I may have a perspective that not many have given recent events with my 
daughter.  I think, in the last 3+ weeks, my ideas have evolved beyond that of 
just "return to function".  It has truly been a learning experience for me.  
There are other perspectives that patients and families bring to the arena that 
I will be much more mindful of in the future.  
I have a 10 year old (yes, that was ten) that was recently diagnosed with RSD 
in her left leg (or CRPS type 1 in the new vernacular).  On September 24th she 
was doing tae kwon do, running, playing and looking forward to being in a 
wedding on Nov. 4.  By September 28th, she was non-ambulatory using crutches 
exclusively and in unremitting, excruciating pain.  She has had a lumbar 
sympathetic block under anesthesia and is undergoing therapy with two 
mindsets--let the pain get better and MOSTLY, I hope I can walk down the aisle 
at Sarah's wedding without crutches.  We are nearing that date and not sure she 
is going to reach that goal.  I think the mindset is somewhere between the two 
ideas presented—they are not exclusive of each other, rather each implies the 
other.  Yes, our primary focus is reducing the pain, but it is SO she can WALK. 
  I believe the goals for recovery are closer to your perspective, Ron, but her 
primary concern above all is to walk down that aisle.  You are right in that 
she sees recovery as the gateway to return to function. It has been very 
interesting being on the other side.  We are working with a physical therapist 
that, while he asked what her goals were, he doesnÂ’t focus on them in a truly 
discernible manner.  I believe an OT would look more closely at the functional 
goals and explicitly apply them in the clinic whereas, her therapy has been 
much more implicit.  

Anyway, those are my thoughts.

Judy Hamby


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