As always to keep you informed....

Elizabeth H. Thiers, OTR/L
FECTS
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From: Children with Special Health Care Needs Listserv digest
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Sent: Monday, March 15, 2004 12:00 AM
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Subject: cshcn-l digest: March 14, 2004

CSHCN-L Digest for Sunday, March 14, 2004.

1. Florida Governor Signs Bill To Move Children From Waiting List to
KidCare, Implement Eligibility Restrictions 2. Cultural Competence in Health
Care 3. Children say they are not involved enough in their treatment

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Subject: Florida Governor Signs Bill To Move Children From Waiting List to
KidCare, Implement Eligibility Restrictions
From: "John G. Reiss" <[EMAIL PROTECTED]>
Date: Sun, 14 Mar 2004 17:18:01 -0500
X-Message-Number: 1

>From Kaiser

Florida Governor Signs Bill To Move Children From Waiting List to KidCare,
Implement Eligibility Restrictions


Access this story and related links online:
http://cme.kff.org/Key=2234.Sv.J.D.MdyZlP


Florida Gov. Jeb Bush (R) on Thursday signed into law a bill (CD SB
2000) that allocates more than $25.2 million in state and federal funds to
eliminate a waiting list for Florida KidCare, an umbrella organization that
includes three health plans for children in low-income families, and imposes
more restrictions on the program's eligibility requirements, ... Under the
legislation, the state will review applications for 90,280 children who were
on the program's waiting list as of Jan. 30 and give out acceptance letters
to eligible children by April 1. Officials estimate about 19,000 children on
the list are not eligible for KidCare for a variety of reasons, including
qualifing for Medicaid

The law also states that families with access to private health insurance
through their employers are ineligible for KidCare, unless the cost of
private insurance coverage for a dependent exceeds 5% of the family's
income.  Because of those and other changes to eligibility, as many as
20,000 children could lose KidCare coverage. The legislation establishes two
monthlong enrollment periods in January and September, and the governor will
have the authority to "disenroll" children in the program on a "last-in,
first-out basis" if the program has a budget deficit. The law also would
prohibit children of documented immigrants on the waiting list as of Jan. 30
from participating in KidCare; documented immigrants who were already
receiving coverage as of Jan. 30 would be allowed to say in the program ...
Bush said that KidCare "has never been intended to serve as cheaper
insurance," adding, "We will have to protect the integrity of its intent".
However, state Sen. Ron Klein (D) said, "With the stroke of a pen, the
governor has now codified Republican legislation jettisoning more than
20,000 children form the wait-list for KidCare, and blocking working parents
from purchasing critical health care for their children"
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Subject: Cultural Competence in Health Care
From: "John G. Reiss" <[EMAIL PROTECTED]>
Date: Sun, 14 Mar 2004 17:18:18 -0500
X-Message-Number: 2

>From Kaiser
(while this report focuses on the adult and aged population, I thought it to
be of interest - JGR

Access this story and related links online:
http://cme.kff.org/Key=2234.Sv.M.D.MryVF1

 "Cultural Competence in Health Care: Is It Important for People With
Chronic Conditions?" Center on an Aging Society: The brief, the fifth in a
series on chronic conditions, states that health providers and systems are
increasing their commitment to cultural competence, or providers'
ability to deliver health services that meet patients' social, cultural, and
linguistic needs. The brief adds that greater attention to that issue could
help improve access to and quality of care, as well as health outcomes for
certain populations.


http://ihcrp.georgetown.edu/agingsociety/pubhtml/cultural/cultural.html


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Subject: Children say they are not involved enough in their treatment
From: "John G. Reiss" <[EMAIL PROTECTED]>
Date: Sun, 14 Mar 2004 17:21:36 -0500
X-Message-Number: 3

bmj.com Odigwe 328 (7440): 600
>From BMJ (British Medical Journal
See:
http://bmj.bmjjournals.com/cgi/content/full/328/7440/600-b?ecoll&eaf



BMJ  2004;328:600 (13 March), News
Children say they are not involved enough in their treatment Chibuzo Odigwe

Children and teenagers are unhappy with the lack of communication they get
when they are treated in the NHS and think that they are not sufficiently
involved with the decision making process, a new report says.

The report, which was published by the Commission for Health Improvement
last week, says that many children and teenagers felt they had the right to
participate in decisions about their treatment rather than being passive
recipients of care.


It was compiled from 59 separate reports from voluntary bodies and statutory
organisations and is the largest ever compilation of feedback from children
and teenagers about health care. All the information, comprising 700
individual pieces of feedback, is being put on a database, to which health
professionals will have access.

The report gives many examples of how young people viewed their treatment.
They gave descriptions such as "Nobody explained anything about going home"
and "The GP did not ask-[he] just sent a referral."

Some of the young people's comments on their level of involvement were:
"[There was] not enough time to have things properly explained," "[The
doctor] only explained it to my dad," "I know more than my mum, I know
nearly everything," and "[I] did not really understand, nobody explained
what is going to happen to you to make you better."

The responses also showed that they felt that the hospital environment could
be better, with comments such as, "Better decoration would make it feel more
like home."

The responses, which were from children and teenagers up to the age of 19,
were collected in different ways appropriate for each age group, including
questionnaires, oral interviews, and interactive group sessions.
However, to qualify for entry into the database responses had to come
directly from the children, not from parents or other carers.

The Commission for Health Improvement thought that it was important that
young people's voices were heard. Liz Fradd, director of nursing at the
commission,who was responsible for the report, said: "Responding to what
children say they want in health care is more than [giving in to] pester
power-it's good patient care. Children clearly want to be involved,
informed, and consulted when they have to use healthcare services."


To access the full report go to
Children's Voices

www.chi.nhs.uk/childrens_voices/index.shtml





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