Hi Anita,

All we currently have available is a downloadable CSV file (available through 
the Download CSV button on the Subject Dashboard) with all the Open access data 
available for the selected group of subjects. Currently, we don’t have a way to 
download only a limited set of the demographic data. Hopefully this is doable 
(Dan Marcus and his group can chime in), and we can add it to our queue. 

 

Also, of the metadata you mention, because we are a family twin study, under 
Open Access, Age is only available as 5 year Age Range (e.g. 26-30). Handedness 
is only available under Restricted Access.

Best,

Jenn

 

Jennifer Elam, Ph.D.
Outreach Coordinator, Human Connectome Project
Washington University School of Medicine
Department of Anatomy and Neurobiology, Box 8108
660 South Euclid Avenue
St. Louis, MO 63110
314-362-9387
[email protected]
www.humanconnectome.org

 

From: [email protected] 
[mailto:[email protected]] On Behalf Of anita bandrowski
Sent: Thursday, October 02, 2014 4:59 PM
To: [email protected]
Cc: Yueling Li
Subject: [HCP-Users] Need a set of patient level metadata

 

I am not sure where to go for an open set of patient level metadata 
(de-identified).

I see the download a data set, but I really don't want that much information. 

 

I would like something like 

Patient Id

Handedness

Sex

Age

Other open demographic info not covered under protected patient information.

Magnet strength

Scan(s) ID(s)

Link to the data set on humanconnectome.org

 

If something like this is available, fantastic, sorry for my blindness, if not, 
is it possible to make the request to the developer team to make such data 
available somewhere public so that I can ask my crawler to go back to it 
monthly to check for new data?

 

-- 

Anita Bandrowski, Ph.D.
NIF Project Lead
UCSD 858-822-3629
http://neuinfo.org
http://orcid.org/0000-0002-5497-0243
9500 Gillman Dr.#0446
la Jolla, CA 92093-0608

_______________________________________________
HCP-Users mailing list
[email protected]
http://lists.humanconnectome.org/mailman/listinfo/hcp-users


_______________________________________________
HCP-Users mailing list
[email protected]
http://lists.humanconnectome.org/mailman/listinfo/hcp-users

Reply via email to