representatives from your site....we will need to have actual action on this for the next progress report. Lauren Lauren S Aaronson, PhD, RN, FAAN Deputy Director Frontiers: The Heartland Institute for Clinical and Translational Research KU Clinical Research Center MS # 6001 4350 Shawnee Mission Parkway Fairway, KS 66205 913-945-7681 [email protected]<mailto:[email protected]> Professor School of Nursing and Dept of Health Services & Management, School of Medicine KUMC MS # 4043 3901 Rainbow Blvd Kansas City, KS 66160 913-588-1789 <CDRN 6 Month Evaluation_Interview Guide 08012014.pdf><6 month Patient and Stakeholder Engagement in the GPC.pptx> Russ Waitman, PhD Director of Medical Informatics Assistant Vice Chancellor for Enterprise Analytics Associate Professor, Department of Internal Medicine University of Kansas Medical Center, Kansas City, Kansas 913-945-7087 (office) [email protected]<mailto:[email protected]> http://www.kumc.edu/ea-mi/ http://informatics.kumc.edu<http://informatics.kumc.edu/> http://informatics.gpcnetwork.org - a PCORNet collaborative
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