Thanks. Here are a few others we also found.
Sample Listing of Federal Health Information Sharing
Resources
available at no cost. (Software and Databases)
Software/Tools
The Statistical Export and Tabulation System (SETS) gives data users the
tools to access and manipulate large data files on their personal computers.
SETS 2.0 has been optimized for use with Windows 95, Windows 98, and Windows
NT. Users can order the SETS Designer Kit, which contains software to
create, build, and edit large data sets, as well as the SETS Interface. This
tool and several large data sets are made available by the National Center
for Health Statistics. http://www.cdc.gov/nchs/sets.htm
The MedQuest Clinical Data Collection Design System is a suite of software
tools that enables the user to quickly design a data collection system and
collect data using that system. In addition to its main functions MedQuest
can be used to produce a number of word processing compatible documents and
reports and export data into ASCII and dBase formats. MedQuest also provides
utilities to perform database maintenance activities through the MedQuest
Manager and quality control measurement of the data using the MedQuest
Software. MedQuest has been designed as an open architecture system and can
be used for a variety of purposes including specification construction, data
entry, and exporting the abstracted data.
http://cms.hhs.gov/medquest/default.asp
Clinical Classification Software (CCS) was been developed by the Agency for
Healthcare Research and Quality (AHRQ) and is part of the Healthcare Cost
and Utilization Project (HCUP). CCS is based on the International
Classification of Diseases, 9th Revision, Clinical Modification (ICD-9-CM),
a uniform and standardized coding system.
http://www.ahrq.gov/data/hcup/ccs.htm
CONQUEST - Computerized Needs-Oriented Quality Measurement Evaluation SysTem
for collecting and evaluating clinical performance measures. CONQUEST
includes interlocking databases with a user-friendly interface to help you
find measures to fit your needs. It allows you to follow one of three
"paths" to create reports on performance measures (conditions, diseases, and
procedures), measure sets (measures with a common purpose and developer), or
conditions (with detailed epidemiologic information). There are now 53
measure sets in the database, consisting of almost 1,200 clinical
performance measures developed by public and private sector organizations.
CONQUEST summarizes recommendations from AHCPR-supported clinical practice
guidelines and guidelines produced by many other developers. It also
includes findings from AHCPR's Patient Outcomes Research Team (PORT)
projects. CONQUEST also provides extensive information (e.g., prevalence,
risk factors, co-morbidities, affected age groups, adverse outcomes,
utilization, cost) on a number of conditions. Copyright owned by AHCPR.
System runs on MS Windows or NT. http://www.ahrq.gov/qual/conquest.htm
CarePlanner is a decision support tool for successful living and care
choices. It is for seniors, physically disabled and individuals who have a
chronic illness and need supportive services, and mature adults who like to
plan ahead. Produced by: Clinical Tools, Inc. for Centers for Medicare &
Medicaid Services. http://www2.careplanner.org/
The Veterans Health Information Systems and Technology Architecture (VistA)
is a suite of healthcare information software that is in the public domain
and being used by many public and private sector organizations.
http://www.va.gov/vista_monograph/
CarePlanner - Web-based Decision Support t Tool CarePlanner is a tool that
can help seniors, individuals who may need supportive services because of a
chronic illness or physical limitation, and mature adults who want to plan
ahead. Caregivers, families and friends of seniors and others as well as
professionals can learn more about living and care options. In addition to
the decision support tool, there will be a component for states and other
professionals that will provide more technical and clinical information and
tools for care planning. http://cms.hhs.gov/states/letters/smd91901.asp
Resource and Patient Management System -- RPMS is an integrated solution for
the management of clinical and administrative information in healthcare
facilities of various sizes and orientations. Flexible hardware
configurations, over 35 software applications, and network communication
components combine to provide a comprehensive clinical, financial, and
administrative solution. http://www.ihs.gov/Cio/RPMS/index.asp
Clinic Assessment Software Application (CASA) -- The Clinic Assessment
Software Application (CASA) is a tool for assessing immunization practices
within a clinic, private practice, or any other environment where
immunizations are provided. CASA has data entry and import capabilities.
CASA provides an extensive body of data that can be accessed and organized
to suit individual practice needs. Besides the analysis components of CASA,
there are also reminder and recall tracking capabilities. CASA, having been
developed by the Centers for Disease Control and Prevention, is public
domain software and can be installed and shared with others without cost.
http://www.cdc.gov/nip/casa/Default.htm
Epidemic Information Exchange (Epi-X) -- The Epidemic Information Exchange,
or Epi-X, provides secure, high-speed, Web-based communication about
outbreaks and other acute or emerging health events among public health
officials from CDC, state and local health departments and the military.
