Hi all,
coming out of my lurking mode. I usually don’t post. I tend to be super slow 
and quite shy about almost anything I write, but Salvatore’s departure has 
really shaken me and sometimes I find that writing helps a bit. 
I am pasting below the in-memoriam note I just sent to Leonardo. this is my 
perspective as a fellow Italian who worked several times with him and Oriana 
from a distance, but developed a solid friendship that I cherished for many 
years. 
last time I talked to him was in March. little did I know it would be the last 
time.

peace.
Roberta

-----------

Writing to celebrate the life and work of Salvatore Iaconesi is not easy. It is 
not easy because his body of work is so extensive and diverse that one would 
never have enough space to fit it in a few pages; it is not easy because it 
extends over, it is entangled, and it is shared with a formidable network of 
collaborators and friends, which he and his life and artistic partner Oriana 
patiently and passionately built for many years. But it is especially not easy 
because his departure is hard to accept. It has been a slow departure, during 
which he planted many seeds for future work and activities, made new friends, 
established new collaborations. “Salvatore Iaconesi is alive” announces the 
website of HER: She Loves DATA, the cultural research centre he and Oriana had 
founded in 2013. Still, it is difficult to accept that his body, and his wit 
are no longer with us.  

Salvatore Iaconesi’s work was eclectic, ranging from projects supporting remix 
and opensource culture, to experiments with AI and hybrid marriages between 
human and non-human, community data mining and data sharing, collective 
performances, pedagogical initiatives, and much more. No matter where and by 
whom his projects were carried on, they were all conceived in the spirit of 
community participation and co-creation involving many actors, human and 
non-human; they could be remixed and expanded, recombined and played with.

I met Salvatore in 2010 at the SHARE festival in Torino. The editorial project 
he and Oriana presented gave me a taste of the spirit that characterized their 
future projects: a drive to reveal the narrow minded, exploitative and 
extractivist rules imposed by institutions and those who retain power, and a 
desire to rectify these rules by mobilizing a network of individuals and 
communities with whom to re-think and find solutions for these rules. REFF 
(RomaEuropa Fake Factory) became a fake cultural institution and an editorial 
project in response to the exploitative rules imposed by the institutions 
promoting a funding contest. Hopeful applicants had to agree to transfer any 
ownership of their work to the funding agency. The latter could then re-use, 
remix and republish said work. However, no project already containing remake, 
mashups, and remix would be admitted. The response was an edited book 
collecting essays, artworks, and editorial experiments that exposed this rather 
hypocritical and contradictory position and enacted the very practices that had 
been forbidden by the contest.

When I first invited Salvatore and Oriana to Toronto in 2014, they had been 
launching a data visualization project titled Human Ecosystems (HE) in Rome 
(Italy) and Sao Paulo (Brazil). The project encouraged members of the public to 
reflect on and visualize the city’s human geographies and affective flows, by 
capturing information from social networks. Instead of just collecting data 
from users and artfully laying them on a map, the goal here was to achieve a 
new and more reflexive understanding of the ways in which different cultures 
express opinions, emotions and affect. Most importantly, it sought to reveal 
how cities’ relational ecosystems are formed and which roles different people 
assume in their communities (influencers, hubs, experts, amplifiers, bridges 
among different communities etc...). This was made to empower the public to 
view data as relational agents rather than discrete bits ready to be collected 
to create more surveillance. Together, during a few (and very snowy) days, we 
worked with students at the Transmedia Lab (York University) and the members of 
the public at ArtSci Salon, our art and science collective, to build an 
affective map of the city. Even the very skeptical City of Toronto’s Open Data 
team was willing to listen.

Freeing data from the grip of institutional and corporate power, from their 
extractivist agendas, from their techno-solutionist patina of fake neutrality 
was at the core of Salvatore and Oriana’s work.  The main mission of their 
cultural research centre is to use data and computation to create new realities 
that would think past using, exploiting, and depleting data and instead rethink 
the configuration of, and the relationships being established in the 
neighborhood, the city and the environment.

The reappropriation, repurposing, and re-vitalizing of data had profound 
political significance for Salvatore. They also resonated personally.  In 2012, 
following his diagnose of brain cancer, he found himself trapped in the same 
situation he was rallying against with his art. Now a patient, he was stripped 
from his individuality, and found himself caught in a medical system intent to 
measure, visualize, and examine his condition only, one not seeing him as a 
whole person: “the patient is a strange being … entirely made of data: blood 
exams, images of body parts, lab values, diagnoses”. He describes his 
experience with the medical system as a ritual: “your body, personality, and 
social connections disappear, and are replaced by data and images”. In the 
medical ritual Iaconesi was caught in, everything is obsessively quantified and 
passed through body scans, software, and digital models. He had suddenly become 
a bundle of data, over which he seemed to have no control. But even that 
resulting disembodied entity had been taken away from him. In fact, to add 
insult to injury, all data collected from his body had been stored in a 
proprietary format impossible to share.

