Hi!

My thesis entitled "Scalability and Semantic Sustainability in Electronic
Health Record Systems" is now available online. It contains many
openEHR-related papers and discussions (see abstract included below).

Permanent link to electronic version of the thesis:
http://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-87702

Public PhD defence will be held the 15:th of February, in Link?ping,
Sweden. Faculty opponent: prof. Dipak Kalra, UCL.
Temporary event-information page: http://www.imt.liu.se/~erisu/2013/phd/
(That page also contains a form where you have the possibility to indicate
interest in online participation or in getting a recording.)

Best regards,
Erik Sundvall
erik.sundvall at liu.se http://www.imt.liu.se/~erisu/  Tel: +46-13-286733

Abstract
This work is a small contribution to the greater goal of making software
systems used in healthcare more useful and sustainable. To come closer to
that goal, health record data will need to be more computable and easier to
exchange between systems.
Interoperability refers to getting systems to work together and semantics
concerns the study of meanings. If Semantic interoperability is achieved
then information entered in one information system is usable in other
systems and reusable for many purposes. Scalability refers to the extent to
which a system can gracefully grow by adding more resources. Sustainability
refers more to how to best use available limited resources. Both aspects
are important.

The main focus and aim of the thesis is to increase knowledge about how to
support scalability and semantic sustainability. It reports explorations of
how to apply aspects of the above to Electronic Health Record (EHR)
systems, associated infrastructure, data structures, terminology systems,
user interfaces and their mutual boundaries.

Using terminology systems is one way to improve computability and
comparability of data. Modern complex ontologies and terminology systems
can contain hundreds of thousands of concepts that can have many kinds of
relationships to multiple other concepts. This makes visualization
challenging. Many visualization approaches designed to show the local
neighbourhood of a single concept node do not scale well to larger sets of
nodes. The interactive TermViz approach described in this thesis, is
designed to aid users to navigate and comprehend the context of several
nodes simultaneously. Two applications are presented where TermViz aids
management of the boundary between EHR data structures and the terminology
system SNOMED CT.

The amount of available time from people skilled in health informatics is
limited. Adequate methods and tools are required to develop, maintain and
reuse health-IT solutions in a sustainable way. Multiple levels of
modelling including a fixed reference model and another layer of flexible
reusable ?archetypes? for domain specific data structures, is an approach
with that aim used in openEHR and the ISO 13606 standard. This approach,
including learning, implementing and managing it, is explored from
different angles in this thesis. An architecture applying Representational
State Transfer (REST) to archetype-based EHR systems, in order to address
scalability, is presented. Combined with archetyping this architecture also
aims at enabling a sustainable way of continuously evolving multi-vendor
EHR solutions. An experimental open source implementation of it, aimed for
learning and prototyping, is also presented.

Manually changing database structures used for storage every time new
versions of archetypes and associated data structures are needed is likely
not a sustainable activity. Thus storage systems that can handle change
with minimal manual interventions are desirable. Initial explorations of
performance and scalability in such systems are also reported.

Graphical user interfaces focused on EHR navigation, time-perspectives and
highlighting of EHR content are also presented ? illustrating what can be
done with computable health record data and the presented approaches.

Desirable aspects of semantic sustainability have been discussed,
including: sustainable use of limited resources (such as available time of
skilled people), and reduction of unnecessary risks. A semantic
sustainability perspective should be inspired and informed by research in
complex systems theory, and should also include striving to be highly aware
of when and where technical debt is being built up. Semantic sustainability
is a shared responsibility.

The combined results presented contribute to increasing knowledge about
ways to support scalability and semantic sustainability in the context of
electronic health record systems. Supporting tools, architectures and
approaches are additional contributions.
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