To all, In response to the recent thread regarding public distribution of HCP data, the following clarifications may be helpful.
1) Yes, the open access data use terms allows distribution of original HCP data under the same terms, point 4 here: http://humanconnectome.org/data/data-use-terms/open-access.html "4. I may redistribute original WU-Minn HCP Open Access data and any derived data as long as the data are redistributed under these same Data Use Terms." Some additional points may benefit from clarification. i) Point 4 was intended to ensure that wholesale re-sharing of HCP data continue to credit HCP. ii) What a particular user of HCP Open Access Data can do in terms of downstream sharing of the data and what the recipient can do with the data is a matter to be discussed between the user and his or her Institutional Review Board (IRB, or the equivalent at other institutions), and separately between the downstream recipient and his/her IRB. (Some IRBs allow a researcher to determine for him/herself whether a particular use of human data is exempt from their overview, whereas others require that any proposed use of human data must be discussed with them.) iii) We remind readers that HCP Restricted Data (including family structure - see http://humanconnectome.org/data/data-use-terms/) is handled very differently. Users of Restricted Data have agreed not to share such data with others, as one condition of their access. There is a special set of rules (see preceding URL) for publishing and presenting data derived from Restricted Data. 2) We recognize that some investigators would find it useful to have unrestricted access to data from a non-HCP subject acquired using HCP-style protocols. We are not aware of such a dataset at present. David VE On Jul 6, 2015, at 4:35 PM, Matthew Brett <[email protected]> wrote: > Yo, > > On Mon, Jul 6, 2015 at 8:39 PM, Ariel Rokem <[email protected]> wrote: >> Hi everyone, >> >> As part of the Google Summer of Code, I am mentoring a student (Rafael >> Henriques, cc) who is implementing diffusion kurtosis imaging as part of the >> Dipy open-source library (http://dipy.org; see also: >> https://github.com/nipy/dipy/pull/664). We think that this will be quite >> useful for scientists analyzing multi b-value HCP/HCP-like data. >> >> As part of the project, Rafael is writing some detailed usage examples. Our >> standard way of writing examples usually involves downloading some data from >> a URL (using 'data-fetchers'), reading the data from disk and operating on >> this data . For an example, see here: >> http://nipy.org/dipy/examples_built/reconst_dti.html#example-reconst-dti >> >> We are interested in writing an example of DKI analysis that uses the HCP >> data, or data acquired using the HCP protocol. However, as I understand it, >> for the bulk of the HCP data, we can't just download a diffusion data-set, >> and then serve it up on some URL, because this would violate the terms of >> use. My question is whether there is some specific HCP data-set that is >> released under a license that does allow that (e.g. a public dedication >> license)? >> >> Alternatively, does someone on this list have data that was acquired with >> the HCP protocol, under an IRB protocol that does allow distribution under a >> public dedication license (or some-such), and would be willing to share the >> data for this purpose? > > Forgive my ignorance - but do I remember correctly that the HCP > license allows you to redistribute data, under the same license? > > Then I guess, for testing, you could take some datasets and put them > in a repo, with the same license, and use this repo for testing? > > I guess the problem is that you'd have to put big red warnings on the > repo so that people realized what the license terms were before > cloning the repo. > > But like you, I'd love to hear of any more freely available data... > > Cheers, > > Matthew > _______________________________________________ > HCP-Users mailing list > [email protected] > http://lists.humanconnectome.org/mailman/listinfo/hcp-users _______________________________________________ HCP-Users mailing list [email protected] http://lists.humanconnectome.org/mailman/listinfo/hcp-users