La Cura became a long-term life journey that extended well beyond medical 
treatment or medical data sharing. His rebellion against the reductive 
constraints imposed by the medical technologies, and against an inflexible and 
impersonal medical system, materialized into the release of his medical data 
online. He turned to the community at large to seek help, solidarity and 
comfort. His request was drawn by a need to open up “cancer’s “source code” as 
a biopolitical rite of healing, aimed at redefining concepts such as “disease” 
and “cure” “… to re-appropriate the condition of being ill, and to foster a 
society that recognizes disease as a complex experience — one felt by social 
bodies as much as individual bodies”.

His story far exceeds issues of information gathering and dissemination; issues 
of disease and control. This act of sharing was not meant to disseminate 
information with the purpose of receiving more. It was not meant to acquire 
knowledge to be used for his exclusive benefit. His act of sharing opened to a 
precarious and indeterminate space. By turning to a community made up of close 
friends and complete strangers, he welcomed and eventually recovered human and 
affective elements that had been lost in the extreme operation of reduction he 
was enduring during his experience within the medical system.

Maria de la Bellacasa explains that caring is “everything that we do to 
maintain, continue and repair our world, so that we can live in it as well as 
possible”. Caring also means becoming aware that “studying and representing 
things have world-making effects”. It is a way of thinking and speaking beyond 
what we assume to be some social and “politically” useful research. La Cura 
evolved into many other projects, all initiated with the same spirit of caring, 
using data creatively and for social causes: “the cure does not exist if not in 
society”.

Last time I had the pleasure to collaborate with Salvatore, and last time I 
heard his voice was in March 2022, during an interdisciplinary series of talks, 
workshops and events that I co-created with my colleague Elena Basile titled: 
“Who Cares? Sustaining relations of health beyond the time of crisis”. We 
invited Salvatore and Oriana and their team to facilitate a Data Meditation, 
because we knew that their approach to data to evoke self-reflexivity, empathy 
and mutual sharing, instead of impersonal and mechanical interaction would 
break the cycle of apathy that had characterized so many conferences and talks 
(including the one about health care!) during the pandemic. During one of the 
roundtables, coincidentally scheduled exactly 2 years after the beginning of 
many lockdowns around the world, Salvatore shared his extraordinary experience 
of being in a hospital just before Italy shut down: “The Hospital was shutting 
down. Surgeries were stopped, people were being sent back home. But the 
pandemic was hitting full strength in the realm of information and data too. 
People were massively exposed to horrible things about the pandemic, completely 
and carelessly fed with information about people who were sick, dead and dying, 
with no care for their fragilities…The use of data and information at the time 
was truly violent and careless. It was a very violent experience. We decided 
that we should do something about it. That’s when we started developing these 
new rituals where these data and information are not forces that divide people 
but unite people and bring them together. That’s the origin of what we call 
Nuovo Abitare” .

The “Nuovo Abitare” resonated greatly with our desire to bring together a 
community of users, artists, scientists and caregivers to reflect beyond the 
cruelty of a tired health care system and its triage based culture. 
Importantly, it gave us hope that this new concept could one day be adopted by 
many.

I want to remember Salvatore Iaconesi with these words, because I think they 
not only encapsulate the profound sense of justice and care that drove his 
work, but also his optimism and hopeful thinking, in the face of the violence 
imparted by and conveyed through data, in spite of collapse due to climate 
change, wars, political unrest, medical emergencies etc..

It is certainly not a chance that the logo that stands out on the site of HER: 
She Loves Data is a heart. A heart which will grow larger thanks to the way his 
thinking and his generosity touched and inspired many of us. Even though his 
body is no more, his legacy is here to stay.
 

  

> On Aug 2, 2022, at 11:59 AM, Alan Sondheim via NetBehaviour 
> <[email protected]> wrote:
> 
> Hi Everyone,
> 
> I was hoping someone would say something; I didn't know him, but from his 
> work at Furtherfield, I felt his thinking resonated with my own the strongest 
> in the show. 
> There was no bio for him in the back; was that his desire?
> 
> Best, Alan, and Marc, I hope you're doing well. At the moment speechless, too 
> much pain everywhere. And thank you everyone for this list and Furtherfield -
> 
> On Tue, Aug 2, 2022 at 4:21 AM Helen Varley Jamieson 
> <[email protected] <mailto:[email protected]>> wrote:
> last week my copy of "frankenstein reanimated" arrived & i immediately turned 
> to page 175 and read patrick lichty's interview with salvatore, about "la 
> cura", the collaborative artistic project to open source a cure for the brain 
> cancer that he had just been diagnosed with (the interview was made in 2012).
> 
> salvatore died a couple of weeks ago, on 18 july. has this sad news already 
> come through on netbehaviour? maybe i missed it ... i am remembering 
> salvatore's smile and laugh, his warmth and       generosity; and the 
> cyberformance that myself, francesco buonaiuto and miljana perić created for 
> "la cura" (which was only performed once, for salvatore & oriana, in 2012 or 
> 13 & now exists only as fragments on my hard drive). 
> 
> r.i.p. salvatore - i am glad to have known you!
> 
> h <3
> 
> -- 
> helen varley jamieson
> 
> [email protected] <mailto:[email protected]>
> http://www.creative-catalyst.com <http://www.creative-catalyst.com/>
> http://www.upstage.org.nz <http://www.upstage.org.nz/>
> https://mobilise-demobilise.eu 
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> =====================================================
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