Dear Friends and Neighbors, Tomorrow I’ll be part of something amazing - I will be donating hematopoietic stem cells (aka bone marrow cells). These kinds of donations happen all the time to treat leukemia and other hematological diseases like sickle cell disease. Patients who need a bone marrow transplant rely on generous donors, often strangers, to survive.
Follow me on social media to join me on this journey to learn about stem cell donation and Shwachman Diamond Syndrome, the disease my cells will be used to treat! Like, follow and share… Twitter: @mariamiara <https://twitter.com/mariamiara> Instagram: @profmiara <https://www.instagram.com/profmiara/> If social media isn’t your thing, just reply to this email and I will include you on email updates that I will be sending along. Why am I doing this? A member of my family has Shwachman Diamond Syndrome (SDS), a life-threatening bone marrow failure disease. I happen to carry a gene for SDS although I am not affected. My stem cells will be used to test a new gene therapy that they hope to use to treat SDS. This would be a game changer for those that suffer from this disease and would open the door to the development of gene therapies for similar diseases. This work is being done at Boston Children’s Hospital through the Shwachman Diamond Syndrome Registry. <https://www.sdsregistry.org/> If you are interested in learning more about bone marrow donation visit https://bethematch.org/ Please consider following me and sharing so more people can learn about bone marrow donation and SDS. Thank you! Maria Miara
-- The LincolnTalk mailing list. To post, send mail to [email protected]. Search the archives at http://lincoln.2330058.n4.nabble.com/. Browse the archives at https://pairlist9.pair.net/mailman/private/lincoln/. Change your subscription settings at https://pairlist9.pair.net/mailman/listinfo/lincoln.
