Greetings, I'm new to odc-discuss. My apologies if this has been covered. I could not find a discussion with my searching.
Our open source, non-profit company makes software that is used by people living with diabetes. We ask people to donate their diabetes device data via the Tidepool Big Data Donation <http://tidepool.org/bigdata> project, which many have done. We would like to now make some these anonymized datasets available publicly. I would prefer to not invent a new license, but it appears that the current ODC-By would allow for downstream re-identification. What do people do that would like to preclude re-identification of open, anonymized medical data? For example, people using our software sometimes tweet their continuous blood glucose graphs. It would not be hard to do analyze the image, and look for the same pattern of CBG readings in the anonymized database to identify a person. This restriction is intended to preclude Protected Health Information from being re-identified. However I understand why the license does not allow for further restrictions. What have other folks done who want to make individual medical records available but preclude identification? Thanks, Howard -- *Howard Look* President, CEO and Founder *Tidepool* is an open source, not-for-profit effort to make diabetes data more accessible, actionable, and meaningful by liberating data from diabetes devices, supporting researchers, and providing great, free software to the diabetes community. *Email: *[email protected] *Web: *Tidepool.org <http://tidepool.org/>
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