Philippe AMELINE wrote:

>> > ...
>> > For my own part, I've been thinking about the ownership of health
>> > information, and have reached the conclusion in my own mind that the
>> > information must belong to the patient. Which implies that the
>> > patient must have overall responsibility for who accesses what and
>> > when (and the systems that succeed in the long term will have this
>> > builtin as a design requirement from the start).
>> > 
>
> These considerations are out of date in France, since a law just 
> stated that medical informations belong to the patient, and that he 
> can claim access and modification rights to any of them. 

isn't this what the quote above says?

> The access rights we are putting at work for the Ligne de vie are 
> based upon the "position" of any people among patient's "health team" :
>
> We call Mr Smith's "health team" the group of persons that have been 
> granted access rights to Mr Smith's Ligne de vie.
>
> Among these persons, we created  5 groups : Mr Smith himself, MDs, 
> other health professionnals, social professionals, and family.
> Each health team member has a "position" (usual MDs vs occasional MDs 
> for example).
> MD and other health professionals can have a personal position as well 
> as a domain position (for example as a member of an emergency unit). 

what about: government/public health (anonymised data), researchers, the 
public, emergency access...

- thomas beale



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