One of the unique features of Epi-X is the ability to provide a forum for
secure communications for state epidemiologists to post information on
surveillance and response activities for approximately 500 public health
officials around the country, including the U.S. military. Another unique
feature of Epi-X is emergency notification by telephone and/or pager to
defined groups of public health officials.
http://www.cdc.gov/programs/research5.htm
Epidemiology Info/Map -- Epi Info and Epi Map are public domain software
packages designed for the global community of public health practitioners
and researchers. Both provide for easy form and database construction, data
entry, and analysis with epidemiological statistics, maps, and graphs.
http://www.cdc.gov/epiinfo/
ImageJ is a public domain Java image-processing program inspired by NIH
Image for the Macintosh. It runs, either as an online applet or as a
downloadable application, on any computer with a Java 1.1 or later virtual
machine. Downloadable distributions are available for Windows, Mac OS, Mac
OS X and Linux. It can display, edit, analyze, process, save and print
8-bit, 16-bit and 32-bit images. It can read many image formats including
TIFF, GIF, JPEG, BMP, DICOM, FITS and "raw".
http://rsb.info.nih.gov/ij/docs/index.html
Public Health Laboratory Information System (CDC) -- PHLIS is a PC-based
software application where data entry "screens"(modules) can be created and
distributed to all reporting sites electronically. Data can be entered and
reported via these modules without doing any programming. PHLIS also
provides the capacity for a hierarchical reporting scheme involving data
transmission to multiple, successively higher reporting levels and
ultimately to a single central site.
http://wonder.cdc.gov/wonder/sci_data/misc/type_txt/phlis.asp
Databases
Substance Abuse Treatment Facility Locator Database - To locate the drug and
alcohol abuse treatment programs nearest you.
http://findtreatment.samhsa.gov/facilitylocatordoc.htm
HCUPnet is part of the Healthcare Cost and Utilization Project (HCUP) of the
Agency for Healthcare Research and Quality (AHRQ). With HCUPnet, you have
easy access to national statistics and trends and selected State statistics
about hospital stays. HCUPnet guides you step-by-step to obtain the
statistics you need. HCUPnet generates statistics using data from the
Nationwide Inpatient Sample (NIS), the Kids' Inpatient Database (KID), and
the State Inpatient Databases (SID) for States that participate.
http://www.ahrq.gov/data/hcup/hcupnet.htm
HIVnet is a tool that provides information on inpatient and outpatient
utilization by persons with HIV disease. This information is valuable for
service providers, program planners, policymakers, and health services
researchers. http://www.ahrq.gov/data/hivnet.htm
National Guideline Clearinghouse(tm) (NGC), a public resource for
evidence-based clinical practice guidelines. NGC is sponsored by the Agency
for Healthcare Research and Quality (AHRQ).
http://www.guideline.gov/index.asp
Healthfinder is a free, web-based guide to reliable consumer health and
human services information, developed by the U.S. Department of Health and
Human Services. Healthfinder� can lead you to selected online publications,
clearinghouses, databases, Web sites, and support and self-help groups, as
well as government agencies and not-for-profit organizations that produce
reliable information for the public. http://www.healthfinder.gov/
Drug Abuse Warning Network (DAWN) is a national public health surveillance
system that monitors trends in drug-related emergency department visits and
deaths. DAWN is operated by the Substance Abuse and Mental Health Services
Administration (SAMHSA), of the U.S. Department of Health and Human
Services. Various reports can be generated from their online database.
http://www.dawninfo.net/
The Substance Abuse & Mental Health Services Administration (SAMSA) web site
contains links to the latest national data on (1) alcohol, tobacco,
marijuana and other drug abuse, (2) drug related emergency department
episodes and medical examiner cases, and (3) the nation's substance abuse
treatment system. http://www.drugabusestatistics.samhsa.gov/
MedWatch, the FDA Safety Information and Adverse Event Reporting Program,
serves both healthcare professionals and the medical product-using public.
It provides important and timely clinical information about safety issues
involving medical products, including prescription and over-the-counter
drugs, biologics, medical and radiation-emitting devices, and special
nutritional products (e.g., medical foods, dietary supplements and infant
formulas). Medical product safety alerts, recalls, withdrawals, and
important labeling changes that may affect the health of all Americans are
quickly disseminated to the medical community and the general public via
this web site. http://www.fda.gov/medwatch/
The Vaccine Adverse Event Reporting System is a cooperative program for
vaccine safety of the Centers for Disease Control and Prevention (CDC) and
the Food and Drug Administration (FDA). VAERS is a post-marketing safety
surveillance program, collecting information about adverse events (possible
side effects) that occur after the administration of US licensed vaccines.
