Yesterday, Joan, David (Julie's brother) and I spent the afternoon with Julie. It was her last night at Geisinger in Danville. At one point we heard a bit of a commotion going on in her room. The aides were cleaning her up but she wouldn't get back into bed. In fact when we saw her she was heading for the door, an aide under each arm and one foot flopping over the other. (We would use the term walking very loosely). So with a nod from one of the aides, (we interpreted it as a nod), we got her into a wheel chair and whisked her out of the hospital. David appeared about that time to find us enjoying the fresh air and sunshine 'somewhere' on the hospital grounds. She laughed a lot during dinner as she always does when David is present but was quite distraught after he left. She never spoke at all, not even a nod. It was obvious she didn't like being in a chair or on her bed and she knew she was going to Philadelphia the next day. But back to bed she had to go. I suggested to her that if I lowered the head of the bed and she would roll on her side Joan and I would massage her back. She was on her side with her eyes closed before I could get the bed lowered. When she'd had enough of being in that position she just rolled back over. It seems she understands most of what we say, if not everything. This morning when I arrived the staff were in her room crying as they were saying goodbye. Julie was upset herself but gave me a hug. I fed her breakfast. She was dressed, loaded onto a gurney and I walked with her down to an ambulance. I sat with her in the ambulance for a minute or so to say goodbye and assured her that Michael would be there when she arrived. I told her to relax, enjoy the ride, close her eyes and get some sleep. She closed her eyes and was transferred to Moss Rehab Hospital in Elkins Park, Philadelphia at about 9.30 am. Michael drove down at about the same time and saw her settled into her room. I'm sure Michael will give an update from his end of it tonight or tomorrow. We will only see her about once a week now because of the distance and my fear of vehicles in a 15 square mile area outnumbering the total number of vehicles in all New Zealand. It's a little more than fear, it's paralyzing paranoia! We don't know how long she will be there. The doctors at Moss asked Michael what were his expectations and he told them - to bring her home. That's where she goes next - home, Graham 5/2/2013
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