With  the  student's  permission,  I  am  posting  an  OT  student's comment
regarding treatment for ALS.

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I  just thought you might enjoy reading the post I put on Dr. Lehman's forum
for  ALS.  I  did my best to explain OT in regards to treatment. Have a good
day!

His  question  was:  People  with  ALS,  as noted do not have mental/sensory
involvement.  How  would  this  affect your approach in working with someone
with ALS? Would you condiser exercise as part of treatment? Why or why not?


In response to the question of treating patients I would start by looking at
the   patients  occupational  deficits  of  concern  to  them.  Examples  of
occupations  (everything  one does to occupy themselves that gives value and
meaning  to  life)  which  may  be impaired would include feeding, dressing,
social  communication,  functional  and  community  mobility  among  others.
Interventions  would  then  be  designed to address the deficits. Due to the
progressive  nature  of  the  disease  I believe that I would mostly work at
making  adaptations  to  the environment and activities (goal directed human
actions which can lead occupation) to enhance participation in occupation as
opposed  to  using  remediation  to address deficits. Exercise maybe used in
conjunction  with  occupation  based  treatment  if  it  would allow greater
participation  in the desired occupations, but due to the progressive nature
of the muscle wasting this may only hinder participation in occupation.

Another  area  to  be  addressed would be the psychosocial aspects of losing
occupations,  roles  and  dealing  with  death  and  dying.  These  could be
addresses  through  providing  "just  right challenges" to increase role and
occupational  competence. Various frames of references could also be used to
address these concerns.

By  using  the Humanistic frame of reference and Carl Rogers Client-Centered
therapy  principles,  to  develop  a therapeutic relationship, of empathetic
understanding,  unconditional positive regard, and congruency I would change
very  little in the way I approach the client. By utilizing these two models
you  approach  the  client with respect and allow them to have their dignity
while  allowing  them  to  guide the therapy process. They are after all the
experts in their occupations and as a therapist I can help them regain their
occupations.

References:

-Occupational   Therapy  for  Physical  Dysfunction  (4th  Ed)
Catherine Trombly

-Occupational  therapy  Practice  Skills  for  Physical Dysfunction (5th ed)
Lorraine Pedretti & Mary Beth Early

-Occupational Therapy Practice Framework Domain and Process


Jennifer Lordan

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