This Web site provides a nationwide mechanism by which adverse events
following immunization (AEFI) may be reported, analyzed and made available
to the public. http://www.vaers.org/
The FDA Center for Devices and Radiological Health (CDRH) has a number of
online databases accessible via the Internet containing information on
radiological devices, certified mammography facilities, adverse events,
standards, guidelines, etc. http://www.fda.gov/cdrh/databases.html
The Morbidity and Mortality Weekly Report (MMWR) Series is prepared by the
Centers for Disease Control and Prevention (CDC). The data in the weekly
MMWR are provisional, based on weekly reports to CDC by state health
departments. http://www.cdc.gov/mmwr/distrnds.html
Active Bacterial Core Surveillance -- At nine Emerging Infections Program
sites (EIPs), surveillance is conducted for invasive bacterial diseases due
to pathogens of public health importance. For each case of invasive disease
in the study population, a case report with basic demographic information is
filed and, in most cases, bacterial isolates from a normally sterile site
from patients are sent to CDC for laboratory study.
http://www.cdc.gov/ncidod/dbmd/abcs/default.htm
ClinicalTrials.Gov -- The U.S. National Institutes of Health, through its
National Library of Medicine, has developed ClinicalTrials.gov to provide
patients, family members and members of the public current information about
clinical research studies. http://www.clinicaltrials.gov/
Comprehensive Epidemiologic Data Resource (CEDR) -- The Comprehensive
Epidemiologic Data Resource (CEDR) is a Department of Energy (DOE)
public-use repository of data from occupational and environmental health
studies of workers at DOE facilities and nearby community residents.
http://cedr.lbl.gov/
Enrollment DataBase (EDB) -- The Enrollment DataBase (EDB) is the CMS
database of record for Medicare Beneficiary enrollment information. It is
the authoritative source for Medicare beneficiary information, entitlement,
etc. The EDB has information on all Medicare beneficiaries, including Social
Security Retirement and Disability insurance Beneficiaries, End Stage Renal
Disease (ESRD) beneficiaries, and Railroad Retirement Board (RRB)
beneficiaries. http://www.cms.hhs.gov/states/letters/smd90600.asp
The Center for Medicare & Medicaid Services (CMS) has the following
databases available.
� Files for Purchase Directory - large Medicare data sets available
for purchase
� ALERTS - Notices and/or updated information about the files.
� Record Layouts - for: Files For Purchase
� Beneficiary Encrypted Standard Analytical Files - includes record
layouts, copylibs, data element lists and file prices.
� Downloadable Files - no-cost downloads of Medicare data sets, often
in PC-ready formats
� Medicare Cost Report Information - data on Health Care Costs in
facilities that participate in Medicare
� Resource-Based Practice Expense Data Files - data collection and
analysis for generating procedure-specific practice expense estimates
� Additional Statistics and Data Links - If you have a specific area
in mind, this list may help you find it quickly.
Prepared by VA Health IT Sharing Staff - 1/2003
-----Original Message-----
From: Heitzso [mailto:[EMAIL PROTECTED]]
Sent: Thursday, January 30, 2003 9:29 AM
To: [EMAIL PROTECTED]
Subject: HRSA's CAREWare
I attended a briefing yesterday by the developers of HRSA's CAREWare
for HIV clinics. This is a freely downloaded US gov't developed
system that's not internet enabled. It's MS based.
I asked why they hadn't used Vista with the assumption that they
had researched existing software solutions. But, they hadn't done
any research of existing systems first and had no idea what
Vista was.
I brought up the issue that's been mentioned on this list re
doctor's need to have common GUI and client's need to have their
records available at private practice, clinic, hospital and
asked what EHR standards were used and the answer was no
standard -- they wrote their own.
I then asked whether they used HL7 standard in their next release
which provides some data communication capabilities and the answer
was, again, no standard -- entirely propietary.
I suppose I'm sensitized to these issues at the moment but I was
taken aback by the lack of prior research or use of standards.
ON THE OTHER HAND -- if someone needs an HIV clinic package now
this is a slick/gui/easy system that could probably be setup
and running in very little time.
http://hab.hrsa.gov/careware/
Heitzso
