http://www.nih.gov/news/pr/oct2007/nhlbi-01.htm
http://challenge.gov/NIH/132-nlm-show-off-your-apps-innovative-uses-of-nlm-information http://www.nlm.nih.gov/databases/ On Mon, Jun 13, 2011 at 12:38 PM, Athanassios I. Hatzis, PhD <hatzis at healis.gr> wrote: > Hi, > I've been following the "Dual Model EHR implementation" discussion and it just > occurred to me that all these approaches would make much more sense if they > have > been accompanied by sample clinical data, databases open to the public. > Scientifically speaking one has to test any method with data to judge > efficiency, etc... > > Something which is also very true in most cases is that in most EHR systems a > specific database modeling, implementation approach has been chosen due to > limited resources, (time and money) and other specific conditions of the > problem > domain and application field. Presumably there is a huge gap between > commercial > systems and scientific/educational/open systems. > > It is also true that database modeling and other issues are part of the > information management systems domain (including content management, ERP, > knowledge management, information modeling, information retrieval etc...). I > am > just trying to make the point that : > > If we are studying IMPLEMENTATION/DEVELOPMENT OF GLOBAL INFORMATION MODELS in > e-health or more generally speaking trying to apply information science > theories > in the medical field then we need A LOT OF DATA to test it. Data that are open > to the public (e.g. open data foundation, open data commons) etc... As Tim > Berners-Lee says it does not matter in what format, just put the data on the > web > and people will find ways to work with it. > > In that respect there has to be global repository with clinical data of any > form, (fictional demographics, clinical documents, admissions, procedures, > etc). > Ideally there should be some correlation with anonymous patients at the > center. > > All this human effort of international groups like HL7 or openEHR make much > more > sense if anonymous clinical data are open to the public. This is the only way > in > my opinion to promote both information science and clinical research, to > promote > the medical field. > > Kind regards > > Athanassios > http://healis.eu > http://medilig.org > > > PS: Perhaps researchers in this field can point us to such open clinical data > already available ???? > > _______________________________________________ > openEHR-clinical mailing list > openEHR-clinical at openehr.org > http://lists.chime.ucl.ac.uk/mailman/listinfo/openehr-clinical > -- ================ Timothy Cook, MSc Project Lead - Multi-Level Healthcare Information Modeling http://www.mlhim.org LinkedIn Profile:http://www.linkedin.com/in/timothywaynecook Skype ID == timothy.cook Academic.Edu Profile: http://uff.academia.edu/TimothyCook You may get my Public GPG key from? popular keyservers or from this link http://timothywayne.cook.googlepages.com/home
