|
Kylie,
As soon as I read your email on the oz mid list I knew
this was her deal, I am sorry I was right, no one want to be right about a
missed diagnosis.
Actually the check for CDH is routine for all newborns
& doesn't require a specialist to screen, all midwives are taught to do them
in their training.
In fact I did an extensive study on CDH as a
major in my training (probably forgotten 50% of it now).
Probably the realistic, workable solution is not
paed checks for all babies but better training for midwives to ensure
that they pick up the easily dislocatable hips & unstable
ones (the potential DHD ) as well as those actually dislocated this
would enable a referral to be made to an orthopaedic specialist
early.
Somehow she has just slipped through the net even
though her symptoms are absolutely classic.
There is heaps of available info on the net,
support groups etc you could utilise.
Presumably you are being referred to an ortho & if
so he would be the best source of information relevant to your child. Resist the
temptation to apply other peoples treatment experiences to your little one
as they are all different people after all & it'll only freak you right out
(worse than you are probably feeling already). Probably the ortho or paeds
secretary/receptionist knows of the information groups in your area, just phone
and ask her.
Rest assured you couldn't have known about this, you
are doing all you can now & with the right professional help she will do
well.
|
BEGIN:VCARD VERSION:2.1 N:;brendamanning FN:brendamanning ORG:the midwife TEL;WORK;VOICE:03 59862535 TEL;WORK;FAX:03 59862535 ADR;WORK:;;79 Besgrove St;Rosebud;Victoria;3939;Australia LABEL;WORK;ENCODING=QUOTED-PRINTABLE:79 Besgrove St=0D=0ARosebud, Victoria 3939=0D=0AAustralia URL;WORK:http://www.thhmidwife.com.au EMAIL;PREF;INTERNET:[EMAIL PROTECTED] REV:20050916T234743Z END:VCARD
