I have been working with the CDC with an eye to include in VistA the option to report deidentified data to the Biosense project to help with the early detection of disease such outbreaks, etc. Privacy does not have to be violated in order to achieve most of what you are concerned about.
On Thursday 16 February 2006 12:09, Ruben Safir wrote: On Thu, 2006-02-16 at 11:17, Nancy Anthracite wrote: > Yes indeed. You all know I believe in VistA and what it can do, but I have > ever increasing anxiety about what this is going to do to privacy and thus > what impact it will have on the physician patient relationship. > > New York City Department of Health is getting the results of ALL A1C tests > in the city and patients are not allowed to opt out of having the data sent > and cannot even opt out of receiving mailings from the city until AFTER > they receive the first one. > > How can we protect the databases with our patients information if this sort > of thing is allowed? If the labs were not so much more convenient to tap > into than the physicians' records, this would probably have been demanded > from them, and when physicians become more widely computerized, they we, > patients and physicians, will all be at great risk. > > Where is patient control of their information? I think I've already said that I disagree that health records should be private. I STRONGLY disagree. The issue of privacy of health records has caused MURDER, especially with regard to AIDs and other infectious disease. And if someone is having a gun shot wound pulled out of their buttocks, I sure as hell want to know how it got in there, It's irresponsible, in my opinion, to be an advocate for increased privacy with medical records as this nation is teetering on the brink of so many lethal epidemics. And this is not limited to just infectious disease. This the billions of dollars this city spends on diabetes, I absolutely want the government to identify and monitor diabetics as early as possible, This saves lives and reduces to the future expenditures on the publics money. You can't have it both ways. You can't go running around like chicken little about healthcare privacy and then expect healthcare to be an interest of the public domain and then expect privacy from the government. Obviously we all depend on the government to maintain healthcare, to pay for healthcare, the be the insurer of last resort for healthcare, to subsidize healthcare, to mandate healthcare standards and to directly intervene into the healthcare concerns of every individual in this nation. There is not a single person in this nation that has not had the government directly intervene for the sake of their health and safety. The sharing and responsible use of healthcare information is critical to saving lives and maintaining the publics safety. PERIOD. > I am finding this more and more outrageous, but apparently I am trumped by > by everyone figuring the good is outweighed by the bad. This is such a > steep slippery slope. Having someone listen in on telephone conversations > is causing outrage in the congress, but not a PEEP from them about this. > > On Thursday 16 February 2006 10:24, Mike Schrom wrote: > As long as it's quality medical information FOR patients, not quality > medical information ABOUT patients, that is not specifically authorized. > > Kevin Toppenberg wrote: > > If HIS were standardized, I could anticipate a "Google" of the future > > coming up with fantastic ways of enhancing patient care by optimal > > presentation of patient data, i.e. scanning, filtering etc.. Already > > Google makes it very easy to look up quality medical information for > > patients on the internet. > > > > Kevin > > > > On 2/15/06, Gregory Woodhouse <[EMAIL PROTECTED]> wrote: > >>A Pill, a Scalpel, a Database > >> InformationWeek (02/13/06)No. 1076, P. 38; McGee, Marianne Kolbasuk > >> > >>Information technology is making strides in three critical areas of > >>medicine: The filtering and delivery of information to the patient's > >>bedside, allowing for personalized care; formatting existing data to > >> obtain a richer, more helpful picture of the patient's condition; and > >> the use of analytics to integrate data that yields new insights. IBM > >> Healthcare and Life Sciences' Brett Davis says the interim between the > >> discovery of new medical breakthroughs and their standard > >> application--which can take as long as 17 years--is decreasing thanks to > >> the use of IT and other new tools for research and collaboration. In > >> addition to helping enable more customized patient treatments, > >> health-care IT can cut the time and cost of testing new drugs and > >> improve the development of safer, more targeted drugs via data mining > >> and analysis. Analytic, pattern-recognition, and decision-support > >> software can examine data from countless sources, and they could emerge > >> as some of the most critical health-care tools. But delivering more > >> timely and customized bedside care requires a national infrastructure > >> for electronic health data that facilitates the exchange of standardized > >> medical records, which President Bush flagged as a national goal to be > >> realized by 2014. "The key tipping point will be in getting the national > >> health IT infrastructure in place," notes Davis. Other challenges > >> include the increasingly pressing issues of security, privacy, and > >> ethical data usage as more and more health-care information becomes > >> electronically accessible. Progress can also be hindered by hesitancy > >> among some researchers to share information. Click Here to View Full > >> Article > >> > >>== > >>Gregory Woodhouse > >>[EMAIL PROTECTED] > >> > >>"If you give someone Fortran, he has Fortran. > >>If you give someone Lisp, he has any language he pleases." > >>--Guy L. Steele, Jr. > > > > ------------------------------------------------------- > > This SF.net email is sponsored by: Splunk Inc. Do you grep through log > > files for problems? Stop! Download the new AJAX search engine that > > makes searching your log files as easy as surfing the web. DOWNLOAD > > SPLUNK! http://sel.as-us.falkag.net/sel?cmd=k&kid3432&bid#0486&dat1642 > > _______________________________________________ > > Hardhats-members mailing list > > [email protected] > > https://lists.sourceforge.net/lists/listinfo/hardhats-members > > ------------------------------------------------------- > This SF.net email is sponsored by: Splunk Inc. Do you grep through log > files for problems? Stop! Download the new AJAX search engine that makes > searching your log files as easy as surfing the web. DOWNLOAD SPLUNK! > http://sel.as-us.falkag.net/sel?cmd=lnk&kid=103432&bid=230486&dat=121642 > _______________________________________________ > Hardhats-members mailing list > [email protected] > https://lists.sourceforge.net/lists/listinfo/hardhats-members ------------------------------------------------------- This SF.net email is sponsored by: Splunk Inc. Do you grep through log files for problems? Stop! Download the new AJAX search engine that makes searching your log files as easy as surfing the web. DOWNLOAD SPLUNK! http://sel.as-us.falkag.net/sel?cmd=lnk&kid=103432&bid=230486&dat=121642 _______________________________________________ Hardhats-members mailing list [email protected] https://lists.sourceforge.net/lists/listinfo/hardhats-members -- Nancy Anthracite ------------------------------------------------------- This SF.net email is sponsored by: Splunk Inc. Do you grep through log files for problems? Stop! Download the new AJAX search engine that makes searching your log files as easy as surfing the web. DOWNLOAD SPLUNK! http://sel.as-us.falkag.net/sel?cmd=lnk&kid=103432&bid=230486&dat=121642 _______________________________________________ Hardhats-members mailing list [email protected] https://lists.sourceforge.net/lists/listinfo/hardhats-members
