Hi James, We used a version of SSAGA for HCP in which some items were omitted. We did ask about medications used for anxiety and depression, and drugs used in combination with alcohol or illicit drugs, but the other categories were omitted.
In order to get access to the HCP SSAGA data as collected: 1. You (and every researcher in your group who will use the data) need to be approved for HCP Restricted access (see application: http://humanconnectome.org/storage/app/media/data_use_terms/DataUseTerms_HCP_RestrictedAccess_26Jan2016.pdf) 2. You need to get IRB approval for a study of HCP Data Analysis -- the IRB approval can not be only an IRB waiver/exemption that assumes deidentified data because, in combination with other restricted data available, the SSAGA responses could be identifying. If you already have restricted access, please send me your ConnectomeDB username. When you get IRB approval, please send me your approval letter and I can send you the data. Best, Jenn Jennifer Elam, Ph.D. Scientific Outreach, Human Connectome Project Washington University School of Medicine Department of Neuroscience, Box 8108 660 South Euclid Avenue St. Louis, MO 63110 314-362-9387<tel:314-362-9387> [email protected]<mailto:[email protected]> www.humanconnectome.org<http://www.humanconnectome.org/> ________________________________ From: [email protected] <[email protected]> on behalf of James Condon <[email protected]> Sent: Wednesday, November 22, 2017 12:47:28 AM To: [email protected] Subject: [HCP-Users] Accessing full SSAGA HCP-Wu-Min1200 data Hi, I'm a researcher from Australia hoping to use the HCP-Wu-Min n1200 data. 1. How can I access full SSAGA (semi-structured assessment for the genetics of alcoholism) data? Exploring the connectomedb site, can only get CSV column stating SSAGA is complete, rather than the details within it. 2. I'm hoping to access each subjects medication history (which should be included in the SSAGA). 3. What format is the full SSAGA data in? Is medication history available in a CSV file? Thanks for your fantastic work! Kind regards, Dr. James Condon 0411688811 Resident Medical Officer Royal Adelaide Hospital – Mobile via main switchboard: +618 7074 0000 North Terrace, Adelaide, South Australia, 5000 Subeditor Radiopaedia.org ------------------------------------------- This email may contain confidential information, which also may be legally privileged. Only the intended recipient(s) may access, use, distribute or copy this email. If this email is received in error, please inform the sender by return email and delete the original. If there are doubts about the validity of this message, please contact the sender by telephone. It is the recipient’s responsibility to check the email and any attached files for viruses. _______________________________________________ HCP-Users mailing list [email protected] http://lists.humanconnectome.org/mailman/listinfo/hcp-users _______________________________________________ HCP-Users mailing list [email protected] http://lists.humanconnectome.org/mailman/listinfo/hcp-users
