http://arabnews.com/news/448292

Doctor to help child with swollen head
  a..  
  Indian daily labourer, Abdul Rahman (R), fans his eighteen month old 
daughter, Roona Begum, suffering from Hydrocephalus, a buildup of fluid inside 
the skull that leads to brain swelling, as her mother Fatima Khatun (L) 25, 
holds her hand at their hut in Jirania village on the outskirts of Agartala, 
Tripura, in this April 13, 2013 file photo. (AFP)


AGENCE FRANCE PRESSE

Tuesday 16 April 2013

NEW DELHI: A top private Indian hospital offered yesterday to examine an 
18-month-old girl suffering from a rare but treatable illness that has caused 
her head to swell to more than double its normal size.
The decision raises hope that 18-month-old Roona Begum, who suffers from 
hydrocephalus, a disorder which causes cerebrospinal fluid to build up on the 
brain, will get the life-saving surgery.

She was discovered last week living with her impoverished parents who are too 
poor to pay for treatment for the condition, which has resulted in her head 
swelling to a circumference of 91-centimetres (36-inches).
The publication of pictures taken by an AFP photographer in remote Tripura 
state in northeast India last Friday led numerous well-wishers to step forward 
offering donations, while a website has been set up to collect money for her.
Leading Indian neurosurgeon Sandeep Vaishya, who is the head of neurosurgery at 
a flagship hospital for the Fortis group near the capital, said that he would 
examine the girl and see if surgery was possible.
"Fortis will fly her down and while we will have to do an MRI to check the 
condition of her brain, I am hopeful that we will be able to carry out a 
surgery and relieve the pressure on the poor child's brain," Vaishya told AFP.
The group has a charitable foundation which carries out surgery free of charge.
Her 18-year-old father, Abdul Rahman, who lives in a mud hut with his family in 
the village of Jirania Khola, told AFP earlier that only a "miracle" could save 
his daughter's life.
The swelling is putting pressure on her brain and has made it impossible for 
her to sit upright or crawl on the ground.
Local doctors had told the family to take the newborn to a private hospital in 
a big Indian city but the costs were too high for Rahman, an illiterate laborer 
who earns 150 rupees ($ 2.75) a day working in a brick plant.
The US government's National Institute of Neurological Disorders and Stroke 
estimates about one in every 500 children suffers from hydrocephalus.
The most common treatment involves the surgical insertion of a mechanism to 
drain cerebrospinal fluid away from the brain and towards another part of the 
body where it can be easily absorbed into the bloodstream.
Extreme cases like Roona's are very rare, according to Vaishya, who said he had 
been deluged with calls about the child after he spoke to AFP on Saturday.
"The child must be in a lot of pain because her head is so heavy. Still, in the 
images I could see that she was smiling sometimes, which makes me think that 
her cognitive functions might still be intact," Vaishya said.


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