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How did swine flu kill a healthy boy?

Kindergartner's death leaves parents, doctors with questions

By Chas Sisk
THE TENNESSEAN

http://www.tennessean.com/article/20090912/FEATURES04/90912016/How+did+swine+flu+kill+a+healthy+boy

The most remarkable thing about the death of Max Gomez was that it 
could happen at all.

Going into the last weekend in August, the Antioch 5-year-old was an 
energetic, independent kindergartner excited to be starting 
elementary school. Less than four days later, he was dead.

"Max had gotten sick in the past. He'd had strep and ear infections, 
but he always came through," his mother, Ruth Gomez, recalled in an 
interview with The Tennessean last week. 

"But this time, everything happened so fast."

The death of Max Gomez, an otherwise healthy boy who became the 
state's third fatality from swine flu nearly two weeks ago, could 
hold clues as to why a usually mild disease can sometimes turn deadly.

Ruth Gomez described Max's flu as progressing extraordinarily quickly 
- from a fever on Saturday to an apparent recovery on Sunday to 
hospitalization and death on Monday.

More than 1 million Americans are believed to have contracted H1N1 
influenza, or swine flu, but only about 9,000 people, less than 1 
percent of the cases, have gotten sick enough to require 
hospitalization. 

Fewer than 600 have died, according to figures published earlier this 
month by the Centers for Disease Control and Prevention.

Of those, Max Gomez's case may be part of an even rarer group, in 
which the disease claimed the life of a child whose medical history 
gave no hints that he was vulnerable to swine flu.

State and local health officials say they are still conducting tests 
to determine how Max, an inquisitive boy who loved fishing and 
outings with his church group, could have died from the disease. 

Until those tests are complete, they say they cannot determine 
whether any undiagnosed conditions or infections played a role in his 
death.

There is little evidence that the boy did not get medical treatment 
quickly enough, or that doctors did not do all they could to save 
him. 

Instead, it appears that Max succumbed to an unusual combination of 
circumstances that resulted in tragedy.

"Life is so fragile," Ruth Gomez said. "You can never know. You never 
know what could happen tomorrow."

'A good kid'

The first few weeks of August were exciting times for Max, who was 
born in Nashville and had lived with his family off Bell Road for 
three years. 

He had started class at Henry Maxwell Elementary School, and unlike 
many children his age, Max embraced the chance to be independent. 

While some kindergartners let go of their parents' hands in tears, 
Max begged his mother to let him ride the school bus, and when his 
mother insisted on driving him instead, he begged her again to let 
him walk from the school's front door to the classroom on his own. 

In the classroom, Ruth said, Max was already a leader, offering to 
translate his classmates' Spanish for his teacher.

"He really was a good kid," Ruth said, sitting in the family's 
immaculate living room, with peace lilies and memorials to Max 
clustered all around. 

"He was very happy, and he was very helpful. He had a good heart."

When he fell ill on the weekend of Aug. 28, Ruth and her husband, 
Marco, saw little to fear. Max woke up with a fever that Saturday - a 
fever that peaked at just over 102 degrees, his mother recalled - but 
he otherwise seemed energetic.

His parents suspected it was a routine childhood illness, an ear 
infection or a sore throat, one that would get better with a dose of 
Tylenol and rest. 

Instead of attending their Seventh-day Adventist Church in Smyrna, 
the family decided to stay home from church that day, just to be safe.

By Sunday, Max's fever had subsided. To be cautious, the family 
decided not to let Max join a zoo trip with his church group, the 
Eager Beavers, but Ruth recalled he was playful that day and showed 
ample signs of recovery.

Monday, however, began worrisomely. Max's fever returned, and he had chills. 

Ruth and Marco, an independent contractor, couldn't afford health 
insurance for themselves, but they had enrolled Max and his two 
younger sisters in TennCare, the state's health insurance program for 
low-income children, pregnant women and the disabled.

Ruth took Max that day to a walk-in clinic in Antioch, where he was 
seen by a doctor and released. But by the time Marco came home from 
work at 5 p.m., Max's perpetual energy had given way to unrelenting 
fatigue.

The family rushed Max to Monroe Carell Jr. Children's Hospital at 
Vanderbilt, where he was admitted around 6 p.m., Ruth recalled. 

The doctors seemed to sense the urgency of Max's case almost 
immediately. Still, he was dead less than three hours later.

"This happened so fast," Ruth said. 

"At the beginning, we couldn't believe it, and looking back, we did 
question why, but we just feel like everything happens for a reason, 
that hopefully other people would learn from this. And we're doing OK 
as far as spiritually."

Tests are being run

An autopsy has been performed, but test results will not be ready for 
about two months, medical officials said. 

Until then, they can only speculate as to why the virus would have 
claimed the life of Max, a child who seemed so unlikely to succumb to 
the illness.

"To answer that, you have to just look at those (cases) that seem 
like lightning bolts," said Dr. Tim Jones, the state epidemiologist.

Earlier this month, the Centers for Disease Control released a 
bulletin on the first 36 children in the United States to die from 
swine flu, a group that does not include Max Gomez.

The CDC found that two-thirds of those children had an underlying 
condition that made them more vulnerable to swine flu. 

These include epilepsy, muscular dystrophy, asthma or any other 
disease that suppresses the immune or respiratory systems. 

Max Gomez had not been diagnosed with any chronic diseases, his mother said. 

Instead, he appeared to fall into the remaining one-third of children 
who die from the disease, a group that scientists are still trying to 
learn more about. 

One possibility is that H1N1 could be exacerbated by a bacterial 
infection. All six of the children the CDC studied who were over 5 
years old but did not have a chronic medical condition tested 
positive for a bacterial infection in addition to swine flu.

Health officials said they did not know enough about Max Gomez's case 
to say whether a bacterial infection contributed to his death.

But they did say that when influenza combines with a bacterial 
infection, such as pneumonia, the patient often follows a pattern in 
which his symptoms start to subside but then suddenly worsen. 

That pattern - which includes symptoms such as vomiting, chest pain, 
a racing pulse, breathing trouble, bluish skin or trouble staying 
awake - is an indication that the flu has turned deadly, and it means 
a sufferer should talk to a doctor immediately.

"What you expect from ordinary flu is that it starts off bad and gets 
better," said Dr. Bill Paul, Metro's health director. "If that's not 
the case, it's worth a call."

'We hope we can learn'

Ruth Gomez said the family has been trying to move on from Max's death. 

She said she has long encouraged her friends, even those without 
medical insurance, to see a doctor when their children fall ill, 
advice that she recommends with even more urgency now.

The family, she said, has been drawing comfort from their church and 
their faith that Max's spirit lives on.

"We have hope that we're going to see him again," she said.

Doctors, meanwhile, hope to solve the mystery of Max's death, in the 
hope of helping other families avoid the same pain.

"It is a tragedy," Paul said. "There is a young, healthy kid who is 
no longer with us. We hope we can learn lessons from it."
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