---------- Forwarded message ---------- From: "Thomo Nkgadima" <[email protected]> Date: Oct 30, 2015 10:00 AM Subject: Touching True life story To: <[email protected]> Cc:
> > > > > > > > > > > > > > > > By Thomo Nkgadima > > > > > > > > > > >A woman whose son may not walk again should he not get regular proper medication because he was born with brittle bone disease cry for help! > > > > > > > > > > > > > > > > The rare genetic disorder condition of being with fragile bone that breaks easily left the family crying for help. > > > > > > > > > > > > > > > > > > > > A boy aged five-years old crawls to move around. > > > > > > > > > > > > > > > > > > > > > > > > Little Mbulelo Khoza cannot play with other kids or walk to school. He is like any other child except that he cannot walk around. > > > > > > > > > > > > > > > > > > > > Mbulelo always watches with envy when other kids play. He wish to play with them but cannot walk but living in a community where he is constantly called names because he cannot walk is a nightmare they wish can overcome. > > > > > > > > > > > > > > > > > > The boy fractured his legs few times trying to walk. > > > > > > > > > > > > > > > > > > Mbulelo the Xhosa name meaning thanks. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > The boy from Praktiseer near Burgersfort in Limpopo suffers from Osteogenesis imperfect known as brittle bone disease. It is a genetic disorder characterised by fragile bone that breaks easily. > > > > > > > > > > > > > > > > > > > > > > > > > > > > >The carrying grandmother takes him to Koboti primary school, in an old pram, where he is doing Grade R. The old pram almost higher and weighing too much for him to move around. He cannot run around and play with other kids! > > > > > > > > > > > > > > > > > > His school principal Rebecca Mankoe described him as an intelligent young boy of great promise. "He is one of my best gifted learners with a special need in our school. We are proud of him." she said. > > > > > > > > > > > > > > > > > > > > > > The soft spoken Mbulelo said his dream is to be a TV drama actor one day. "I want to see myself as a successful actor on TV when i finish my studies".It seems he may not realise his dream as a result of his complications. > > > > > > > > > > > > Most importantly he needs medical treatment so that he can recover and walk. > > > > > > > > > > THE NEWS ABOUT THE DECEASE/ILLNESS > > > > > > > > > > > > > > > > Mbulelo was born with the illness in 2010. Her mother realised that some years ago after birth when he was not developing like any other child and took him to hospital for medical examination where they explained to her about Mbulelo 's complication condition. > > > > > > > > > > > > > > > > > > > > > Dr Robert Moraba of Ndlovu Medical care centre said : " The possibility that he can walk is likely there provided he gets proper medical treatment and care he needs. I am afraid his complication may lead to his permanent disability and not walk if left untreated." > > > > > > > > > > > > > > > > > >A MOTHER S PAIN > > > > > > > > > > > > > > > > > > > According to his mother Belinda Khoza (25), : " Doctors told me that he will walk only if he gets medication drug called Pamidronate but I cannot afford to pay for the drug," she said. > > > > > > > > > > > > > > > > > > > > > > He must be given the treatment thrice a year for him to recover well and walk. > > > > > > > > > > > > > > > > > > > > > > Mbulelo currently receive medical treatment from Polokwane provincial hospital which is situated more than 100km away from where he lives with his family. > > > > > > > > > > > > > > > > > > > > "Every time i take my son to Polokwane hospital for medical treatment they tell us to go back home as they have no medication. Worried mother said" They are failing to provide proper treatment to my desperate son." > > > > > > > > > > > > > > > > > > > > > > Belinda from an impoverished family added although she has a national diploma in human resources management from Tshwane University of technology(TUT) , she is unemployed. > > > > > > > > > > > > > > > > > > > > > > > > " I have two children to take care and I only survive on social grant I get monthly" She concluded. > > > > > > > > > > > > > > > > > > > A tearful mom says the worst pain is when people call them witches. > > > > > > > > "I don't know why this is happening to me. All i know is that i won't allow people to call us names", She said. > > > > > > > > > > > > > > > > > > > Mbulelo is an intelligent young boy of great promise who knows all the actors of his favourite local soapie Skeem Saam. > > > > > > > > > > > > > > > > She says there is hope to get help. " I seen and have heard it all" She said. > > > > > > > > > > > > > > > > Her main focus is now to protect her son from the insults and raise funds to afford pay for the medical cost of his beloved son. > > > > > > > > "The government is failing to provide medication to my son and i wish they can educate my community about certain human disorders so that my son can live without shame of being teased or a mockery to other kids. This is unacceptable behaviour, it hurts me as a mother to little Mbulelo. "This is how God created my son in his image and in my eyes he is bright, bold and beautiful. It is indeed a gift from God". > > > > > > > > > > > > > > > > > > >A SON' S MISERY > > > > > > > > > > > > > > > > > > He even askew when he writes his name and his situation limit his freedom to run around or play with other kids. > > > > > > > > > >He is not afraid of being being rejected and teased everyday after school he watches with envy to play with his friends. > > > > > > > > > > > > > > > > His mother is afraid that he may hurt himself again. > > > > > > > > "He was born like this and will not die like this if good Samaritans can lend a helping hand to pay for his medication. > > > > > > > > > > Limpopo department of Health spokesman Casper Zwane said : " It is difficult for us to know every patient 's problems". > > > > > > > > > > > > > > > > > > > > > > > > > He encouraged the family to report their matter to their offices. "If there is a complaint the family must report it to us, our office doors are open at all times. > > > > > > > > > > > > > > > > > > > The family is urging good Samaritans to help pay for little Mbulelo's medical costs. > > > > > > > > > > > > > > > > > > > > > > > > Regards > > > > > > > > > > > > > > > > > > > > > > > > Thomo > > > > > > > > > > > > 0726056834 or 0728296913 -- -- Sending your posting to [email protected] Unsubscribe by sending an email to [email protected] You can also visit http://groups.google.com/group/payco Visit our website at www.mayihlome.wordpress.com --- You received this message because you are subscribed to the Google Groups "Pan Africanist Youth Congress" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
